NEWPORT BEACH, Calif., March 27, 2017 – CureDuchenne, the leading nonprofit focused on finding a cure for Duchenne muscular dystrophy, launched a new website today at www.CureDuchenne.org to further reflect its mission which focuses on improving and extending the lives of all those with Duchenne. Duchenne muscular dystrophy is a fatal genetic disorder that causes […]
(Austin, Texas) March 21, 2017 – Some champions are made on a field and some become champions by giving from the heart. On April 8, hundreds of champions committed to finding a cure for Duchenne muscular dystrophy will gather at The University of Texas Golf Club for the eighth annual Champions to CureDuchenne gala to […]
NEWPORT BEACH, Calif., March 14, 2017 – More than 400 people gathered at the Ritz-Carlton on Saturday, March 4 to enjoy the nectar of top Napa Valley wineries and help find a cure for Duchenne muscular dystrophy. The third annual Napa in Newport wine auction, powered by Karma, raised $1 million to support CureDuchenne’s mission […]
NEWPORT BEACH, Calif., February 27, 2017 – CureDuchenne Ventures, a subsidiary of the nonprofit CureDuchenne that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have committed $5 million in seed financing in Exonics Therapeutics, a new biotechnology company focused on utilizing gene editing technologies like CRISPR/Cas9 to advance the […]
EMFLAZA is the First Drug in the U.S. Approved for Use by Patients Age Five and Older with Duchenne Regardless of Genetic Mutation
NEWPORT BEACH, Calif., January 16, 2017 –  CureDuchenne, a nonprofit dedicated to funding research and improving patient care for Duchenne muscular dystrophy, will host a webinar with TRiNDS, a new specialized contract research organization for neuromuscular diseases, on January 24 at 1 p.m. EST/10 a.m. PST. The webinar is an opportunity for the Duchenne community […]
NEWPORT BEACH, Calif., January 10, 2017 –  CureDuchenne announced today that BioMarinPharmaceutical Inc. has transferred its Duchenne natural history database to CureDuchenne, the venture philanthropy not-for-profit organization that is leading Duchenne research. CureDuchenne will house and maintain BioMarin’s natural history database, and will facilitate sharing of currently warehoused data and collaborate with other institutions as well, […]
NEWPORT BEACH, Calif., Dec. 19, 2016 –  CureDuchenne Ventures, LLC, a company that funds research to find a cure for Duchenne muscular dystrophy, announced today that they invested inTRiNDS, LLC, a new contract research organization born from the Cooperative International Neuromuscular Research Group (CINRG) academic consortium. Therapeutic Research in Neuromuscular Disorders Solutions (TRiNDS) provides specialized […]
NEWPORT BEACH, Calif., December 1, 2016 – The date for the highly anticipated 2017 Napa in Newport Wine Auction has been set for March 4 at the Ritz-Carlton, Laguna Niguel. Southern California’s premier annual wine event, Napa in Newport, unites 30 renowned vintners and wine enthusiasts to help find a cure for Duchenne muscular dystrophy, […]
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