CureDuchenne will auction off two tickets to the "Big Game" on February 3. Clay Matthews, linebacker of the Green Bay Packers, has donated his tickets to benefit CureDuchenne.
CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, will host its annual Champions to CureDuchenne Newport Beach Gala on Saturday, February 9 at the Balboa Bay Club & Resort. CureDuchenne will honor Scott and Lisa Niedermayer for their strong commitment to CureDuchenne over the years. Orange CountyÌ¢‰â‰ã¢s most prominent business and community leaders will be treated to a special dinner menu designed by Stan Frazier, former drummer for rock band Sugar Ray, co-owner of A Restaurant in Newport Beach and the most recent winner of Ì¢‰âÒChef Race.Ì¢‰âÂÌ_
Newport Beach, Calif., October 3, 2012: CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy, is pleased by today’s announcement by Sarepta Therapeutics (formerly AVI  BioPharma) that its exon-skipping compound, eteplirsen, achieved significant clinical benefit after 48 weeks of treatment in a Phase IIb study in Duchenne […]
Newport Beach, Calif., SEPTEMBER 27, 2012:  CureDuchenne Founder, Debra Miller, will speak at the Global Genes | R.A.R.E. Project “Tribute to Champions of Hope” benefit and RARE Patient Advocacy Summit on September 27-28, 2012, in Newport Beach, Calif. CureDuchenne is a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular […]
Newport Beach, Calif., SEPTEMBER 5, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Anaheim Ducks and Los Angeles Kings hockey players, celebrities and community leaders […]
Newport Beach, Calif., August 15, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Gold medalist and NHL All-Star Getzlaf, along with Corey Perry, Anaheim Ducks; […]
Sarepta Therapetutics Announces Significant Benefits in a Study for the Treatment of Duchenne
More than 60 baseball teams from around the region will play in the 3rd annual Ì¢‰âÒStrike Out Duchenne Wooden Bat TournamentÌ¢‰âÂÌ_ on July 12 through July 15 at the Brick City Sports Club fields to raise awareness and funds to find a cure for Duchenne muscular dystrophy.
Second Youngest Person Ever to Reach the Top of Mt. Kilimanjaro Climbed for a Cause
Community members will climb Mt. Rubidoux in Riverside on June 23 at 8 a.m. as part of the annual “Climb to CureDuchenne: Pick Your Peak” event happening nationwide. People across the country are climbing a mountain, hill or tall building to increase awareness and raise funds to find a cure for Duchenne muscular dystrophy. CureDuchenne, […]
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