Pinkies Up To Cure Duchenne

Click below to learn how to participate

1st

Drug approved by the FDA
for the treatment of Duchenne.
CureDuchenne was an early funder.

12

CureDuchenne funded research projects
have advanced to human clinical trials

Give them a fighting chance

Learn more about Duchenne

BE A MEMBER OF OUR PATIENT REGISTRY

Enroll here to make sure you’re alerted and aware of the latest pharmaceutical treatments for Duchenne muscular dystrophy that become available as research progresses every day.

Our lives were changed forever…

“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to… CureDuchenne has hosted several workshops that have been invaluable in providing knowledge on the care, treatment and future of our son, but, even more importantly, has enabled us to spend time with other Duchenne families…”

READ FAMILY STORY

Duchenne is a devastating muscle disease.

It’s the most common and severe form of muscular dystrophy. Those affected with Duchenne lose their ability to walk, feed themselves, breathe independently and succumb to heart failure. But there’s hope through new pharmacological and gene-based therapies. You can help make a difference.

LEARN ABOUT THE DISEASE

UPCOMING EVENTS, WORKSHOPS & WEBINARS

11 January @ 06:00 pm - 08:00 pm

Family & Caregiver Session – Little Rock, AR

Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda:  6:00 PM – 6:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President,CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical […]

12 January @ 12:00 pm - 02:00 pm

Family & Caregiver Session – Atlanta, GA

Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda:   12:00 PM – 12:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM […]

18 January @ 06:00 pm - 08:00 pm

Family & Caregiver Session – Indianapolis, IN

Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview […]

08 February @ 08:30 am - 04:30 pm

Continuing Education Course – Raleigh, NC

Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the   component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course […]

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Napa in Newport

Wine connoisseurs and epicureans: Indulge in Napa Valley’s premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular […]

05:00 pm - 10:00 pm
One Monarch Beach Resort
13November
Learn More

DUCHENNE ARTICLES

NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]

CURE DUCHENNE NEWS

Newport Beach, Calif. (November 5, 2018) – CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy (DMD), announced today it will host a webinar with Avidity Biosciences, a privately held biotech company pioneering a new class of precision medicines based upon […]

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