Mindy Cameron

Title: Patient Advocacy Lead

Organization: Santhera Pharmaceuticals

Bio: Mindy Cameron brings over 17 years as a Duchenne advocate to her role as Patient Advocacy Lead at Santhera Pharmaceuticals. Mindy has served the DMD community in a wide array of capacities since 2004, when the youngest of her two sons was diagnosed with the disorder. She has worked closely with many Duchenne non-profit organizations over the past two decades, including CureDuchenne, Parent Project Muscular Dystrophy, and Little Hercules Foundation. In addition to her work with Santhera, Mindy is a member of the Patient Insights Board at Medidata Solutions, a global technology leader in the life sciences industry. Mindy lives in Carmel, Indiana, where she serves as a board director for the Muscular Dystrophy Family Foundation and a member of the Carmel City Council’s Committee on Disability.

Beyond Dystrophin Panel

This conference session provides insight and updates from companies whose therapies target critical aspects of the Duchenne disease process that occur alongside reductions in dystrophin.

Abby Bronson

Vice President, Patient Advocacy & External Innovation

Edgewise Therapeutics

Mindy Cameron

Patient Advocacy Lead

Santhera Pharmaceuticals

Matthew Klein, M.D., M.S., FACS

Chief Operating Officer

PTC Therapeutics

Daniel Paulson, MD

Vice President of Clinical Development

Capricor Therapeutics

Han Phan, MD


Rare Disease Research, LLC