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1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

9

CureDuchenne funded research projects
have advanced to human clinical trials

BE A MEMBER OF OUR PATIENT REGISTRY

Enroll here to make sure you’re alerted and aware of the latest pharmaceutical treatments for Duchenne muscular dystrophy that become available as research progresses every day.

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breath independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

23February
23 February @ 08:30 am - 04:30 pm

Continuing Education | Duchenne: Current Understanding and Treatment – Seattle, WA

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

24February
24 February @ 08:00 am - 03:30 pm

Family & Caregiver Workshop – Seattle, WA

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

03March
03 March @ 05:00 pm - 10:00 pm

Napa In Newport

For the wine connoisseur who appreciates the earthen opulence of wine country, cult brands, exquisite cuisine, and unparalleled auction lots, Southern California’s premier wine event is back for the 4th Annual Napa in Newport.

16March
16 March @ 08:30 am - 04:30 pm

Continuing Education | Duchenne: Current Understanding and Treatment – New Orleans, LA

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

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Napa In Newport

For the wine connoisseur who appreciates the earthen opulence of wine country, cult brands, exquisite cuisine, and unparalleled auction lots, Southern California’s premier wine event is back for the 4th Annual Napa in Newport.

05:00 pm - 10:00 pm
1 Ritz Carlton Dr.
03March
Learn More

DUCHENNE ARTICLES

ANAHEIM, Calif., Nov. 15, 2017 /PRNewswire/ — Boys and young men in advanced stages of Duchenne muscular dystrophy experienced significant and sustained improvements in cardiac structure and function, as well as skeletal muscle function, following treatment with CAP-1002, the lead investigational therapy under development at Capricor Therapeutics (NASDAQ: CAPR). These findings were reported today by […]

CURE DUCHENNE NEWS

NEWPORT BEACH, Calif., Feb. 2, 2018 /PRNewswire/ — CureDuchenne, a nonprofit that funds research to find a cure for Duchenne muscular dystrophy, pioneered the community-based CureDuchenne Cares program which provides families, caregivers, and individuals living with Duchenne an interactive education and supportive program.  With support from biotech and pharmaceutical companies, CureDuchenne Cares brings to local communities critical resources that can positively […]

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