Press Releases

CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host a Bowling to CureDuchenne fundraising event on February 10 at Lewisville Lanes in Lewisville, Texas. Sports celebrities from the Dallas Cowboys, Texas Rangers and an Olympic Champion including Rocket Ismail, Tony Banks, Larry Brown, Billy Joe DuPree, Jose Guzman, Pete Hunter, Robert Newhouse, Nate Newton, Carly Patterson, Drew Pearson, Preston Pearson, Jeff Russell, Don Stanhouse and Everson Walls will bowl with community members to benefit CureDuchenne.
CureDuchenne will auction off two tickets to the "Big Game" on February 3. Clay Matthews, linebacker of the Green Bay Packers, has donated his tickets to benefit CureDuchenne.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host its annual Champions to CureDuchenne Newport Beach Gala on Saturday, February 9 at the Balboa Bay Club & Resort. CureDuchenne will honor Scott and Lisa Niedermayer for their strong commitment to CureDuchenne over the years. Orange CountyÌ¢‰â‰ã¢s most prominent business and community leaders will be treated to a special dinner menu designed by Stan Frazier, former drummer for rock band Sugar Ray, co-owner of A Restaurant in Newport Beach and the most recent winner of Ì¢‰âÒChef Race.Ì¢‰âÂÌ_
Newport Beach, Calif., October 3, 2012: CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, is pleased by today’s announcement by Sarepta Therapeutics (formerly AVI  BioPharma) that its exon-skipping compound, eteplirsen, achieved significant clinical benefit after 48 weeks of treatment in a Phase IIb study in Duchenne […]
Newport Beach, Calif., SEPTEMBER 27, 2012:  CureDuchenne Founder, Debra Miller, will speak at the Global Genes | R.A.R.E. Project “Tribute to Champions of Hope” benefit and RARE Patient Advocacy Summit on September 27-28, 2012, in Newport Beach, Calif. CureDuchenne is a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular […]
Newport Beach, Calif., SEPTEMBER 5, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Anaheim Ducks and Los Angeles Kings hockey players, celebrities and community leaders […]
Newport Beach, Calif., August 15, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Gold medalist and NHL All-Star Getzlaf, along with Corey Perry, Anaheim Ducks; […]
Sarepta Therapetutics Announces Significant Benefits in a Study for the Treatment of Duchenne
More than 60 baseball teams from around the region will play in the 3rd annual Ì¢‰âÒStrike Out Duchenne Wooden Bat TournamentÌ¢‰âÂÌ_ on July 12 through July 15 at the Brick City Sports Club fields to raise awareness and funds to find a cure for Duchenne muscular dystrophy.
Second Youngest Person Ever to Reach the Top of Mt. Kilimanjaro Climbed for a Cause
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