2010 Climb to Cure Duchenne: Pick Your Peak!
Announcing this year's Climb to Cure Duchenne: Pick Your Peak! This year, everyone is getting involved. Together, we will raise awareness and money for research to cure Duchenne muscular dystrophy (DMD). Watch the video. Then head over to our Cure Duchenne Adventures Website to sign up! It's super easy - Pick your peak. Rally a team. Raise money. And get ready to climb on June 19th & 20th! To sign up CLICK HERE Be sure to tell everyone you know who wants to find a cure to Duchenne muscular dsytrophy! Use the buttons below to post to Facebook, Twitter, and more! *
Mother & Author of a Boy with Duchenne Muscular Dystrophy
Rare are the people who have to deal with a 100% fatal disease that affects their child. Even rarer still are the people who are able to write a heart-felt book detailing the roller-coaster of emotions & experiences associated and also offer understanding & hope. Misty VanderWeele is one of those people. As the mother of a son born with Duchenne muscular dystrophy (DMD), Misty is doing what any mother would do - fighting for the life of her child. Misty is the author of "In Your Face: Duchenne Muscular Dystrophy...All Pain...All Glory". Please take just a moment of your time to and go to Misty's ...
Martin Family Featured on Local News
Chris and Amy Martin were recently featured on CBS's evening news highlighting their efforts to find a cure for Duchenne Muscular Dystrophy. [caption id="attachment_1545" align="alignleft" width="223" caption="Watch the Video"][/caption] Chris and Amy's son, Will, has Duchenne Muscular Dystrophy (DMD). In the interview, Chris states, "Action is Therapy". As involved parents, they’ve been in charge of the Annual Celebrity Poker Tournament fundraisers held each year at the Petersen Automotive Museum in Los Angeles. Stay tuned for more details about this year's Celebrity Poker Tournament on June 12th. Click here to read about the Martins as featured on CBS * *
Mothers Luncheon Discusses Duchenne Muscular Dystrophy
Yesterday, a group of 15 women from the LA/Orange County area got together for what appeared to be a festive luncheon. But there was something different about this group. They all have one common bond: their sons all have Duchenne muscular dystrophy (DMD). In Debra Miller's words: "Put 15 DMD moms together and watch out! We are mama bears and there is this threat between us and our bear cubs called Duchenne." The concerned mothers talked about a variety of topics including how to raise more awareness and of course get more money into the hands of researchers to find a cure. The ...
CureDuchenne Grants $200,000 to UCLA Duchenne Muscular Dystrophy Research & Clinic
On November 10th, 2009 Debra Miller, Founder and President of CureDuchenne, presented a check for $200,000.00 for a new Center for Duchenne Muscular Dystrophy Research at UCLA. The grant will go towards Duchenne Muscular Dystrophy (DMD) research & clinic. Many of the funds going to UCLA were raised at this year's "Dealing for Duchenne" Charity Poker Tournament. Because of its continued success, CureDuchenne will be hosting its 3rd Annual tournament this year on June 12th, 2010 at the Petersen Automotive Museum. The event is wonderfully orchestrated by Chris and Amy Martin (parents of a boy with Duchenne). More details to come on this exciting event. * *
Research Articles
PTC Therapeutics Announces Additional Study Of Ataluren In Patients With Advanced Nonsense Mutation Duchenne/Becker Muscular DystrophyPlease take some time to read an important announcement regarding PTC Therapeutics...
TREAT-NMD Presents Annemieke Aartsma-Rus’s Overview of DMD ResearchPlease take some to head over to an important article on Treat-NMD’s website...
BioMarin Initiates Phase 1 Clinical Study of BMN 195 for Duchenne Muscular DystrophyPlease take some time to read this important press release regarding a Phase 1 Clinical...
Read More Posts From This CategoryEvents
2010 Climb to Cure Duchenne: A Message from Cure Duchenne Founder, Debra Miller
This week CureDuchenne was very happy to announce our first “CureDuchenne Adventure,”...
2010 Climb to Cure Duchenne: Pick Your Peak!
Announcing this year’s Climb to Cure Duchenne: Pick Your Peak! This year, everyone...
CureDuchenne Grants $200,000 to UCLA Duchenne Muscular Dystrophy Research & Clinic
On November 10th, 2009 Debra Miller, Founder and President of CureDuchenne, presented...
Read More Posts From This CategoryIn The News
Harrison Ford Film Based in part on University of Florida Researcher
Dr. Barry Byrne, Professor and Associate Chair of Pediatrics at the University of Florida, helped to inspire the story for the new movie “Extraordinary Measures” starring Harrison Ford and Brendan Fraser. Dr. Byrne is one of Cure Duchenne’s Scientific Advisors. He also was one of the twelve climbers to climb Mt. Rainier last year in... [Read more of this review]
Mother & Author of a Boy with Duchenne Muscular DystrophyRare are the people who have to deal with a 100% fatal disease that affects their child. Even rarer still are the people who are able to write a heart-felt book detailing the roller-coaster of emotions & experiences associated and also offer understanding & hope. Misty VanderWeele is one of those people. As the mother of a son born with Duchenne... [Read more of this review]
A Note from Cure Duchenne Founder, Debra MillerToday BioMarin announced they will initiate a human trial for a drug that will hopefully up-regulate Utrophin. This is very exciting news since we have hope that Utrophin could be an adequate substitute for dystrophin, the protein that is lacking in patients with Duchenne muscular dystrophy (DMD). This is the very first Utrophin drug to make it... [Read more of this review]
BioMarin Initiates Phase 1 Clinical Study of BMN 195 for Duchenne Muscular DystrophyPlease take some time to read this important press release regarding a Phase 1 Clinical Study of Duchenne muscular dystrophy. BioMarin Initiates Phase 1 Clinical Study of BMN 195 for Duchenne Muscular Dystrophy * * Read More →
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Catchpenny Music Video for CureDuchenne
Climb to CureDuchenne
