Webinars

Part 3 of the series engages adults with Duchenne and families who have been on the Duchenne journey for more than a few years, or those who could benefit from […]

Part 2 of the series engages families who have carved out their path on the Duchenne journey for a few years, or those who have foundational knowledge of Duchenne and […]

In this webinar, Sarepta Therapeutics presents an update on their Duchenne muscular dystrophy pipeline. Diane Berry, PhD, Senior Vice President, Global Health Policy, Government and Patient Affairs and Louise Rodino-Klapac, […]

During this webinar, you will learn about NS Pharma, Inc. (a wholly owned, US subsidiary of Nippon Shinyaku Co., Ltd. based in Kyoto, Japan), focused on developing innovative treatments for […]

Part 1 of the series engages families who have recently begun their Duchenne journey, or those who could benefit from introductory-level presentations on the following topics: Message From A Duchenne […]

Descripción: Un evento virtual de dos horas centrado en la información sobre COVID-19 y los recursos en el hogar para las personas que viven con Duchenne. Seminario web de Zoom: Abierto al público, dirigido a la comunidad de Duchenne de habla hispana Panelistas: Dr. […]

In this webinar, moderated by Tiffany Cook, MS, CCC-SLP, Senior Director of CureDuchenne Cares, the mental health presentation by Paige Lembeck, PhD, will be followed by several presentations from biopharmaceutical companies […]

In this webinar, Beth Belluscio, MD, PhD, Pfizer Global Clinical Lead for Rare Neurological Disorders, discusses the Phase 3 study of PF-06939926, a gene therapy for Duchenne muscular dystrophy. Dr. Belluscio answers questions […]

In this webinar, Sarepta Therapeutics discusses their patient support program, SareptAssist, intended to support individuals through the process of starting and staying on commercial therapy. Services provided by SareptAssist include […]