Join a CureDuchenne event

CureDuchenne has a variety of fundraising events throughout the year. These events have helped us fund seven research projects that have gone to human clinical trials. Join us for the Getzlaf Golf Shootout on August 26 & 27 in Newport Beach, CA.

Featured event
Upcoming events

Seven Summits.

One Mission.

Help Tyler Armstrong Climb to CureDuchenne.

Tyler is not just trying to set a world record; his goal is to raise awareness and funds to cure Duchenne muscular dystrophy, the most common and lethal muscle disease found in children. Duchenne afflicts approximately 300,000 boys worldwide.

Visit the site

Donate

CureDuchenne Cares

Get the information you need to provide better care for those with Duchenne. The CureDuchenne Cares mission is to increase the health and wellbeing of patients living with Duchenne through educating parents, caregivers, clinicians, and physical therapists on best practices for Duchenne management. This program also keeps families informed on the latest scientific develipments in Duchenne research, including status and participation in clinical trials.

Learn more about CureDuchenne Cares

Together, we can CureDuchenne

Duchenne muscular dystrophy is a devastating muscle disease in children, affecting one in every 3,500 male births. Historically, Duchenne boys have not lived beyond their mid-20s. Those that do are faced with progressively weaker muscles and pulmonary and cardiac failure. The potential now exists, however, to make a difference in their quality of life.

Read more

Duplication Mutation Therapy for Duchenne

CureDuchenne has provided the lead funding for Dr. Flanigan's duplication research and is committed to helping bring this therapy into trials. We need your support in raising $710,000 to continue this important research.

Visit the site

Donate to Dr. Kevin Flanigan's research

Help Advance Research to Treat Heart Disease

CureDuchenne Ventures LLC is investing $1 million in Capricor Therapeutics to advance promising research to treat disease associated with Duchenne muscular dystrophy.

Learn more about the collaboration with Capricor

Moving research into practice

CureDuchenne’s accelerated push to move research from the lab into clinical trials could halt the progression of the disease and save the lives of thousands of Duchenne boys.

View the projects CureDuchenne has funded

 
 
 
 

What is CureDuchenne?

CureDuchenne is a national nonprofit that raises awareness and funds to find a cure for Duchenne muscular dystrophy. The funds we raise support the most promising research programs aimed at treating and curing the disease. For the first time ever there is hope to find a cure for this destructive disease affecting thousands of boys and their families.

 

Connect

 

Receive Updates

Sign up for our newsletter

 

Shop for a Cure

All proceeds go to fund CureDuchenne

Browse
 

Search

Research News

 
eDystrophin

Exon skipping drugs will be used to transform Duchenne muscular dystrophy into a much milder disease as seen in Becker muscular dystrophy patients. eDystrophin is an online database that provides information about inframe mutations typically seen in patients with milder forms of the disease. The database has been constructed using patient records and is easy to use and searchable by mutation type or clinical phenotype.

2016 Dealing for Duchenne - Cambridge

An Evening Offering Delicious food provided by local chefs, wine & beer bar with signature cocktails throughout the evening, photo-ops with Vegas characters of yesteryear, classic Vegas gaming tables including: poker, blackjack & roulette, auctions & prizes throughout.

Register Now!

The Latest from the Founder

Thoughts about PTC July 25, 2016

The announcement that PTC recently submitted an appeal to elevate the “Refusal to File” of Translarna (also known as ataluren and PTC124) to the next level of FDA management is an opportunity for the Duchenne community to raise their voices and let their experiences and opinions be heard! Translarna is the only therapy under investigation Read more »

Continue reading
 

CureDuchenne advocates around the country