Join a CureDuchenne event

CureDuchenne has a variety of fundraising events throughout the year. These events have helped us fund seven research projects that have gone to human clinical trials. Join us for the 4th Annual Getzlaf Golf Shootout on September 6th and 7th.

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Small Luxury Hotels of the World

CureDuchenne is proud to announce Small Luxury Hotels of the World as their national hotel sponsor.

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"Run Away" by Sarah Burgess

Sarah Burgess, singer-songwriter and contestant on the sixth season of American Idol, released a new song called “Run Away” to benefit CureDuchenne.

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Together, we can CureDuchenne

Duchenne muscular dystrophy is a devastating muscle disease in children, affecting one in every 3,500 male births. Historically, Duchenne boys have not lived beyond their mid-20s. Those that do are faced with progressively weaker muscles and pulmonary and cardiac failure. The potential now exists, however, to make a difference in their quality of life.

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Duchenne families have hope

Hear what Duchenne boys, their parents, and researchers have to say about the experience of living with Duchenne muscular dystrophy.

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eDystrophin Database

The eDystrophin database contains information from Duchenne and Becker muscular dystrophy patients searchable by mutation (deletions, duplications and substitutions).

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Duchenne is a progressive, muscle-wasting disease.

It results from a defective gene responsible for producing the key muscle protein, dystrophin. Without dystrophin, cells easily become damaged and die, resulting in heart and breathing failure.

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What is CureDuchenne?

CureDuchenne is a national nonprofit that raises awareness and funds to find a cure for Duchenne muscular dystrophy. The funds we raise support the most promising research programs aimed at treating and curing the disease. For the first time ever there is hope to find a cure for this destructive disease affecting thousands of boys and their families.

 

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Research News

 
eDystrophin

Exon skipping drugs will be used to transform Duchenne muscular dystrophy into a much milder disease as seen in Becker muscular dystrophy patients. eDystrophin is an online database that provides information about inframe mutations typically seen in patients with milder forms of the disease. The database has been constructed using patient records and is easy to use and searchable by mutation type or clinical phenotype.

4th Annual Getzlaf Golf Shootout

Join Ryan Getzlaf, captain of the Anaheim Ducks, for the Getzlaf Golf Shootout – a two-day charity event, including a reception and a golf tournament – that brings together athletes, celebrities and community leaders, all teaming up in support of CureDuchenne.

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The Latest from the Founder

The Run Away Project July 25, 2014

We are on Day 17 of the 79 Days of Duchenne. We are amazed by all the talented and caring people who have participated in the 79 Days of Duchenne. Thank you for Sarah Burgess for creating this movement and inspiring others to help spread awareness about Duchenne. For more information and inspiring stories, please check out the Read more »

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CureDuchenne advocates around the country