You can help boys with Duchenne

CureDuchenne is now funding a $7 million research project. This project will help accelerate clinical trials and access to potential life-saving drugs that could help boys like Gavin.

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Cure Duchenne muscular dystrophy

Boys with Duchenne muscular dystrophy lose the power in their muscles before the age of 10. Your can help cure Duchenne. Donate $10. Share you picture. Ask 10 friends. Share the power of 10. #CureDuchenne

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Moving research into practice

CureDuchenne’s accelerated push to move research from the lab into clinical trials could halt the progression of the disease and save the lives of thousands of Duchenne boys.

View the projects CureDuchenne has funded

Accelerating access to Duchenne drug candidates

CureDuchenne is now funding $7 million Prosensa exon skipping research to help get experimental medicines to patients with Duchenne Muscular Dystrophy more quickly.

Learn more about the collaboration with Prosensa

Together, we can CureDuchenne

Duchenne muscular dystrophy is a devastating muscle disease in children, affecting one in every 3,500 male births. Historically, Duchenne boys have not lived beyond their mid-20s. Those that do are faced with progressively weaker muscles and pulmonary and cardiac failure. The potential now exists, however, to make a difference in their quality of life.

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Duchenne families have hope

Hear what Duchenne boys, their parents, and researchers have to say about the experience of living with Duchenne muscular dystrophy.

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Duchenne is a progressive, muscle-wasting disease.

It results from a defective gene responsible for producing the key muscle protein, dystrophin. Without dystrophin, cells easily become damaged and die, resulting in heart and breathing failure.

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What is CureDuchenne?

CureDuchenne is a national nonprofit that raises awareness and funds to find a cure for Duchenne muscular dystrophy. The funds we raise support the most promising research programs aimed at treating and curing the disease. For the first time ever there is hope to find a cure for this destructive disease affecting thousands of boys and their families.

 

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Research News

 
eDystrophin

Exon skipping drugs will be used to transform Duchenne muscular dystrophy into a much milder disease as seen in Becker muscular dystrophy patients. eDystrophin is an online database that provides information about inframe mutations typically seen in patients with milder forms of the disease. The database has been constructed using patient records and is easy to use and searchable by mutation type or clinical phenotype.

2015 Champions to CureDuchenne - Newport Beach Gala

Champions to CureDuchenne is a prestigious charity event benefiting CureDuchenne - a national nonprofit whose mission is its name - to cure Duchenne, a devastating and lethal muscle disease affecting one in every 3,500 boys.

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The Latest from the Founder

  Duchenne Therapy Network and CureDuchenne released their newest video blog that highlights power wheelchair options available for Duchenne muscular dystrophy patients.  Here we provide tips on what to look for when choosing a wheelchair. Front Wheel Drive Pros: Maneuverability Performance on terrain Space for foot movement Cons: Tracking issues at high speeds Mid-Wheel Drive Read more »

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CureDuchenne advocates around the country