Join us at FUTURES!

OCTOBER 11-13, 2019
Disneyland Hotel | Anaheim, CA

At CureDuchenne, we have a new framework for helping patients, families and caregivers understand the complexities of Duchenne: F Words.

Join us for a free two-day conference where patients, families, caregivers, and healthcare professionals share critical information, engage in conversations, and witness the positive future in store for everyone in the Duchenne Community.

FUNCTION

Support the Duchenne patient through standards of care management. Help families find the “silver lining.”

FAMILY

Support the family and the individual with Duchenne by providing resources and decision making support.

FITNESS

Support the Duchenne patient through mental and physical health. Stretching. Caregiver self-care techniques.

FUN

Support the Duchenne patient by fostering independence and access to the wider world.

FRIENDS

Support the Duchenne patient through peer relationships, inclusion and kindness.

FEATURED SPEAKERS

Dr. Eric Olson, PhD

Professor and Chairman, Department of Molecular Biology, UT Southwestern Medical Center

Founder and Chief Scientific Advisor, Exonics Therapeutics

Brenda Wong, MD

Director, Duchenne Muscular Dystrophy Center, UMass Memorial Medical Center

Dongsheng Duan, PhD

Researcher and Professor,
University of Missouri School of Medicine

Pradeep Mammen, MD

FACC, FAHA, Cardiologist, UT Southwestern

John Brandsema, MD

Neurologist, Children’s Hospital of Philadelphia

Oscar Henry Mayer, MD

Pulmonologist, Children’s Hospital of Philadelphia

Missy Dixon, PhD

Educational Psychologist, The University of Utah

More speakers to be announced soon.

Topics

Motivational Speaker

Panels on:
Access and Independence
Standards of Care
Taking Care of the Caregiver

Symposium:
Exon Skipping
Gene Editing
Gene Therapy

Activities

e-Gaming Lounge and other fun activities for kids of all ages

Resource Fair

Friend-Raiser Social

Hotel Information

  • Distance from FUTURES: On Property
  • Discounted rate of $269 per night* final reservations by September 11, 2019
  • Distance from FUTURES: 1.9 miles
  • Discounted rate of $159 per night* final reservations by September 11, 2019

Transportation Options from Sheraton:

Anaheim Resort Transportation (ART)

  • Board bus 3 at Sheraton Park bus stop
  • Two (2) passengers with accessibility needs per bus
  • Service: Every 20 minutes
  • Tickets and information available at www.rideart.org

Daily Standard Parking Rates at Disneyland Hotel

  • Self-parking- $25 per vehicle
  • Valet parking- $35 per vehicle
  • These charges are for one in, once out privileges and not for in/out privileges

ORGANIZATIONS WHO PARTICIPATED IN FUTURES 2018

CureDuchenne  | +1 949-872-2552  |  info@cureduchenne.org