Ryan & Jack Fight Back 5K Run
Ryan & Jack Fight Back 5K Run and Children's Fun Run Sunday, October 03, 2010 8:30am start Masons Mill Park 3500 Masons Mill Road Huntingdon Valley, PA The race will be on Sunday, October 3rd at Masons Mill Park and proceeds will go to Cure Duchenne. The address is 3500 Masons Mill Road in Huntingdon Valley, PA 19006. The race will begin promptly at 8:30am. Same day registration will be available from 7:30am to 8:15am. Download the Event Flyer here Download the Registration Form here In addition to the 5k race, there will be games for children, face painting, and a fun walk. Come join the fun and remember that's it's for a great cause! Please ...
Second Annual Golf Ball Drop and Fall Festival
Second Annual Golf Ball Drop and Fall Festival to Benefit Cure Duchenne Saturday, October 16, 2010 – Rain or Shine 10:00 am to 5:00 pm Quakertown Airport & Robert Fowler Aviation, Inc. 2425 Milford Square Pike Quakertown, Pa 18951 (parking will be across from the airport) Cure Duchenne is having a Golf Ball Drop (Drop for Duchenne) and Fall Festival to support Duchenne Muscular Dystrophy (DMD) research and education. We are families active in Pennsylvania because we have a son, relative or friend that has been diagnosed with Duchenne Muscular Dystrophy and have chosen to take a stand in the fight against DMD. Numbered golf balls are ...
2010 Climb to Cure Duchenne Raises over $250,000 for DMD Research
Take a good, long look at the above photo. What do you see? You might see a man on a mountain top. You might see the snow. You might see the clouds in the background. However, if you look a bit deeper, you'll realize there is a story behind this picture. Paul Miller, the man seen standing triumphant with ice ax in hand, is the father of a boy with Duchenne muscular dystrophy. This picture was taken at the summit of Mt. Shasta in Northern California at 14,162 feet in below freezing temperatures. This picture is merely a symbol of the ...
Dealing for Duchenne Celebrity Poker Tournament Raises Over $200,000
This year's "Dealing for Duchenne" Celebrity Poker Tournament was a smashing success! We had record numbers with over 450 people in attendance. The night's event helped to raise more than $200,000 that will go towards UCLA DMD Research & Clinic. This is very big news for everyone affected by DMD here on the West coast and Southwest region. Special thanks go to Amy & Chris Martin who chaired the event. Amy & Chris are experts at putting together an amazing team and making a perfect evening happen. Thank you to everyone involved! If you would like to donate to the UCLA DMD Clinic, ...
Research Articles
Acceleron Pharma Receives FDA Fast Track Designation for ACE-031 for the Treatment of Duchenne Muscular DystrophyCAMBRIDGE, Mass.– August 19, 2010 – Acceleron Pharma, Inc., a biopharmaceutical...
The PTC124 (Ataluren) Clinical Trial for Duchenne Muscular Dystrophy: Exploration of the Experiences of Parents, Clinician Researchers, and the Industry Sponsor“The traditional process for the development of new potential therapeutics...
FAQs RE: ACE-031 on the Acceleron websiteThe following is a link to FAQ’s on Acceleron Pharma’s website regarding...
Details Regarding Study DMD114117 for Duchenne Muscular DystrophyDetails regarding several of the investigator sites for the following study have...
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The Global Genes Project Aims to Battle Rare Disease Through the ‘Vote4Hope’ Campaign and Pepsi Refresh CompetitionDANA POINT, Calif., Sept 01, 2010 /PRNewswire via COMTEX/ — Over 15 Million...
Interview: Amy & Chris Martin & Their Involvement with Duchenne Muscular DystrophyThe following is an interview with Amy & Chris Martin who have a son with Duchenne...
Ryan & Jack Fight Back 5K Run
Ryan & Jack Fight Back 5K Run and Children’s Fun Run Sunday, October 03,...
Second Annual Golf Ball Drop and Fall Festival
Second Annual Golf Ball Drop and Fall Festival to Benefit Cure Duchenne Saturday,...
Read More Posts From This CategoryIn The News
Climb to Cure Duchenne Receives Massive Media ExposureIn all aspects, our 2010 Climb to Cure Duchenne was a success! We raised over $250,000 and the donations are still coming in. We also raised an incredible amount of awareness with so many teams climbing across the country. Take a look for yourself at just some of the many links below. Also, be sure to stay posted for information regarding the upcoming... [Read more of this review]
Cure Duchenne Founders HighlightedPlease take some time to check out a post featuring Paul and Debra Miller in their quest to find a cure for Duchenne muscular dystrophy. Duchenne Duo Share Read More →
Cure Duchenne Funds Pre-Clinical Research for Gene TherapyThe following is a press release sent out today: Non-Profit Pledges $600,000 to fund Seattle Doctor’s Research aimed at finding a Cure for Duchenne Muscular Dystrophy SEATTLE, Wash. – June 22, 2010 – CureDuchenne, the Orange County non-profit focused on finding a cure for Duchenne muscular dystrophy (DMD) is one step closer to that goal through... [Read more of this review]
Climb to Cure Duchenne Muscular Dystrophy Sandia PeakThe 2010 Climb to Cure Duchenne: Pick Your Peak is happening this Saturday! We have teams from all around the country getting ready. It’s really getting exciting! Jessica Rothe is the mother of Nathan Rothe who has Duchenne muscular dystrophy. Jessica was inspired to assemble a team for this year’s climb as a way to increase awareness and... [Read more of this review]
Cure Duchenne’s Rita Chenier Featured with Family
When Rita Chenier signed on as Cure Duchenne’s office manager, little did she know she’d be swept up in a cause that would result in her entire family participating in a national fundraiser for Duchenne muscular dystrophy. Rita, together with her family, is climbing Mt. San Jacinto in Southern California as part of this year’s “Climb... [Read more of this review]
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