The CureDuchenne Cares Regional Family Summits are free, unique educational events for families who have loved ones with Duchenne muscular dystrophy.

The Entire Family is Welcome at all our Events!

Since Duchenne is a rare, complicated disease, we encourage all members of the family to attend to better understand what their loved one is going through. Families are not only able to use their time at the Summit to learn more about managing various aspects of the Duchenne, but are also able to connect with other families in their area.

Currently with no cure, education on various care and management practices are very important to extend quality of life for developing children with this disease. Each Regional Family Summit is different, and we try to cover topics requested by each unique community.

See when the next family and caregiver workshops are scheduled.

We are excited to have Regional Family Summits scheduled for 2017!

Locations include:

  • Palo Alto, CA on June 3rd
  • Austin, TX on June 24th

 

Venues are still being secured. Please check back frequently to see more updates, or call (949) 872-2552 or email Kylee@CureDuchenne.org to reserve your spot at one of these locations today.

Please note: Prior registration is required. Once capacity is reached, no more registrations will be accepted. And no onsite registration will be available.

Presentations May Include:

  • Activity modifications
  • Adaptive driving
  • Aquatic therapy
  • Behavior issues
  • Cardiology
  • Caring for yourself as a caregiver
  • Mobility equipment
  • Neurology
  • Nutrition
  • Occupational therapy
  • Orthopedics
  • Physical therapy
  • Pulmonology
  • Social issues
  • Transitioning to adulthood

Kids Corner:

Each of our Regional Family Summits aims to have a fun, interactive kids’ corner. Activities may include:

  • Wacky science
  • Legos
  • Arts and crafts
  • Movie time
  • Video games
  • Board games

It is easier to focus, learn and soak in all of that our Regional Family Summits have to offer when you know your kids are having fun and are well supervised.

Are you looking for a physical therapist who is specially trained to care for your loved one with Duchenne?

Find CureDuchenne Cares Certified PTs across the nation

Patient Registry

Enroll here to make sure you’re alerted and aware of the latest pharmaceutical treatments for Duchenne muscular dystrophy that become available as research progresses every day.

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