NEWPORT BEACH, Calif., Feb 26, 2019 – CureDuchenne, the nonprofit global leader in Duchenne research, patient care and innovation, announced today that its CureDuchenne Cares program will offer the Duchenne community 30 free educational events across the United States in 2019. This includes the second annual “FUTURES” conference, which is set for October 11 -13, 2019 at the Disneyland Hotel in Anaheim, California. Additionally, CureDuchenne Cares is offering 9 “Workshops” and 20 “Sessions” – all offered at no cost to families and designed to empower families navigating the Duchenne journey. To get more information and register for CureDuchenne Cares events, please go to https://www.cureduchenne.org/cureduchenne-cares/.
CureDuchenne’s 2019 FUTURES conference is a comprehensive two-day event that is offered at no cost to families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, the conference is designed to provide families with the information, support and motivation they need to live the best and longest life possible.
“Workshops” are one-day events that provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge and advancements in the field. Caregivers learn about Physical Therapy, get valuable updates about clinical trials and learn about best practices in care.
“Sessions” are 2-hour meetings held in different cities across the country each year. These events address a variety of topics focused on disease management, including best standards of care, and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. “Sessions” are an excellent way to network and share experiences with local families.
“We are very excited about offering so many opportunities for the Duchenne community to learn about best practices in care and engage with others on the same journey,” said Debra Miller, founder and CEO, CureDuchenne. This is our biggest year yet and we are thrilled to offer 30 events across the country.”
CureDuchenne is the nation’s leading nonprofit organization dedicated to finding a cure for Duchenne, the most common and lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys and young men living today. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy. For more information on how to help raise awareness and funds needed for research, please visit www.cureduchenne.org, and follow us on Facebook, Twitter and YouTube.
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