1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

9

CureDuchenne funded research projects
have advanced to human clinical trials

BE A MEMBER OF OUR PATIENT REGISTRY

Enroll here to make sure you’re alerted and aware of the latest pharmaceutical treatments for Duchenne muscular dystrophy that become available as research progresses every day.

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breath independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

08April
08 April @ 08:30 am - 02:00 pm

San Diego, CA – Workshop for Duchenne Families

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

08April
08 April @ 06:00 pm - 11:00 pm

2017 Champions to CureDuchenne – Austin

Join fellow Austin community and business leaders in the fight to cure Duchenne during a fun and memorable evening of great food and drinks, entertainment, live and silent auction.

21April
21 April @ 08:30 am - 04:30 pm

Milwaukee, WI – Duchenne: Current Understanding and Treatment

This course is ideal for physical therapists, occupational therapists, speech language pathologists, nursing professionals and others involved in the care of persons with Duchenne who are looking to gain more knowledge.

22April
22 April @ 08:30 am - 02:00 pm

Milwaukee, WI – Workshop for Duchenne Families

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

1 2

2017 Champions to CureDuchenne – Austin

Join fellow Austin community and business leaders in the fight to cure Duchenne during a fun and memorable evening of great food and drinks, entertainment, live and silent auction.

06:00 pm - 11:00 pm
2200 University Club Dr
08April
Learn More

DUCHENNE ARTICLES

ROCKVILLE, Maryland, March 24, 2017 ReveraGen BioPharma Inc, a privately held corporation, today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track designation for vamorolone (VBP15) for the treatment of patients with Duchenne muscular dystrophy.  This designation can speed the review of efficacy and safety data for vamorolone in boys with […]

CURE DUCHENNE NEWS

(Austin, Texas) March 21, 2017 – Some champions are made on a field and some become champions by giving from the heart. On April 8, hundreds of champions committed to finding a cure for Duchenne muscular dystrophy will gather at The University of Texas Golf Club for the eighth annual Champions to CureDuchenne gala to […]

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