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With a mission to cure Duchenne muscular dystrophy

CureDuchenne breaks the traditional charitable mold and balances passion with business acumen. Our innovative venture philanthropy model funds groundbreaking research, early diagnosis and treatment access. With pioneering education and support programs, our organization drives real change for those with Duchenne muscular dystrophy and their loved ones.


Your Dollar Counts
81% of every dollar goes to research and mission critical programs.


Funding Critical Clinical Trials
12 projects funded by CureDuchenne have progressed to clinical trials.


Making an Impact
We’ve raised over $50 million for research, education and care.


Accelerating a Cure
CureDuchenne contributed early funding for the first FDA-approved Duchenne drug.


Working Towards the Future
Our model has leveraged $2.3 billion in follow-on funding for future programs from investors and biotech companies.

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”


Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.