Title: Journalist
Organization: Washington Post
Bio: Hawken Miller is a 22-year-old with Duchenne Muscular Dystrophy. He is a journalist by trade and is a speaker, columnist, tweeter and videographer on the side. Hawken works for The Washington Post’s esports section, writes a weekly column called “Hawk’s-Eye View” for Muscular Dystrophy News Today and is a spokesperson for CureDuchenne. He graduated from the University of Southern California with honors in May 2019, where he majored in journalism.
This panel discusses inclusivity and the importance of meaningful relationships for individuals with Duchenne.
Occupational Therapist
Tustin Unified School District
Program Lead
Assistance League of Tustin: Assisteens® Buddy
Esta sesión está destinada a familias/cuidadores de adolescentes y adultos con Duchenne. Cubre cuatro pilares del viaje transicional de Duchenne: Continuidad de la atención, Planificación del estilo de vida, Éxito financiero y Escuela/Carrera/Pasatiempos, y es seguido por una sesión de discusión/Preguntas y respuestas.
Associate Professor of Medicine and Co-Director
Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center
Pediatric Gastroenterologist
Nationwide Children's Hospital
Director, Payer Relations
Little Hercules Foundation
This session is intended for families/caregivers of teens and adults with Duchenne. It covers four pillars of the transitional Duchenne journey: Continuity of Care, GI-related Care, Medical Privacy, and School/Career/Hobbies, and is followed by a discussion/Q&A session.
Associate Professor of Medicine and Co-Director
Senator Paul D. Wellstone Muscular Dystrophy Cooperative Research Center, Director for Translational Research for the Advanced Heart Failure and Transplant Cardiology Program, UT Southwestern Medical Center
Director, Payer Relations
Little Hercules Foundation
Pediatric Gastroenterologist
Nationwide Children's Hospital