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August 2020

Phoenix, AZ CureDuchenne Cares Workshop

August 22 @ 8:00 am - 4:30 pm
The Westin Phoenix Downtown, 333 N. Central Ave.
Phoenix, AZ 85004 United States
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Phoenix

Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…

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CureDuchenne Biobank – Phoenix, AZ

August 22 @ 8:00 am - 1:30 pm
The Westin Phoenix Downtown, 333 N. Central Ave.
Phoenix, AZ 85004 United States
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Phoenix

We are pleased to announce that the CureDuchenne Biobank is scheduled to collect samples in Phoenix, AZ. We have partnered with RUCDR Infinite Biologics and Dr. Tahseen Mozaffar from UC Irvine, to create the CureDuchenne Biobank which will collect minimally invasive blood and skin tissue samples from patients and their siblings that will be banked and made openly accessible for research.  These high quality, standardized samples will help provide researchers access to data to accelerate the work necessary to find…

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Honolulu, HI CureDuchenne Cares Session

August 22 @ 6:30 pm - 8:30 pm
Morton’s The Steakhouse, 1450 Ala Moana Blvd
Honolulu, HI Retrieving data. Wait a few seconds and try to cut or copy again. United States
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Honolulu

A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge.   For more information and registration, click…

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Columbus, OH CureDuchenne Cares Workshop

August 29 @ 8:00 am - 4:30 pm
Renaissance Columbus Downtown Hotel, 50 N 3rd St
Columbus, OH 43215 United States
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Columbus

Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…

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September 2020

Kansas City, MO CureDuchenne Cares Workshop

September 12 @ 8:00 am - 4:30 pm
Kansas City Marriott Downtown, 200 W 12th St
Kansas City, MO 64105 United States
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Kansas City

Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…

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CureDuchenne Professional Course – Kansas City, MO

September 12 @ 8:30 am - 4:30 pm
Kansas City Marriott Downtown, 200 W 12th St
Kansas City, MO 64105 United States
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Kansas City

For PTs, OTs, SLPs, Nurses and Healthcare Providers This course meets all requirements put forth by Montana Board of PT examiners for 6.5 CE hours and has been approved by the Montana Board of OT Practice; Course Approval #OTP-CEC-LIC-361. "Duchenne Muscular Dystrophy: Current understanding and treatment" The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, therapy and research, healthcare providers are improving…

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2020 Getzlaf Golf Shootout

September 12 @ 9:00 am - 4:00 pm
Monarch Beach Resort, 50 Monarch Beach Resort North
Dana Point, CA 92629 United States
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Event Getzlaf

The 10th Annual Getzlaf Golf Shootout - hosted by Ryan Getzlaf, captain of the Anaheim Ducks - is a two-day charity golf event for CureDuchenne. Ryan Getzlaf, Captain of the Anaheim Ducks, and his wife Paige, are bringing together professional athletes and celebrities to help save the lives of children with Duchenne through the Getzlaf Golf Shootout and MVP Party.   Click here to learn more.

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Chicago, IL CureDuchenne Cares Session

September 19 @ 6:30 pm - 8:30 pm
Fleming’s Prime Steakhouse & Wine Bar, 25 E Ohio St
Chicago, IL 60611 United States
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Chicago

A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE

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Minneapolis, MN CureDuchenne Cares Workshop

September 26 @ 8:00 am - 4:30 pm
JW Marriott Minneapolis Mall of America, 2141 Lindau Lane
Minneapolis, MN 55425 United States
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Minneapolis

Featured Speaker: TBD Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all aspects of life. Guidance on communicating with those around you regarding the diagnosis. Physical Therapy and medical equipment Stretching…

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CureDuchenne Professional Course – Minneapolis, MN

September 26 @ 8:30 am - 4:30 pm
JW Marriott Minneapolis Mall of America, 2141 Lindau Lane
Minneapolis, MN 55425 United States
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Minneapolis

For PTs, OTs, SLPs, Nurses and Healthcare Providers This course meets all requirements put forth by Montana Board of PT examiners for 6.5 CE hours and has been approved by the Montana Board of OT Practice; Course Approval #OTP-CEC-LIC-361. "Duchenne Muscular Dystrophy: Current understanding and treatment" The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, therapy and research, healthcare providers are improving…

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October 2020

Champions to Cure Duchenne 2020

October 3 @ 6:00 pm - 11:59 pm
The University of Texas Golf Club, 2200 University Club Dr
Austin, TX 78732
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Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and allows them to invest in next generation gene therapy research technology to find a cure for this generation of boys and young men living with Duchenne muscular dystrophy. Through the generous support of the Austin Community,…

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Dallas, TX CureDuchenne Cares Session

October 3 @ 6:30 pm - 8:30 pm
Ruth’s Chris Steak House, 17840 Dallas Pkwy
Dallas, TX 75287 United States
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Dallas

A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE

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2020 Dealing for Duchenne – San Antonio

October 17 @ 6:00 pm - 11:00 pm
Pedrotti’s North Wind Ranch, 13715 Fm 1560 N
Helotes, Texas 78023
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Join us for the 5th Annual Dealing for Duchenne – San Antonio benefiting CureDuchenne Dealing for Duchenne – San Antonio was inspired by our oldest son Joshua who was diagnosed with Duchenne muscular dystrophy at age 5. It was hard to comprehend why our loving, caring and big-hearted son would be thrust onto this fatal path. It was a very difficult time for us as we dealt with accepting that our son would not be like other children. He wouldn’t…

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Denver, CO CureDuchenne Cares Session

October 24 @ 6:30 pm - 8:30 pm
Morton’s The Steakhouse, 1745 Wazee St
Denver, CO 80202 United States
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Denver

A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE

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November 2020

Iowa City, IA CureDuchenne Cares Session

November 7 @ 6:30 pm - 8:30 pm
Joseph’s Steakhouse, 212 S Clinton St
Iowa City, IA 52240 United States
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Iowa City

A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE

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Raleigh, NC CureDuchenne Cares Session

November 7 @ 6:30 pm - 8:30 pm
Fleming’s Prime Steakhouse & Wine Bar, 4325 Glenwood Ave, Suite #5004
Raleigh, NC 27612 United States
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Raleigh

A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE

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