DUCHENNE TRAVEL TIPS:
The Golden Rule is Plan Ahead
Contact the airline ahead of time to approve medical or mobility devices.
Request special travel assistance like checking a scooter or power wheelchair.
Coordinate local transportation and other logistics at your destination.
Research ride options and reserve or rent a wheelchair-accessible van in advance.
See the below letter to the community
CureDuchenne and PicnicHealth Announce Real-World Evidence-Focused Partnership to Incorporate Participant Medical Records into CureDuchenne Link
Dyne Therapeutics, who received early funding from CureDuchenne, has received FDA Orphan Drug and Rare Pediatric Designations for DYNE-251 for the Treatment of Duchenne Muscular Dystrophy.
Hawken Miller is a journalist, bringing his experience writing for outlets like The Washington Post and BioNews, along with his personal experience living with Duchenne muscular dystrophy, to CureDuchenne. Learn more about Hawken here.
See full PRESS RELEASE: https://www.globenewswire.com/news-release/2022/10/13/2534198/0/en/PepGen-Presents-Data-from-its-Duchenne-Muscular-Dystrophy-Program-at-World-Muscle-Society-Congress.html
Dyne Therapeutics, who received early funding from CureDuchenne, presented promising preclinical data from their Duchenne Exon 51 and 53 programs at the World Muscle Society Congress. This was Dyne’s first […]
Edgewise Therapeutics, which received early funding from CureDuchenne, announced positive 6-month interim results from the ongoing ARCH study, an open label study of EDG-5506 in adults with Becker muscular dystrophy. Edgewise […]
