Dr. Wong is the Director of the Comprehensive Neuromuscular Center at Cincinnati Children’s Hospital Medical Center and Professor of Pediatrics and Neurology at the University of Cincinnati. Dr. Wong and the various specialists at the Comprehensive Neuromuscular Center have been delivering state of the art coordinated interdisciplinary care for many patients with Duchenne Muscular Dystrophy from various states in the U.S. and other countries. Dr. Wong and her clinical research team has been actively engaged in various clinical trials of promising therapeutics for Duchenne patients. She is also very involved with the Duchenne community to strive to improve the care and outcome of boys and young men with Duchenne.
“Dr. Wong brings a positive force to improve the lives of those with Duchenne,” said Debra Miller, founder and CEO of CureDuchenne. “She believes children can live happy, productive lives despite their disease. The fact that hundreds of families across the U.S. fly cross-country to see Dr. Wong is a testament to how much she helps our children. Dr. Wong and her team have done so much for those impacted with Duchenne and their families. We are delighted to honor her with the CureDuchenne Cares Award.”
The CureDuchenne Cares Award celebrates the contributions of individuals, organizations and companies that positively impact the lives of those with Duchenne muscular dystrophy. The award was presented to Dr. Wong at the Napa in Newport Wine Auction on February 28 at the Balboa Bay Resort in Newport Beach, Calif. The Napa in Newport Wine Auction benefited CureDuchenne and proceeds of the event will fund research to find a cure for Duchenne, a progressive muscle-wasting disease that impacts 1 in 3,500 boys. Boys with Duchenne are usually diagnosed by 5, in a wheelchair by 12 and most don’t survive their mid-20s. Currently, there is no approved treatment for Duchenne.
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have advanced into human clinical trials – a unique accomplishment as few health-related nonprofits have been as successful in being a catalyst for human clinical trials.
About Cincinnati Children’s Hospital Medical Center
Cincinnati Children’s Hospital Medical Center ranks third in the nation among all Honor Roll hospitals in U.S. News and World Report’s 2014 Best Children’s Hospitals. It is also ranked in the top 10 for all 10 pediatric specialties. Cincinnati Children’s, a non-profit organization, is one of the top three recipients of pediatric research grants from the National Institutes of Health, and a research and teaching affiliate of the University of Cincinnati College of Medicine. The medical center is internationally recognized for improving child health and transforming delivery of care through fully integrated, globally recognized research, education and innovation. Additional information can be found at www.cincinnatichildrens.org. Connect on the Cincinnati Children’s blog, via Facebook and on Twitter.