At CureDuchenne, we have a new framework for helping patients, families and caregivers understand the complexities of Duchenne: F Words.
Join us for a free two-day conference where patients, families, caregivers, and healthcare professionals share critical information, engage in conversations, and witness the positive future in store for everyone in the Duchenne Community.
Support the Duchenne patient through standards of care management. Help families find the “silver lining.”
Support the family and the individual with Duchenne by providing resources and decision making support.
Support the Duchenne patient through mental and physical health. Stretching. Caregiver self-care techniques.
Support the Duchenne patient by fostering independence and access to the wider world.
Support the Duchenne patient through peer relationships, inclusion and kindness.
Dr. Eric Olson, PhD
Professor and Chairman, Department of Molecular Biology, UT Southwestern Medical Center
Founder and Chief Scientific Advisor, Exonics Therapeutics
Brenda Wong, MD
Director, Duchenne Muscular Dystrophy Center, UMass Memorial Medical Center
Dongsheng Duan, PhD
Researcher and Professor,
University of Missouri School of Medicine
Pradeep Mammen, MD
FACC, FAHA, Cardiologist, UT Southwestern
John Brandsema, MD
Neurologist, Children’s Hospital of Philadelphia
Oscar Henry Mayer, MD
Pulmonologist, Children’s Hospital of Philadelphia
Missy Dixon, PhD
Educational Psychologist, The University of Utah
More speakers to be announced soon.
Distance from FUTURES: On Property
Discounted rate of $269 per night* final reservations by September 11, 2019
Distance from FUTURES: 1.9 miles
Discounted rate of $159 per night* final reservations by September 11, 2019
Transportation Options from Sheraton:
Anaheim Resort Transportation (ART)
Board bus 3 at Sheraton Park bus stop
Two (2) passengers with accessibility needs per bus
Service: Every 20 minutes
Tickets and information available at www.rideart.org
Daily Standard Parking Rates at Disneyland Hotel
Self-parking- $25 per vehicle
Valet parking- $35 per vehicle
These charges are for one in, once out privileges and not for in/out privileges