Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.


CureDuchenne funded research projects
have advanced to human clinical trials

Give them a fighting chance

Learn more about Duchenne

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”


Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.



25 January @ 08:30 am - 04:30 pm

Continuing Education Course – Breckenridge, MN

Registration for just the course is $130. For more information and registration, click HERE. Course Schedule 8:00-8:30: Registration and sign in 8:30-9:30: General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30: Typical Progression and Client Presentation 10:30-10:45: Break 10:45-11:15: Concurrent Medical Interventions, Comorbidities 11:15-12:30: Evaluation and Intervention  (Therapy and surgical) 12:30-1:30: Lunch 1:30-2:15: Exercise, Activity […]

02 February @ 12:00 pm - 02:00 pm

Family & Caregiver Session – Irvine, CA

Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda:  12:00 PM – 12:05 PM Welcome and Introductions Eunice Miranda, Director of Special Events, CureDuchenne Cares 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 […]

08 February @ 08:30 am - 04:30 pm

Continuing Education Course – Raleigh, NC

Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the   component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course […]

09 February @ 08:00 am - 03:00 pm

Raleigh CureDuchenne Cares Workshop

Register here. Agenda:  8:00 AM Registration | Breakfast  9:00 AM – 12:00 PM Keynote Speaker: Edward C. Smith, MD, Duke University | Clinical Trials & Research Updates  12:00 PM – 12:45 PM Lunch | Pharma – Patient Advocacy Group Presentations 12:45 PM – 3:00 PM Physical Therapy | Family Support | Fundraising

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Love Cures

Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips […]

06:00 pm - 10:00 pm
15455 Paseo Del Sur
Learn More


NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]


Newport Beach, Calif. (November 5, 2018) – CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy (DMD), announced today it will host a webinar with Avidity Biosciences, a privately held biotech company pioneering a new class of precision medicines based upon […]