President & CEO
President & CEO
Debra Miller co-founded CureDuchenne in 2003 with her husband, Paul, after their only son was diagnosed with Duchenne. Miller relies on her extensive background in sales and marketing to lead CureDuchenne.
Her role includes overseeing all operations, research and financial resources as well as serving as the primary liaison to the Board of Directors. She is the decision maker, leader and manager in carrying out the mission of the organization. She also works closely with the Scientific Board of Advisors in designing and implementing the medical research strategic plan.
Miller earned a Bachelor of Arts in Communication Studies from the University of California Los Angeles. Prior to CureDuchenne, she had a career in publishing with positions in advertising sales and was an independent stock trader.
MD, Managing Director, CureDuchenne Ventures and Vice President Medical and Scientific Affairs CureDuchenne
Dr. Jak Knowles joined CureDuchenne in 2015 as the Managing Director of CureDuchenne Ventures and the Vice President of Medical and Scientific Affairs for CureDuchenne. Dr. Knowles has had a career in healthcare spanning over a decade with the last five years focused in biotech venture capital and finance. Most recently, Dr. Knowles was an investment professional in the Boston office of MPM Capital ($2B AUM) where he worked with the BioVentures Asset Management team to create early-stage companies focused on developing curative therapeutics across a wide spectrum of indications.
Prior to MPM, Dr. Knowles worked in New York as a biotechnology equities analyst within the investment bank JMP Securities, and with Burrill & Co., a life sciences VC firm. Dr. Knowles began his post-graduate business career working in health and life sciences consulting practice of Oliver Wyman where he helped implement value-based transformation of hospital systems and physician practices through re-designing care-models, implementation of electronic clinical decision support, and structuring aligned re-imbursement based on patient centric care.
Dr. Knowles has a medical degree from Stanford University where he graduated with honors in biomedical research, and a B.S. in biology from Binghamton University. Dr. Knowles has authored over a dozen research publications from work performed at the Memorial Sloan Kettering Cancer Center, Stanford University, and as part of a NIH sponsored post-doctoral surgical research fellowship.
Chief Scientific Advisor
Dr. Michael Kelly joined CureDuchenne in December 2011 as chief scientific officer. Kelly, a senior pharmaceutical executive, brings more than 25 years experience in drug discovery and development to the organization. He is responsible for advancing drug development programs and identifying new drug targets that exhibit potential to transform the treatment of Duchenne muscular dystrophy.
Before joining CureDuchenne, Kelly served as president and U.S. site head of Renovis, Inc. and has held senior positions at Amgen, Inc., Wyeth (Pfizer) and Wellcome (GlaxoSmithKline).
Kelly holds a Ph.D. from the University of Southampton (U.K.), held research positions at the University of Michigan and University of Nottingham, is an inventor on more than 100 patents and is widely published in peer reviewed journals.
VP Marketing & Operations
Karen Harley joined CureDuchenne in December 2011 as director of marketing communications. She has more than 20 years experience in public relations, social marketing and public education. She is responsible for marketing, communications, public relations, special events, website and building partnerships to help increase awareness about Duchenne muscular dystrophy and raise funds to find a cure for Duchenne.
Before joining CureDuchenne, Harley was director at PainePR. Previously she was vice president of Hill & Knowlton. Harley has managed large-scale public education campaigns focused on obesity prevention, service and volunteering, teen pregnancy prevention, mentoring and disaster preparedness that helped drive behavior change. She has worked with a variety of clients in the public, private and nonprofit sector.
Harley holds a bachelor of arts degree in English and psychology from Indiana University in Bloomington, Indiana.
Sr. Development Director
Rachel Nelson joined CureDuchenne in November 2014 as director of development. She is responsible for parent outreach, special events, volunteer management, and donor cultivation. Over the last ten years her career has focused on business development and marketing.
Nelson comes to us from Mark Beamish Waterproofing where she was a project estimator specializing in sales for restoration projects. Previously, Nelson served as director of business development for the Muscular Dystrophy Association Greater Orange County Chapter. During her tenure at the MDA, she identified and built partnerships with new sponsors as well as leading strategic fundraising initiatives, media campaigns and volunteer outreach.
Eastern Director of Development
Meg Wood joined the CureDuchenne team in 2016 as the Eastern Director of Development. She is a ten year veteran of Boston’s healthcare & biotechnology industry, most recently coming from MPM Capital – an early stage venture group. At MPM Capital, Meghan was marketing lead for several investment funds including the Oncology Impact Fund ($450M) for early stage oncology science.
Before MPM Capital, Meg was a public health manager at Tufts Medical Center and Boston Medical Center. She was responsible for hospital population management, ambulatory patient experience, and patient cost saving initiatives. Meg has both a Master of Public Health and Master of Social Work degree from Boston University.
Director of Physical Therapy
Celeste joined CureDuchenne in May 2016. She is responsible for the overall quality and performance of the CureDuchenne Cares Physical Therapy Training Workshops, Parent Workshops and the PT Certification Program.
Celeste has been a physical therapist since 1997, primarily serving children and young adults with a variety of neurodevelopmental and neuromuscular disorders. As a Senior PT with the County of San Diego’s California Children Services program, she served as liaison to the Muscle Disease Clinic at Rady Children’s Hospital, where she worked with the multidisciplinary team to ensure coordination of care for patients with Duchenne and other muscle diseases. Celeste’s experience as a staff, senior and supervising PT includes work for non-profit, public and private sectors, in home and clinic settings, implementing educational and medical models of care.
Celeste holds a Bachelor of Science degree in Physical Therapy from East Carolina University in Greenville, N.C.
Community Engagement Manager
Kylee Groon joined CureDuchenne in January 2017 as Community Engagement Manager. Her role at the organization is to work with Duchenne families near and far to build supportive relationships between them and the organization. She is responsible for engaging Duchenne families, further connecting them to their communities. With the support of Duchenne families all over the nation, CureDuchenne continues to assist in finding a treatment for all boys living with Duchenne muscular dystrophy.
Kylee comes from a background of strategic communication having a Bachelor of Journalism from University of Missouri. She set her primary educational focus on developing campaigns for non profit organizations while also devoting time to serve both her campus and community. During her college career she completed internships at Make-A-Wish® Orange County and the Inland Empire and Children’s Miracle Network- Columbia. In both roles she gained knowledge of how to work alongside children and families as well as skills in marketing, communications, social media, fundraising and development.
Alicia Clough joined CureDuchenne in May 2013. Clough is responsible for office operations, data entry, donor database/ CRM management and event coordination. She gained two years of office experience in Jacksonville, FL.
Clough holds a Bachelor of Science degree in sociology from Jacksonville University.
Ancia Purdy joined CureDuchenne in January 2016. Purdy assists in daily office operations, data entry and donor input. Purdy gained office experience in a small community newspaper office.
Purdy holds a Bachelor of Arts degree in Communications and Media Studies from Sonoma State University.