NEWPORT BEACH, Calif., January 5, 2016 – CureDuchenne Ventures LLC, a venture philanthropy company that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have invested in RASRx, a start-up company dedicated to developing therapies for rare diseases. RASRx is developing an oral therapy that has shown positive effects on […]
The CureDuchenne Cares Certification Program will train physical therapists on the most current standards of care for Duchenne through a continuing education program including ongoing training and testing. The program will begin in 2016. Trained physical therapists will have the expertise and network to refer patients to primary and allied healthcare professionals. Jennifer Wallace, PT, […]
NEWPORT BEACH, Calif., September 1, 2015 – CureDuchenne Ventures LLC, a company that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have invested $1 million in MyoTherix Inc., a biotechnology company focused on developing novel therapeutics for the treatment of Duchenne and other muscular dystrophies. The funds will support […]
Duchenne muscular dystrophy, an inherited genetic disease with no cure and no treatment, causes progressive muscle degeneration, leaving patients use a wheelchair by their mid-teens. The average life expectancy of someone with Duchenne is their mid-20s. Through the new website, Duchenne families can find valuable information about how to keep those with Duchenne healthy, including […]
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, joined forces with Jennifer Wallace, physical therapist and founder of the Duchenne Therapy Network, to develop the program to help educate physical therapists, parents and caregivers on the best standard of care for Duchenne patients. The goal of […]
Dr. Wong is the Director of the Comprehensive Neuromuscular Center at Cincinnati Children’s Hospital Medical Center and Professor of Pediatrics and Neurology at the University of Cincinnati. Dr. Wong and the various specialists at the Comprehensive Neuromuscular Center have been delivering state of the art coordinated interdisciplinary care for many patients with Duchenne Muscular Dystrophy […]
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, announced today that they will host a Napa in Newport Wine Auction on February 28 at the Balboa Bay Resort. More than 20 Napa Valley vintners will showcase their finest wines.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, today launched CureDuchenne Cares, a physical therapy, education and outreach program for the Duchenne community.
CureDuchenne announced today that the organization is funding Dr. Susan J. Ward, a consultant to BioPharma, in partnership with Dr. James Signorovitch, Vice President at Analysis Group Inc., on a collaborative project to further the understanding of the natural history of Duchenne muscular dystrophy.
CureDuchenne Ventures LLC, a company that funds research to find a cure for Duchenne muscular dystrophy that was formed by the nonprofit CureDuchenne, announced today that they are investing $1 million in Capricor Therapeutics, a biotechnology company focused on developing novel therapeutics for the treatment of cardiovascular diseases, to advance promising research to treat heart disease associated with Duchenne muscular dystrophy.
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