Help Advance Research to Treat Heart Disease

CureDuchenne Ventures LLC is investing $1 million in Capricor Therapeutics to advance promising research to treat disease associated with Duchenne muscular dystrophy.

Learn more about the collaboration with Capricor

Join a CureDuchenne event

CureDuchenne has a variety of fundraising events throughout the year. These events have helped us fund seven research projects that have gone to human clinical trials. Join us for CureDuchenne's Paddle Battle LA on June 27th 2015 in Los Angeles, CA.

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Duplication Mutation Therapy for Duchenne

CureDuchenne has provided the lead funding for Dr. Flanigan's duplication research and is committed to helping bring this therapy into trials. We need your support in raising $710,000 to continue this important research.

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Donate to Dr. Kevin Flanigan's research

Clay Matthews PSA

Green Bay Packers Linebacker Clay Matthews shows his support for CureDuchenne with a new public service announcement.

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Moving research into practice

CureDuchenne’s accelerated push to move research from the lab into clinical trials could halt the progression of the disease and save the lives of thousands of Duchenne boys.

View the projects CureDuchenne has funded

Accelerating access to Duchenne drug candidates

CureDuchenne is now funding $7 million Prosensa exon skipping research to help get experimental medicines to patients with Duchenne Muscular Dystrophy more quickly.

Learn more about the collaboration with Prosensa

Together, we can CureDuchenne

Duchenne muscular dystrophy is a devastating muscle disease in children, affecting one in every 3,500 male births. Historically, Duchenne boys have not lived beyond their mid-20s. Those that do are faced with progressively weaker muscles and pulmonary and cardiac failure. The potential now exists, however, to make a difference in their quality of life.

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What is CureDuchenne?

CureDuchenne is a national nonprofit that raises awareness and funds to find a cure for Duchenne muscular dystrophy. The funds we raise support the most promising research programs aimed at treating and curing the disease. For the first time ever there is hope to find a cure for this destructive disease affecting thousands of boys and their families.

 

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Research News

 
eDystrophin

Exon skipping drugs will be used to transform Duchenne muscular dystrophy into a much milder disease as seen in Becker muscular dystrophy patients. eDystrophin is an online database that provides information about inframe mutations typically seen in patients with milder forms of the disease. The database has been constructed using patient records and is easy to use and searchable by mutation type or clinical phenotype.

2015 CureDuchenne's Paddle Battle LA

Join us for an exciting night of competing against professional athletes, musicians, and Hollywood celebrities who are teaming up in a table tennis tournament to support CureDuchenne.

Register Now!

The Latest from the Founder

Treatments on the Horizon May 21, 2015

  The Duchenne community is celebrating another promising step toward an approved treatment. On May 19 Sarepta Therapeutics announced plans to submit a rolling NDA for eteplirsen with the final NDA submission landing in the FDA’s hands by mid-year.   CureDuchenne is proud to be part of the support and funding for eteplirsen. We collaborated Read more »

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CureDuchenne advocates around the country