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Coping as a Family: Discussing Duchenne with Loved Ones
This resource presents advice and resources on how to communicate a Duchenne diagnosis to your family and children.
Video
Creative Inclusivity
An interactive presentation focused on harnessing creativity in day-to-day life with inclusive activities, games and exercises, as well as utilizing adaptive technology/equipment to surpass expectations.
Jennifer Wallace Valdes, PT
CureDuchenne Certified Physical Therapist
CureDuchenne Physical Therapy Program
Danielle Forrest, OTR, OTD
Occupational Therapist III
Children’s Health and Rehabilitation Services
Austin Edenfield, ATP
Quantum Product & Technical Education Manager
Pride Mobility
Video
CureDuchenne 2022 Priorities: Research for a Cure and Care for our Community
Paul, Debra and Hawken Miller discuss FUTURES 2022, current advancements in therapies and next generation investments as well as programs CureDuchenne offers to improve the quality of life for those impacted by Duchenne.
Video
CureDuchenne Link Presentation
An overview of CureDuchenne Link.
Joanna Kemp, BSN, RN
Senior Director of Clinical Operations | Director, CureDuchenne Link
CureDuchenne
Video
CureDuchenne Physical Therapy Resources
This resource provides guides to proper massage and aquatic therapy techniques, safe transfers, and stretching routines approved by our CureDuchenne Certified Physical Therapists.
CureDuchenne Certified Physical Therapy Program
CureDuchenne Research Support and Priorities
Hear from CureDuchenne’s Chief Scientific Advisor on our research support and priorities.
Video
Discusión sobre tecnología de próxima generación
¿Que sigue? Discusión sobre tecnología de próxima generación.
Video
Discussion on the Unique Dynamics in DMD-Affected Home
This resource presents a conversation about family dynamics, communication strategies and how to cope as a family unit navigating a Duchenne diagnosis.
Taylor Berhow, MSW, MPA
Social Worker and Neuro-behavioral Health Specialist
University of Utah Health
Video
DMD and Post-traumatic Stress
This resource presents information on how to cope with mental heath issues like anxiety and PTSD after a medical emergency.
Video
