1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

12

CureDuchenne funded research projects
have advanced to human clinical trials

Give them a fighting chance

Learn more about Duchenne

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

29 June @ 08:30 am - 04:30 pm

PHOENIX: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

UNDERSTANDING DUCHENNE The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.

06 September @ 12:00 am - 11:59 pm

9th Annual Getzlaf Golf Shootout

The 9th Annual Getzlaf Golf Shootout – hosted by Ryan Getzlaf, captain of the Anaheim Ducks – is a two-day charity golf event that brings together athletes, celebrities and community leaders in support of CureDuchenne.

14 September @ 08:00 am - 04:30 pm

Honolulu CureDuchenne Cares Workshop

A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.

28 September @ 08:00 am - 04:30 pm

Richmond CureDuchenne Cares Workshop

A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.

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PHOENIX: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

UNDERSTANDING DUCHENNE The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.

08:30 am - 04:30 pm
1920 East Cambridge Avenue
29June
Learn More

DUCHENNE ARTICLES

NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]

CURE DUCHENNE NEWS

Deal will accelerate drug development for Duchenne muscular dystrophy, a rare disease that affects 300,000 boys and young men worldwide June 06, 2019 07:11 PM Eastern Daylight Time NEWPORT BEACH, Calif.–(BUSINESS WIRE)–CureDuchenne, a nonprofit global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy […]