Getting the Help You Need

This special section of our website was created to address the unique needs of newly diagnosed families. Learning someone you love has been diagnosed with Duchenne is an emotional experience and trying to understand all the new information can be overwhelming. However, important decisions are made soon after diagnosis. We aim to provide the information and resources necessary to help families make decisions that contribute to obtaining the best care possible from the very beginning.

CureDuchenne is a resource you can rely on. We have parents on staff who have children living with Duchenne, a team with years of experience working with families affected by Duchenne, the top medical and scientific advisors, and a vast network of families working together to support each other. Please reach out to us if you need assistance or have any questions. We can help. We want to help. It's the reason we exist.

CureDuchenne 1:1 provides meetings with our scientists, physical therapists, Duchenne parents, fundraising team and family support resource coordinators.

Request a 1:1

Learn About Duchenne
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Plug into Cure Duchenne
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Connect with Us
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Duchenne Care Teams
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Genetic Counseling
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Physical Therapy
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Clinical Trials
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CureDuchenne Caregiver Course
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