This resources provides a introduction to the common multidisciplinary care team for Duchenne and their individual functions, as well as tips on coordinating this team-based approach.
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia
This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.
This resource presents information on genetic carrier health, carrier testing options and resources, family planning education, and carrier burden information.
Certified Genetic Counselor
Children's Hospital of San Antonio, Baylor College of Medicine
This resource presents the innerworkings of the DMD gene, Duchenne’s impact on the body, and provides and in-depth view of the pipeline of current treatments for Duchenne.
This resource offers information for Emergency Medical Services professionals about the specialized aspects of emergency care for those with Duchenne.
This resource provides multiple handouts to help inform your child’s educator of the specialized needs in a school setting.
Este recurso proporciona varios folletos para ayudar a informar al educador de su hijo sobre las necesidades especializadas en un entorno escolar.
Edgewise Therapeutics Industry Presentation
Edgewise Therapeutics is a clinical-stage biopharmaceutical company focused on creating novel precision medicines for the treatment of rare muscle disorders. Our intimate knowledge of integrated muscle physiology at a whole-body level allows us to develop innovative solutions for patients with muscle disease where significant unmet medical need exists. By protecting and improving muscle health, our goal is to dramatically enhance the lives of people living with progressive muscle disorders.
This resource presents information on emergency care guidelines for individuals with Duchenne, and tips on how to communicate with emergency care providers in the event of an urgent hospital visit.
Pediatric Critical Care Fellow
Riley Hospital for Children at IU Health
