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Notes from the World Muscle Society
The world’s leading experts in the neuromuscular field have gathered in Berlin this week for the World Muscle Society meeting. The focus of the 19th Annual Congress of the World […]
Cure Duchenne Has Funded All Types of Duchenne Research
CureDuchenne is proud to have supported all types of Duchenne research over the past 10 years. That is why CureDuchenne has been a leader in funding exon skipping, stop codon, […]
Prosensa Update About Drisapersen & Other Programs Webinar
UPPMD is hosting a Prosensa Update About Drisapersen & Other Programs webinar on behalf of all of its member organizations worldwide. Date and Time: Thursday October 2nd 2014 at 6pm CET […]
Prosensa announces commencement of re-dosing of drisapersen in North America in patients with Duchenne muscular dystrophy
CureDuchenne is delighted to share that Prosensa has begun re-dosing patients. See below for today’s announcement. We are happy that CureDuchenne funding is helping to move Prosensa’s exon skipping programs forward. […]
Duchenne Research and Physical Therapy Update – Parent Sessions
CureDuchenne and the Duchenne Therapy Network are pleased to announce two upcoming parent education sessions featuring a Duchenne research and physical therapy update on September 27 in San Jose, […]
79 Days of Duchenne – Sarah Burgess – World Awareness for Duchenne
Inspired by her brother Jacob, who suffers from Duchenne muscular dystrophy, Sarah Burgess created 79 Days of Duchenne to create world awareness for this disease. There are 79 exons on […]
Swimming for Duchenne
CureDuchenne and the Duchenne Therapy Network are pleased to provide a video and educational information on the swimming activities for those with Duchenne muscular dystrophy. The pool is great […]
Prosensa is working towards long-term access to drisapersen
CureDuchenne is pleased to share the latest update to patient groups from Prosensa, which outlines their progress to date, as well as future plans. CureDuchenne announced earlier in the week our […]
Accelerating Access to Duchenne Drug Candidates
Yesterday Prosensa and CureDuchenne announced an extension of our collaboration and a path to provide access to four experimental drugs for Duchenne patients. Ten years ago, CureDuchenne provided funding to […]