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January 2019

Family & Caregiver Session – Little Rock, AR

January 11, 2019 @ 6:00 pm - 8:00 pm PST
Samantha’s Tap Room & Grill, 322 Main St
Little Rock, AR 72201 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda:  6:00 PM – 6:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President,CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families CureDuchenne 7:25 PM – 7:35 PM Let’s…

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Family & Caregiver Session – Atlanta, GA

January 12, 2019 @ 12:00 pm - 2:00 pm PST
Piastra, 45 West Park Square
Marietta, GA 30060 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda:   12:00 PM – 12:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD, Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM – 1:25 PM Families Helping…

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Family & Caregiver Session – Indianapolis, IN

January 18, 2019 @ 6:00 pm - 8:00 pm PST
Meridian Restaurant & Bar, 5694 N. Meridian St.
Indianapolis, IN 46208 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families…

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February 2019

Continuing Education Course – Raleigh, NC

February 8, 2019 @ 8:30 am - 4:30 pm EST
Renaissance Raleigh North Hills Hotel, 4100 MAIN at NORTH HILLS St.
Raleigh, NC 27609 United States
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Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the   component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course Schedule 8:00-8:30 Registration and sign in 8:30-9:30 (60 min) General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30 (60 min) Typical Progression and Client Presentation…

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Raleigh CureDuchenne Cares Workshop

February 9, 2019 @ 8:00 am - 3:00 pm PST
Renaissance Raleigh North Hills Hotel, 4100 MAIN at NORTH HILLS St.
Raleigh, NC 27609 United States
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Register here.

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Love Cures

February 16, 2019 @ 6:00 pm - 10:00 pm PST
Del Sur Ranch House, 15455 Paseo Del Sur
San Diego, CA 92127 United States
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Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips away a patient’s ability to run, walk, hug and, eventually, breathe. The initial diagnosis was isolating for both families, as they didn’t know anyone else…

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March 2019

Napa in Newport

March 2, 2019 @ 5:00 pm - 10:00 pm CST
Monarch Beach Resort, One Monarch Beach Resort
Dana Point, CA 92629 United States
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Wine connoisseurs and epicureans: Indulge in Napa Valley's premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular night of wining and dining, and culminates in a spirited auction. With this extraordinary evening’s proceeds going to CureDuchenne — the nation’s leading Duchenne nonprofit…

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April 2019

Champions to CureDuchenne

April 13, 2019 @ 6:00 pm - 11:00 pm CDT
The University of Texas Golf Club, 2200 University Club Drive
Austin, TX 78732 United States
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Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and raises vital funds for gene editing research and CRISPR/Cas9 technology that will be transformative for Duchenne patients. Through the generous support of the Austin Community, Champions to CureDuchenne has funded more than $1.7M in research to…

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