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About CureDuchenne Cares
CureDuchenne Cares is an interactive education and outreach program designed to provide the community with information, resources and best practices for managing the challenges of Duchenne to help improve overall quality of life.
Offering both virtual and in-person events, CureDuchenne Cares addresses a variety of topics to help individuals living with Duchenne, their families and caregivers navigate the Duchenne journey. Free and open to everyone, CureDuchenne Cares events seek to educate, empower, support and improve connections within the Duchenne community.
Virtual Events
CureDuchenne Cares hosts virtual community events and webinars throughout the year. Community events are a great way to connect in a casual and “safe” environment with other families who are on a similar journey. Webinars are fantastic educational opportunities featuring experts and specialists in the Duchenne community. Pre-registration for these events include an opportunity to submit questions for Q&A sessions that accompany each presentation.
Workshops
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.
Sessions
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Birthday Fundraising
All of us have blown out candles on our birthday wishing for a cure for Duchenne. But CureDuchenne’s mission is not about wishing – it’s about finding solutions.
If just 100 of us can raise $1,000 on our loved one’s birthday, we’d reach our collective goal of $100,000 and help CureDuchenne keep the pipeline full of life-changing treatments. By creating a birthday party fundraiser for CureDuchenne on behalf of your loved one, you’re making a real difference.
Click here to start a birthday party fundraiser.
Help bring us closer to fulfilling a birthday wish we all share.
For questions or assistance contact fundraising@cureduchenne.org.
Looking for personalized, unbiased information and advice from experts? The CureDuchenne Cares team is ready to assist you with questions you may have. CureDuchenne 1:1 provides meetings with our scientists, physical therapists, Duchenne parents, fundraising team and family support resource coordinators.
Email us at Cares@CureDuchenne.org to set up a time that works with your schedule.
CureDuchenne Cares Program Sponsors
