Tiffany Cook, MS, CCC-SLP

Title: Senior Director

Organization: CureDuchenne Cares

Bio: Tiffany Cook, MS, CCC-SLP is a nationally certified Speech-Language Pathologist with over twenty years of experience in the public-school setting. Tiffany’s son, Wil, was diagnosed with Duchenne in 2007, and subsequently, she was confirmed as a carrier. As the Senior Director of CureDuchenne Cares, Tiffany is dedicated to helping families and others within the community to find the silver linings. Tiffany resides in Dallas with her husband, son, and daughter.

2019 FUTURES: FRIENDS Panel

This panel discusses inclusivity and the importance of meaningful relationships for individuals with Duchenne.

Hawken Miller

Journalist

Washington Post

Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne

Holly Van Meeteren, OTR/L

Occupational Therapist

Tustin Unified School District

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Benjamin Tilford

Program Lead

Assistance League of Tustin: Assisteens® Buddy

A Holistic View of Clinical Trials

This panel discussion provides a robust conversation about how clinical trials intersect with family life in the Duchenne community.

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Ana Christensen, MPH

Lead Project Manager, Strategic Solutions

TRiNDS

Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate

Michael Kelly, PhD

Chief Scientific Advisor

CureDuchenne

Michaela Walker, MPH

Project Manager

University of Kansas Medical Center

CureDuchenne Cares Educational Webinar: Reimagining Quality of Life in Duchenne

This webinar, in partnership with the University of Kansas Medical Center, explores topics like achieving milestones, quality of life, and setting goals in families navigating Duchenne muscular dystrophy. The panelists also discuss how to incorporate quality of life metrics into clinical care.

This webinar includes a survey for individuals with Duchenne to participate in: https://redcap.kumc.edu/surveys/?s=YCYNMRDLJ9

Jeffrey M. Statland, MD

Professor of Neurology

University of Kansas Medical Center

Kelli Reiling Ott

Clinical Assistant Professor

University of Kansas Medical Center

Vincent Czerwinski, MD

Medical Student

University of Kansas Medical Center

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Doug Levine, PT

CureDuchenne Certified Physical Therapist

CureDuchenne