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January 2019
Family & Caregiver Session – Little Rock, AR
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President,CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families CureDuchenne 7:25 PM – 7:35 PM Let’s…
Find out more »Family & Caregiver Session – Atlanta, GA
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 12:00 PM – 12:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD, Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM – 1:25 PM Families Helping…
Find out more »Family & Caregiver Session – Indianapolis, IN
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families…
Find out more »February 2019
Continuing Education Course – Raleigh, NC
Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course Schedule 8:00-8:30 Registration and sign in 8:30-9:30 (60 min) General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30 (60 min) Typical Progression and Client Presentation…
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Love Cures
Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips away a patient’s ability to run, walk, hug and, eventually, breathe. The initial diagnosis was isolating for both families, as they didn’t know anyone else…
Find out more »March 2019
Napa in Newport
Wine connoisseurs and epicureans: Indulge in Napa Valley's premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular night of wining and dining, and culminates in a spirited auction. With this extraordinary evening’s proceeds going to CureDuchenne — the nation’s leading Duchenne nonprofit…
Find out more »April 2019
Champions to CureDuchenne
Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and raises vital funds for gene editing research and CRISPR/Cas9 technology that will be transformative for Duchenne patients. Through the generous support of the Austin Community, Champions to CureDuchenne has funded more than $1.7M in research to…
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