Like other parents with a child with Duchenne, we’ve been riding an emotional roller coaster since our son was diagnosed. The joys of our son’s smile and determination take us to the top of the world, and then Duchenne muscular dystrophy hits again, and again.
Each parent experiences this emotional roller coaster, and we are bound together by the journey as we search for better care and, ultimately, a cure.
CureDuchenne was formed in response to the precise needs of those who live with Duchenne and their families. From creating the first Duchenne-specific physical therapy program to funding enabling studies for human clinical trials for eteplirsen, the first-ever FDA approved drug for Duchenne patients, we believe in fighting Duchenne from every angle. At CureDuchenne, we care about you, your children and the quality of the life you live together. And we are striving to make the future better.
It’s been our philosophy from the beginning to pursue better medical and therapeutic care, band together to find a cure and build a stronger Duchenne community. Saving children affected by Duchenne has become our life’s work, and together we can be the best advocates for our children.
Please join us and share in the journey of working together to find a cure.