1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

12

CureDuchenne funded research projects
have advanced to human clinical trials

Give them a fighting chance

Learn more about Duchenne

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

27 April @ 08:00 am - 04:30 pm

CureDuchenne Cares Workshop – Chicago, IL

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.

27 April @ 08:30 am - 04:30 pm

CHICAGO: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

UNDERSTANDING DUCHENNE Duchenne is the most common and fatal form of muscular dystrophy. It is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day. Get Informed on the Standards of Duchenne Care Join […]

04 May @ 08:00 am - 04:30 pm

CureDuchenne Cares Workshop – Albuquerque, NM

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.

11 May @ 06:30 pm - 08:30 pm

CureDuchenne Cares Session – Palo Alto, CA

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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CureDuchenne Cares Workshop – Chicago, IL

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.

08:00 am - 04:30 pm
151 W. Adams St.
27April
Learn More

DUCHENNE ARTICLES

NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]

CURE DUCHENNE NEWS

Funds raised will be donated to the national nonprofit, CureDuchenne NEWPORT BEACH, Calif., Feb. 28, 2019 – The inaugural “Love Cures” event recently held in San Diego at the Del Sur Ranch House raised $45,000 to help find a cure for Duchenne muscular dystrophy, a devastating, progressive muscle-wasting disease affecting 15,000 boys and young men […]