Tiffany Cook, MS, CCC-SLP

Title: Senior Director

Organization: CureDuchenne Cares

Bio: Tiffany Cook, MS, CCC-SLP is a nationally certified Speech-Language Pathologist with over twenty years of experience in the public-school setting. Tiffany’s son, Wil, was diagnosed with Duchenne in 2007, and subsequently, she was confirmed as a carrier. As the Senior Director of CureDuchenne Cares, Tiffany is dedicated to helping families and others within the community to find the silver linings. Tiffany resides in Dallas with her husband, son, and daughter.

2019 FUTURES: FRIENDS Panel

This panel discusses inclusivity and the importance of meaningful relationships for individuals with Duchenne.

Hawken Miller

Journalist

Washington Post

Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

Holly Van Meeteren, OTR/L

Occupational Therapist

Tustin Unified School District

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Benjamin Tilford

Program Lead

Assistance League of Tustin: Assisteens® Buddy

2021 FUTURES Quality of Life Panel: Cognition in Duchenne

Focused on cognitive abilities and psychological wellness in individuals living with Duchenne.

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Missy Dixon, MS, PhD

Visiting Assistant Professor, Department of Pediatrics, Divisions of Pediatric Neurology, Psychiatry and Behavioral Health

University of Utah

Danielle Forrest, OTR, OTD

Occupational Therapist III

Children’s Health and Rehabilitation Services

Matthew Harmelink, MD

Pediatric Neurologist

Medical College of Wisconsin

Mathula Thangarajh, MD, PhD, FAAN

Assistant Professor of Neurology

Virginia Commonwealth University

2021 FUTURES Quality of Life Panel: Defining Happiness

Focused on the intersection between physical needs and living a fulfilling life.

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

Pradeep P.A. Mammen, MD, FACC, FAHA

Associate Professor of Medicine and Co-Director

Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center

Tom McNalley, MD

Associate Professor of Pediatrics

University of California San Francisco Benioff's Children's Hospitals

Brenda Wong, MD

Professor of Pediatrics and Neurology and Director

UMass Duchenne Muscular Dystrophy Program at the University of Massachusetts Medical School

2021 FUTURES Quality of Life Panel: Easing the Burden

Focused on engaging families in conversations about the load they carry and how to manage life as a caregiver.

Taylor Berhow, MSW, MPA

Social Worker and Neuro-behavioral Health Specialist

University of Utah Health

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Richard Kravitz, MD

Professor of Pediatric Pulmonary and Sleep Medicine

Duke University

Marissa Penrod

Co-Founder

The Duchenne Family Assistance Program

Lori Safford

Duchenne Mother and Advocate

2021 FUTURES Quality of Life Panel: Making Decisions

Focused on empowering families to make informed decisions about their child’s care / personal care across all junctures of the Duchenne journey.

John Brandsema, MD

Child Neurologist and Neuromuscular Section Head

Children’s Hospital of Philadelphia

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Michael Kelly, PhD

Chief Scientific Advisor

CureDuchenne

Sheryl Marrazzo

Duchenne Mother, Grandmother and Advocate

4 Jake's Sake | CureDuchenne

Christina Trout, RN, MSN

Advanced Practice Nurse, Neuromuscular Program

Department of Pediatrics, University of Iowa Stead Family Children’s Hospital

Jennifer Wallace Valdes, PT

CureDuchenne Certified Physical Therapist

CureDuchenne Physical Therapy Program

A Holistic View of Clinical Trials

This panel discussion provides a robust conversation about how clinical trials intersect with family life in the Duchenne community.

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Ana Christensen, MPH

Lead Project Manager, Strategic Solutions

TRiNDS

Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate

Michael Kelly, PhD

Chief Scientific Advisor

CureDuchenne

Michaela Walker, MPH

Project Manager

University of Kansas Medical Center

CureDuchenne Cares Educational Webinar: Reimagining Quality of Life in Duchenne

This webinar, in partnership with the University of Kansas Medical Center, explores topics like achieving milestones, quality of life, and setting goals in families navigating Duchenne muscular dystrophy. The panelists also discuss how to incorporate quality of life metrics into clinical care.

This webinar includes a survey for individuals with Duchenne to participate in: https://redcap.kumc.edu/surveys/?s=YCYNMRDLJ9

Jeffrey M. Statland, MD

Professor of Neurology

University of Kansas Medical Center

Kelli Reiling Ott

Clinical Assistant Professor

University of Kansas Medical Center

Vincent Czerwinski, MD

Medical Student

University of Kansas Medical Center

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

The Family’s Role in Research Panel

A deep dive into the world of clinical and academic research, including input from multiple stakeholders, with the family at the center of it all.

Matthew Alexander, PhD

Assistant Professor in Pediatric Neurology and Genetics

Children’s of Alabama | University of Alabama at Birmingham

Diana Castro, MD

Associate Professor of Pediatrics, Neurology and Neurotherapeutics

University of Texas Southwestern

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Joanna Kemp, BSN, RN

Senior Director of Clinical Operations | Director, CureDuchenne Link

CureDuchenne

Lauren Morgenroth, MS, CGC

Chief Operating Officer

TRiNDS

Clint & Leslie Porter

CureDuchenne Champion Family