Ì¢‰â‰ÛÏ CureDuchenne, a national nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, announced today that its founder and CEO Debra Miller will present at the Life Science Nation Redefining Early Stage Investments conference on January 13 in San Francisco.
CureDuchenne, a national nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, announced today that they are sponsoring a $710,000 research project with Kevin Flanigan, M.D., principal investigator at the Center for Gene Therapy at Nationwide ChildrenÌ¢‰â‰ã¢s Hospital in Columbus, Ohio, that focuses on the development of a novel therapy for deletion mutations for Duchenne muscular dystrophy.
CureDuchenne announced today that Clay Matthews of the Green Bay Packers is featured in a new Public Service Announcement to help raise awareness about Duchenne muscular dystrophy. The PSA is part of CureDuchenneÌ¢‰â‰ã¢s ongoing efforts to raise awareness and fund research to find a cure for Duchenne, a progressive muscle-wasting disease that impacts 1 in every 3,500 boys. Boys are usually diagnosed by the age of 5, in a wheelchair by 12 and most donÌ¢‰â‰ã¢t survive their mid-20s. Currently, there is no cure for Duchenne.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will continue to watch the performance of BioMarin Pharmaceutical Inc. (NASDAQ:BMRN) during its acquisition of Prosensa, a biotechnology company CureDuchenne has supported at critical times.
CureDuchenne has joined #GivingTuesday, a first of its kind effort that will harness the collective power of a unique blend of partners to transform how people participate in the giving season. Following the Thanksgiving holiday and the kickoff of the holiday shopping season, #GivingTuesday inspires people to give back to charities like CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy.
CureDuchenne is encouraged about BioMarin PharmaceuticalÌ¢‰â‰ã¢s acquisition of Prosensa and their commitment to continue the development of drugs for Duchenne muscular dystrophy. BioMarin has a deep understanding of the orphan rare disease space, experience working with regulatory authorities worldwide and a successful record of getting drugs approved.
CureDuchenne and Prosensa Holding N.V. (NASDAQ: RNA) have been selected to present at the 6th annual Partnering for Cures, November 16-18 in New York City.
The 4th Annual Getzlaf Golf Shootout raised more than $345,000 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy.
CureDuchenne launched the Ì¢‰âÒDollar 4 DuchenneÌ¢‰âÂÌ_ campaign today during World Duchenne Awareness Day to fund research to find a cure for Duchenne muscular dystrophy. The Ì¢‰âÒDollar 4 DuchenneÌ¢‰âÂÌ_ campaign encourages people to donate one dollar to help fund Duchenne research. Ì¢‰âÒDollar 4 DuchenneÌ¢‰âÂÌ_ is part of a comprehensive CureDuchenne fundraising campaign to raise $7 million to fund a Duchenne research project.
Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the fourth annual Getzlaf Golf Shootout to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. This two-day charity golf event includes a reception at Sutra Lounge in Costa Mesa on September 6 and a golf tournament held at the Monarch Beach Golf Links in Dana Point on September 7. Each foursome will be teamed up with a professional athlete or celebrity for an exciting day on the green
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