Press Releases

Daylong Event Focuses on Care and Management for Duchenne Families NEWPORT BEACH, CA. October 4, 2016 – The inaugural CureDuchenne Cares Family Summit, a complimentary educational seminar for families who have loved ones with Duchenne muscular dystrophy, will take place on Saturday, October 22 at the Hyatt Regency in Garden Grove, California. The free of […]
San Antonio, Texas, September 27, 2016 – CureDuchenne, a national non-profit, and local families have joined to raise funds for research and new treatments for children afflicted with Duchenne muscular dystrophy, the most devastating and fatal muscular disease in children. Help give these children a fighting chance by taking part in Dealing for Duchenne, a […]
Eteplirsen, Developed by Sarepta, Was Made Possible in Part by Early Funding from CureDuchenne NEWPORT BEACH, California, September 19, 2016 – CureDuchenne applauds the first-ever approval of a drug in the U.S. to treat Duchenne muscular dystrophy. The drug, Exondys 51 (eteplirsen), manufactured by Sarepta Therapeutics, Inc., received accelerated approval today from the Food and […]
STRIVE Awards Program Recognizes Excellence and Innovation in the Duchenne Muscular Dystrophy Community NEWPORT BEACH, CA. September 7, 2016 – CureDuchenne is pleased to announce that on this World Duchenne Awareness Day, the organization has received one of the sought-after STRIVE Awards (Strategies to Realize Innovation, Vision and Empowerment), created by PTC Therapeutics, Inc. to […]
Athletes, Celebrities and Community Leaders Tee Up to Support CureDuchenne NEWPORT BEACH, CA. August 31, 2016 – For the sixth year, the captain of the Anaheim Ducks Ryan Getzlaf and a team of professional athletes supported the 6th annual Getzlaf Golf Shootout, presented by ActivePDF, on August 26 and 27 to help CureDuchenne find a […]
NEWPORT BEACH, Calif., Aug. 1, 2016 – Today, Pfizer Inc. announced its acquisition of Bamboo Therapeutics in a deal worth up to $645 million. Bamboo Therapeutics is an early-stage biotechnology company developing therapies for rare neuromuscular and central nervous system diseases. Seven months ago, CureDuchenne Ventures, LLC invested in Bamboo Therapeutics, giving the Raleigh, NC-based […]
Celeste Graham, PT, and Doug Levine, PT, join Jennifer Wallace, PT and Director of the CureDuchenne Cares program, who initially developed the workshops and training sessions. Together these physical therapists will combine their years of experience with the common goal of creating a healthier future for Duchenne patients all over the country. “Duchenne is such […]
NEWPORT BEACH, Calif., January 10, 2016 – CureDuchenne Ventures LLC, a venture philanthropy organization that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have invested in Bamboo Therapeutics, Inc., an early-stage biotechnology company dedicated to developing gene therapies for orphan diseases. The development of Bamboo’s Duchenne gene therapy was […]
NEWPORT BEACH, Calif., January 5, 2016 – CureDuchenne Ventures LLC, a venture philanthropy company that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have invested in RASRx, a start-up company dedicated to developing therapies for rare diseases. RASRx is developing an oral therapy that has shown positive effects on […]
The CureDuchenne Cares Certification Program will train physical therapists on the most current standards of care for Duchenne through a continuing education program including ongoing training and testing. The program will begin in 2016. Trained physical therapists will have the expertise and network to refer patients to primary and allied healthcare professionals. Jennifer Wallace, PT, […]
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