In the News

SRPT press release – golodirsen NDA acceptance 02 14 19
In last year’s action film “Rampage,” which featured Dwayne “The Rock” Johnson, CRISPR gene-editing technology turns a gorilla, a wolf, and a crocodile into monsters the size of skyscrapers that destroy Chicago. If you missed the movie, you may have caught wind of He Jiankui. Near the end of 2018, the Chinese scientist reported having used CRISPR […]
When it comes to Duchenne muscular dystrophy (DMD), Leonardo Feder knows he’s among the lucky ones. A resident of São Paulo, Brazil’s largest city, Feder was diagnosed with Duchenne at age 6 and immediately began taking corticosteroids as well as heart medicine and supplements. “I’ve been well-medicated all my life, so I’m fine,” the 33-year-old said […]
Like many mothers of boys with muscular dystrophy, Deborah Hall hasn’t had an easy life. Hall, the daughter of a chemical engineer and a stay-at-home mom, was one of six siblings growing up in Boaz, West Virginia. When her younger brother, John, was 3 years old, doctors diagnosed him with Duchenne muscular dystrophy (DMD). Twenty-five years […]
CRISPR-Cas9 has the ability to change everything about our world. Here’s why it’s awesome and why it’s scary. Outrage continues to grow over the news that Chinese scientist He Jiankui claims to have used gene-editing technology called CRISPR-Cas9 to create embryos that he then transferred into a woman, resulting in the birth of twin girls. […]
DURHAM – Back in 2003, new mother Debra Miller with her husband, Paul, founded CureDuchenne after their only son was diagnosed with Duchenne, a rapidly progressing form of muscular dystrophy. No doubt, it’s been a long haul working to find the best therapies for the disease. But there is now reason to be even more hopeful. […]
 UNIVERSITY CITY (WPVI) — Philadelphia’s well-known for medical research, with thousands of people in our city working in that field. Recently, a high schooler got time in a professional lab, trying to find a cure for the disease that he lives with. Yuva Gambhir has been getting a whole new look at Duchenne muscular […]
ORANGE COUNTY BUSINESS JOURNAL Paul Miller, co-founder of the CureDuchenne nonprofit group and chief operating officer of Irvine-based Patman Meat Group, recalls the first time he met the woman who would become his wife and the mother of their son, Hawken…
ADVOCACY For the past eight years, the Green Bay linebacker has been using his platform for good by raising awareness of Duchenne and supporting CureDuchenne in its efforts to drive progress towards a cure. Clay Matthews, the Super Bowl-winning linebacker for the Green Bay Packers, became a part of the rare disease community almost by chance. […]
ADVOCACY Most people know Clay Matthews as the superstar Green Bay Packers linebacker with long, blonde hair and a trademark predator-sack celebration — I know Matthews as a person with a soft heart and a real passion for evoking change. Matthews is a champion for boys with Duchenne muscular dystrophy.  Duchenne is a progressive muscle-wasting disease […]

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