There is a wealth of resources available to you, your family, physical therapists and other caregivers to ensure your loved one is receiving the best care. With CureDuchenne Cares, you’ll get access to physical therapy programs and providers, training for physical therapists, and information on stretching, equipment, activities, nutrition, school modifications and more.
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Travel assistance is provided to families traveling more than 100 miles and child care is available on site.
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
CureDuchenne holds the comprehensive two-day conference “Futures” once a year, and is free for all Duchenne patients, families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, this conference is designed to provide Duchenne families with the information, support and motivation they need to live the best and longest life possible.
