Press Releases

  The Shape Therapeutics RNAfixTM editing platform uses fully human components and avoids risks associated with in vivo CRISPR-based technologies. The SAB, comprised of industry pioneers in the field of genetics and synthetic biology, includes George Church Ph.D. (Harvard-MIT Health Sciences & Technology), James Collins Ph.D. (Harvard-MIT Health Sciences & Technology), and Don Cleveland Ph.D. […]
NEWPORT BEACH, CALIF. – (October 12, 2019) – CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy (Duchenne), announced today it has initiated the development of a biobank for Duchenne.   The CureDuchenne Biobank is dedicated to empowering Duchenne research and the […]
Investment will help advance development of gene therapy technology offering resistance to pre-existing antibodies, enhanced gene delivery and the potential for repeat dosing. NEWPORT BEACH, CALIF. — (September 27, 2019) – CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy (DMD), […]
Newport Beach, CA – (September 19, 2019) – CureDuchenne, the leading global nonprofit focused on funding and finding a cure for Duchenne muscular dystrophy, announced today that Lianna Orlando, PhD has joined the team as Senior Director of Research.  In this role, Orlando will help identify and evaluate strategic investments aimed at developing treatments for […]
CureDuchenne Ventures is pleased to support Edgewise Therapeutics with innovative research for Duchenne. The Duchenne community needs multiple shots on goal and CureDuchenne continues to lead the way to impactful treatments. Read the full press release here.
NEWPORT BEACH, Calif. (August 26, 2019) – Receiving a positive diagnosis for Duchenne muscular dystrophy is devastating for new parents.  Likewise, learning about the rare disease and how to care for a child with Duchenne can be extremely overwhelming.  CureDuchenne hopes to make the beginning stages of a every family’s Duchene journey easier and faster […]
Organizations to provide financial support for 50 Duchenne families to travel to Southern California for the CureDuchenne 2019 FUTURES national conference NEWPORT BEACH, Calif. (July 1, 2019) — CureDuchenne, the nonprofit global leader in Duchenne research, patient care and innovation, and the Duchenne Family Assistance Program (DFAP), which is comprised of Duchenne nonprofit advocacy organizations […]
Deal will accelerate drug development for Duchenne muscular dystrophy, a rare disease that affects 300,000 boys and young men worldwide June 06, 2019 07:11 PM Eastern Daylight Time NEWPORT BEACH, Calif.–(BUSINESS WIRE)–CureDuchenne, a nonprofit global leader in research, patient care, and innovation in improving and extending the lives of those living with Duchenne muscular dystrophy […]
NEWPORT BEACH, CA (April 24, 2019) —  Austin’s finest recently came together for Champions to CureDuchenne, an annual charity event that benefits CureDuchenne, a national nonprofit that funds research to find a cure for Duchenne muscular dystrophy, the most devastating and lethal muscular disease in children. One in every 5,000 boys will be diagnosed with […]
Funds raised will be donated to the national nonprofit, CureDuchenne NEWPORT BEACH, Calif., Feb. 28, 2019 – The inaugural “Love Cures” event recently held in San Diego at the Del Sur Ranch House raised $45,000 to help find a cure for Duchenne muscular dystrophy, a devastating, progressive muscle-wasting disease affecting 15,000 boys and young men […]
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