Marissa Penrod

Title: Co-Founder

Organization: The Duchenne Family Assistance Program

Bio: Kelly Maynard and Marissa Penrod are the co-founders of the Duchenne Family Assistance Program, affectionately referred to as “D-FAP”. Marissa and Kelly each have sons with Duchenne. The program has two key priorities – to offer families financial assistance with expenses related to the care of a child or young adult with Duchenne, and to provide help and expertise to families who need access to recommended treatments and equipment, clinical care, and social services.


This panel discusses genetic carrier health, mental health and coping skills, and assistance for Duchenne families.

Virginia Kimonis, MD, MRCP

Professor, Department of Pediatrics, Division of Genetics and Genomic Medicine

University of California, Irvine Medical Center, Children’s Hospital of Orange County

Lauren Morgenroth, MS, CGC

Chief Operating Officer


Ashley Yee, MSW

Director of Patient Engagement

Global Genes

Laurie Miller, CSW

Clinical Social Worker

Children's Hospital of Los Angeles

Leona Filis

Special Needs Attorney

The Filis Law Firm, P.C.

Kelly Maynard


The Duchenne Family Assistance Program

Marissa Penrod


The Duchenne Family Assistance Program

2021 FUTURES Quality of Life Panel: Easing the Burden

Focused on engaging families in conversations about the load they carry and how to manage life as a caregiver.

Taylor Berhow, MSW, MPA

Social Worker and Neuro-behavioral Health Specialist

University of Utah Health

Tiffany Cook, MS, CCC-SLP

Senior Director

CureDuchenne Cares

Richard Kravitz, MD

Professor of Pediatric Pulmonary and Sleep Medicine

Duke University

Marissa Penrod


The Duchenne Family Assistance Program

Lori Safford

Duchenne Mother and Advocate

Community of Caregivers

An interactive discussion on the unique journey of caregivers, and tools to unite and strengthen the Duchenne community in their shared experience.

Laura McLinn


Best Day Ever Foundation

Marissa Penrod


The Duchenne Family Assistance Program

Leslie Porter

Family, Duchenne Advocate

Family, Duchenne Advocate