1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

12

CureDuchenne funded research projects
have advanced to human clinical trials

Give them a fighting chance

Learn more about Duchenne

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

16 February @ 06:00 pm - 10:00 pm

Love Cures

Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips […]

23 February @ 08:00 am - 03:00 pm

Portland CureDuchenne Cares Workshop

For more information and registration, click HERE. Agenda: 8:00 AM Registration | Breakfast 9:00 AM – 12:00 PM Keynote Speaker: Edward C. Smith, MD, Duke University | Clinical Trials & Research Updates 12:00 PM – 12:45 PM Lunch | Pharma – Patient Advocacy Group Presentations 12:45 PM – 3:00 PM Physical Therapy | Family Support | Fundraising

02 March @ 05:00 pm - 10:00 pm

Napa in Newport

Wine connoisseurs and epicureans: Indulge in Napa Valley’s premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular […]

16 March @ 08:00 am - 04:30 pm

Columbia CureDuchenne Cares Workshop

For more information and registration, click HERE. Agenda: 8:00 AM Registration | Breakfast 9:00 AM – 12:00 PM Keynote Speaker: Raghav Govindarajan, MD, Mizzou 12:00 PM – 12:45 PM Lunch 12:45 PM – 4:30 PM Pharma – Patient Advocacy Group Presentations | Physical Therapy | Family Support | Fundraising

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Love Cures

Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips […]

06:00 pm - 10:00 pm
15455 Paseo Del Sur
17December
Learn More

DUCHENNE ARTICLES

NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]

CURE DUCHENNE NEWS

Newport Beach, Calif. (November 5, 2018) – CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy (DMD), announced today it will host a webinar with Avidity Biosciences, a privately held biotech company pioneering a new class of precision medicines based upon […]

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