IMPORTANT ANNOUNCEMENT ON UPCOMING CURE DUCHENNE CARES EVENTS

3/13/2020: UPDATED ANNOUNCEMENT AVAILABLE HERE »

We never want to put anyone from the Duchenne community at risk, and with the statements from the CDC regarding travel risks, especially for persons with compromised immune systems, we want to let everyone know that we will be changing the format and dates of some of our upcoming in-person events. The health and safety of the entire Duchenne community is always our number one priority, and we are erring on the side of caution for these upcoming workshops and sessions to avoid any potential health risks:

Current Postponed Workshop and Sessions:

  • Knoxville, TN Session, 3/7/2020
    • Will be held via online video meeting
  • Phoenix, AZ Workshop, 3/14/2020
    • Rescheduled for later in 2020
  • Billings, MT Session, 3/21/2020
    • Will be held via online video meeting
  • Billings, MT Professional Course, 3/21/2020
    • Will be rescheduled for later in 2020, TBD
  • Boston, MA Session, 3/28/2020
    • TBD
  • Sacramento, CA Workshop, 4/4/2020
    • Rescheduled for later in 2020

Rescheduled Events Online Coming Soon

To be sure we are still able to provide the important information covered in the in-person workshops and sessions, we will be rescheduling certain events as online, interactive events.

Stay tuned for more information on these.

Questions?

Please contact your healthcare provider regarding any specific questions or access information about travel advisories from the CDC’s website directly.  The CDC has also issued statements on large community events which adds to the information and concerns we have with these kinds of events that we offer to the community.

Please note that this is not a directive by the CDC, WHO or any federal institution; we have made this decision solely based on the needs of individuals affected by Duchenne and our concerns for the well-being of the Duchenne community.  We don’t want anyone to be unnecessarily panicked or alarmed, it is simply a proactive, precautionary decision made by CureDuchenne.  As mothers, friends, community members, families and more, the safety of the Duchenne community is simply not worth any risk of illness.

For questions regarding any of the upcoming event cancellations, please email cares@cureduchenne.org

Sincerely,

The CureDuchenne Cares Team

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