I am Shepherd’s grandma. Shep was diagnosed w DMD August 2019. Our family responded, likely exactly the way every family responds – an emphatic “No”, followed closely by a less emphatic, breathless, “what?”.
Shep is 7 years old. He is the cutest little freckled, dimpled boy that ever there was. He is #3 in a line of 4 fabulous kids that my daughter managed to have 🙂
It has been a very trying time, specifically watching my daughter ache over her son – like one of those fun house mirrors that makes infinity appear before you – the pain and sorrow, and even still, shock, seems endlessly looming, and it’s my daughter and my grandson over and over and over and over.
My job, as I see it, is to carry the hope for my beautiful daughter and her precious family, but also for other mommas and babies who have said, and will say, “no. what?”
CureDuchenne will get my money and my time and my effort right up until the battle is won.