1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

9

CureDuchenne funded research projects
have advanced to human clinical trials

BE A MEMBER OF OUR PATIENT REGISTRY

Enroll here to make sure you’re alerted and aware of the latest pharmaceutical treatments for Duchenne muscular dystrophy that become available as research progresses every day.

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breath independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

03June
03 June @ 08:30 am - 05:00 pm

CureDuchenne Cares Regional Family Summit – Palo Alto, CA

This is a free educational event for families and those living with Duchenne. LEARN important care topics, ENGAGE with others, and EMPOWER others to find a cure!

17June
17 June @ 04:00 pm - 08:00 pm

Knoxville Brewfest

The 7th Annual Knoxville Brewfest will be held on June 17. Breweries, beer and enthusiasts from all over will gather for a Summer afternoon sampling fresh beers of all colors, styles and flavors.

24June
24 June @ 08:30 am - 05:00 pm

CureDuchenne Cares Regional Family Summit – Austin, TX

This is a free educational event for families and those living with Duchenne. LEARN important care topics, ENGAGE with others, and EMPOWER others to find a cure!

15July
15 July @ 04:00 am - 10:30 pm

AlaskaMack Extreme Swim, Bike, and Run to CureDuchenne

David is competing in the AlaskaMan(TM) in supporting the effort to find a cure for Duchenne.

1 2 3

7th Annual Getzlaf Golf Shootout

The 7th Annual Getzlaf Golf Shootout – hosted by Ryan Getzlaf, captain of the Anaheim Ducks – is a two-day charity golf event that brings together athletes, celebrities and community leaders.

05:30 pm - 09:00 pm
08September
Learn More

DUCHENNE ARTICLES

LOS ANGELES, April 25, 2017 /PRNewswire/ — Capricor Therapeutics, Inc. (NASDAQ: CAPR), a clinical-stage biotechnology company developing first-in-class biological therapies for cardiac and other medical conditions, today announced positive top-line results from a safety and exploratory efficacy analysis of six-month data from the randomized 12-month Phase I/II HOPE Clinical Trial of CAP-1002 (allogeneic cardiosphere-derived cells), an […]

CURE DUCHENNE NEWS

CureDuchenne firmly believes in working together to help any child with Duchenne muscular dystrophy find the support they need. Duchenne is a disorder which knows no cultural, economic, or social boundaries.  This fatal genetic muscle disease affects more than 300,000 children worldwide. Especially affected are muscular dystrophy patients in Nepal, as the region lacks resources […]

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