Webinars

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Embrace This Moment – Part 3

Part 3 of the series engages adults with Duchenne and families who have been on the Duchenne journey for more than a few years, or those who could benefit from […]

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Embrace This Moment – Part 2

Part 2 of the series engages families who have carved out their path on the Duchenne journey for a few years, or those who have foundational knowledge of Duchenne and […]

sarepta-pipeline

Sarepta Pipeline Presentation

In this webinar, Sarepta Therapeutics presents an update on their Duchenne muscular dystrophy pipeline. Diane Berry, PhD, Senior Vice President, Global Health Policy, Government and Patient Affairs and Louise Rodino-Klapac, […]

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Embrace This Moment – Part 1

Part 1 of the series engages families who have recently begun their Duchenne journey, or those who could benefit from introductory-level presentations on the following topics: Message From A Duchenne […]

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Información y recursos de Duchenne sobre COVID-19 

Descripción: Un evento virtual de dos horas centrado en la información sobre COVID-19 y los recursos en el hogar para las personas que viven con Duchenne. Seminario web de Zoom: Abierto al público, dirigido a la comunidad de Duchenne de habla hispana Panelistas: Dr. […]

pfizer-webinar

Pfizer’s Phase 3 Study of Gene Therapy for DMD

In this webinar, Beth Belluscio, MD, PhD, Pfizer Global Clinical Lead for Rare Neurological Disorders, discusses the Phase 3 study of PF-06939926, a gene therapy for Duchenne muscular dystrophy. Dr. Belluscio answers questions […]

Webinar Sarepta

Sarepta Patient Support Program Webinar

In this webinar, Sarepta Therapeutics discusses their patient support program, SareptAssist, intended to support individuals through the process of starting and staying on commercial therapy. Services provided by SareptAssist include […]