Cure Duchenne Resource Library
Welcome to the CureDuchenne Resource Library, an ever-evolving hub of information for families, healthcare providers, patient advocates and individuals at every stage of their journey with Duchenne muscular dystrophy. Here, you’ll find information from world-class specialists on topics that span a wide range of disciplines related to CureDuchenne’s three pillars: cure, care, and community. Please share these resources with family members, friends, colleagues and the general Duchenne community.
CureDuchenne 1:1 provides meetings with our scientists, physical therapists, Duchenne parents, fundraising team and family support resource coordinators. Email us at Cares@CureDuchenne.org to set up a time that works with your schedule.
The red dot signifies content and resources that might be most beneficial to those who have recently begun their Duchenne journey (diagnosed 0-3 years) or those seeking introductory-level information.
The light blue dot signifies content and resources that might be most beneficial to those who have carved out a path on their Duchenne journey (diagnosed 3-6 years) or those with a foundational knowledge of Duchenne seeking intermediate-level information.
The dark blue dot signifies content and resources that might be most beneficial to those who have been on their Duchenne journey for more than a few years (diagnosed 6+ years) or those with an adept knowledge of Duchenne seeking advanced-level information.
The Community section provides information on topics related to finding and building a supportive community, family support resources, inspiring messages from young men with Duchenne and more.
The Industry Presentations category provides information and updates from biotech and pharma companies with programs focused on Duchenne. These presentations are updated as new information is provided to CureDuchenne.
RECURSOS EN ESPAÑOL
RESEARCH AND CLINICAL TRIALS