La 2da parte incluirá los siguientes temas: Educación para el cuidador Sugerencias para los cuidadores – mejores prácticas físicas, mentales y emocionales Anécdota familia & construcción comunitaria Se le pedirá […]
La 1ra parte incluira los siguientes temas: Acceso al Cuidado Multidisciplinario Guia nutricional para Individuos con Duchenne Programa de Asistencia Familiar Duchenne (Duchenne Family Assistance Program) Se le pedirá que […]
Dr. Paolo Bettica’s update about the Italfarmaco Givinostat development program includes progress on the Italfarmaco studies about Givinostat in Duchenne and Becker Muscular Dystrophy then takes your questions about the […]
NS Pharma Announcement of Viltepso: A New FDA-Approved Treatment for Patients With Duchenne Muscular Dystrophy (DMD) Amenable to Exon 53 Skipping View this webinar to learn more about Viltepso from […]
Part 3 of the series engages adults with Duchenne and families who have been on the Duchenne journey for more than a few years, or those who could benefit from […]
Part 2 of the series engages families who have carved out their path on the Duchenne journey for a few years, or those who have foundational knowledge of Duchenne and […]
In this webinar, Sarepta Therapeutics presents an update on their Duchenne muscular dystrophy pipeline. Diane Berry, PhD, Senior Vice President, Global Health Policy, Government and Patient Affairs and Louise Rodino-Klapac, […]
During this webinar, you will learn about NS Pharma, Inc. (a wholly owned, US subsidiary of Nippon Shinyaku Co., Ltd. based in Kyoto, Japan), focused on developing innovative treatments for […]
Part 1 of the series engages families who have recently begun their Duchenne journey, or those who could benefit from introductory-level presentations on the following topics: Message From A Duchenne […]
