CureDuchenne launched the Ì¢âÂÒDollar 4 DuchenneÌ¢âÂÌ_ campaign today during World Duchenne Awareness Day to fund research to find a cure for Duchenne muscular dystrophy. The Ì¢âÂÒDollar 4 DuchenneÌ¢âÂÌ_ campaign encourages people to donate one dollar to help fund Duchenne research. Ì¢âÂÒDollar 4 DuchenneÌ¢âÂÌ_ is part of a comprehensive CureDuchenne fundraising campaign to raise $7 million to fund a Duchenne research project.
Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the fourth annual Getzlaf Golf Shootout to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. This two-day charity golf event includes a reception at Sutra Lounge in Costa Mesa on September 6 and a golf tournament held at the Monarch Beach Golf Links in Dana Point on September 7. Each foursome will be teamed up with a professional athlete or celebrity for an exciting day on the green
CureDuchenne announced today a new $7 million (Ì¢Û_åÂ5M) collaboration with the biotechnology company Prosensa (NASDAQ: RNA) to help get experimental medicines to patients with Duchenne Muscular Dystrophy more quickly.
NEWPORT BEACH, California, August 10, 2014 Ì¢âÂÛÏ A new Ì¢âÂÒroute forward for therapyÌ¢âÂÌ_ for patients with Duchenne muscular dystrophy, a degenerative disease that mostly afflicts young boys, has been reported by Dr. Kevin Flanigan, principal investigator at the Center for Gene Therapy at Nationwide ChildrenÌ¢âÂã¢s Hospital in Columbus, Ohio.
Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the fourth annual Getzlaf Golf Shootout to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy.
CureDuchenne is pleased to launch the 79 Days of Duchenne project with Sarah Burgess, singer-songwriter and contestant on the sixth season of American Idol. More than 79 talented individuals created 79 unique videos to the song Ì¢âÂÒRun AwayÌ¢âÂÌ_ written by Burgess to help raise awareness to find a cure for Duchenne muscular dystrophy.
CureDuchenne is pleased to announce a partnership with the Duchenne Therapy Network to provide training to physical therapists as well as Duchenne families and caregivers about specialized care for Duchenne patients.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, issued the following statement today regarding the announcement by Prosensa Holding N.V. (NASDAQ: RNA) that the United States Food and Drug Administration (FDA) has outlined a regulatory path forward, under an accelerated approval pathway, for drisapersen, a potential treatment for Duchenne Muscular Dystrophy (DMD).
CureDuchenne Founder and CEO Debra Miller is a panelist at the California WomenÌ¢âÂã¢s Conference on May 19 at the Long Beach Convention Center. Miller will participate in a panel called Ì¢âÂÒA New Approach to Non-Profit Impact.Ì¢âÂÌ_ She will speak about venture philanthropy and how CureDuchenne has created a successful business model to help accelerate Duchenne research.
