Events Search and Views Navigation
August 2020
Phoenix, AZ CureDuchenne Cares Workshop
Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…
Find out more »CureDuchenne Biobank – Phoenix, AZ
We are pleased to announce that the CureDuchenne Biobank is scheduled to collect samples in Phoenix, AZ. We have partnered with RUCDR Infinite Biologics and Dr. Tahseen Mozaffar from UC Irvine, to create the CureDuchenne Biobank which will collect minimally invasive blood and skin tissue samples from patients and their siblings that will be banked and made openly accessible for research. These high quality, standardized samples will help provide researchers access to data to accelerate the work necessary to find…
Find out more »Honolulu, HI CureDuchenne Cares Session
A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click…
Find out more »Columbus, OH CureDuchenne Cares Workshop
Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…
Find out more »September 2020
Kansas City, MO CureDuchenne Cares Workshop
Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…
Find out more »CureDuchenne Professional Course – Kansas City, MO
For PTs, OTs, SLPs, Nurses and Healthcare Providers This course meets all requirements put forth by Montana Board of PT examiners for 6.5 CE hours and has been approved by the Montana Board of OT Practice; Course Approval #OTP-CEC-LIC-361. "Duchenne Muscular Dystrophy: Current understanding and treatment" The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, therapy and research, healthcare providers are improving…
Find out more »2020 Getzlaf Golf Shootout
The 10th Annual Getzlaf Golf Shootout - hosted by Ryan Getzlaf, captain of the Anaheim Ducks - is a two-day charity golf event for CureDuchenne. Ryan Getzlaf, Captain of the Anaheim Ducks, and his wife Paige, are bringing together professional athletes and celebrities to help save the lives of children with Duchenne through the Getzlaf Golf Shootout and MVP Party. Click here to learn more.
Find out more »Chicago, IL CureDuchenne Cares Session
A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE
Find out more »Minneapolis, MN CureDuchenne Cares Workshop
Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…
Find out more »CureDuchenne Professional Course – Minneapolis, MN
For PTs, OTs, SLPs, Nurses and Healthcare Providers This course meets all requirements put forth by Montana Board of PT examiners for 6.5 CE hours and has been approved by the Montana Board of OT Practice; Course Approval #OTP-CEC-LIC-361. "Duchenne Muscular Dystrophy: Current understanding and treatment" The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, therapy and research, healthcare providers are improving…
Find out more »October 2020
Champions to Cure Duchenne 2020
Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and allows them to invest in next generation gene therapy research technology to find a cure for this generation of boys and young men living with Duchenne muscular dystrophy. Through the generous support of the Austin Community,…
Find out more »Dallas, TX CureDuchenne Cares Session
A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE
Find out more »2020 Dealing for Duchenne – San Antonio
Join us for the 5th Annual Dealing for Duchenne – San Antonio benefiting CureDuchenne Dealing for Duchenne – San Antonio was inspired by our oldest son Joshua who was diagnosed with Duchenne muscular dystrophy at age 5. It was hard to comprehend why our loving, caring and big-hearted son would be thrust onto this fatal path. It was a very difficult time for us as we dealt with accepting that our son would not be like other children. He wouldn’t…
Find out more »Denver, CO CureDuchenne Cares Session
A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE
Find out more »November 2020
Iowa City, IA CureDuchenne Cares Session
A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE
Find out more »Raleigh, NC CureDuchenne Cares Session
A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE
Find out more »