CureDuchenne firmly believes in working together to help any child with Duchenne muscular dystrophy find the support they need. Duchenne is a disorder which knows no cultural, economic, or social boundaries.  This fatal genetic muscle disease affects more than 300,000 children worldwide. Especially affected are muscular dystrophy patients in Nepal, as the region lacks resources […]
Austin, Texas, May 4, 2017 – On April 8, hundreds gathered at The University of Texas Golf Club for a common goal, raising awareness and funds to help CureDuchenne in its mission to find a cure for Duchenne muscular dystrophy, a fatal genetic disease. The eighth annual Champions to CureDuchenne, emceed by Jim Spencer, chief […]
Newport Beach, Calif., May 1, 2017 –  Hitting a hole in one will feel twice as nice at the 7th Annual Getzlaf Golf Shootout, hosted by Anaheim Ducks Captain Ryan Getzlaf, because all funds raised will benefit CureDuchenne and their mission to find a cure for Duchenne muscular dystrophy. This year’s event will be held […]
NEWPORT BEACH, Calif., April 5, 2017 – CureDuchenne, the leading nonprofit focused on finding a cure for Duchenne muscular dystrophy, is proud to sponsor SB 643 (Pan) which passed the Senate Health Committee today with a vote of 8-0.  SB 643 will add Duchenne to the Genetically Handicapped Persons Program’s (GHPP) list of eligible medical […]
NEWPORT BEACH, Calif., March 27, 2017 – CureDuchenne, the leading nonprofit focused on finding a cure for Duchenne muscular dystrophy, launched a new website today at www.CureDuchenne.org to further reflect its mission which focuses on improving and extending the lives of all those with Duchenne. Duchenne muscular dystrophy is a fatal genetic disorder that causes […]
(Austin, Texas) March 21, 2017 – Some champions are made on a field and some become champions by giving from the heart. On April 8, hundreds of champions committed to finding a cure for Duchenne muscular dystrophy will gather at The University of Texas Golf Club for the eighth annual Champions to CureDuchenne gala to […]
NEWPORT BEACH, Calif., March 14, 2017 – More than 400 people gathered at the Ritz-Carlton on Saturday, March 4 to enjoy the nectar of top Napa Valley wineries and help find a cure for Duchenne muscular dystrophy. The third annual Napa in Newport wine auction, powered by Karma, raised $1 million to support CureDuchenne’s mission […]
NEWPORT BEACH, Calif., February 27, 2017 – CureDuchenne Ventures, a subsidiary of the nonprofit CureDuchenne that funds research to find a cure for Duchenne muscular dystrophy, announced today that they have committed $5 million in seed financing in Exonics Therapeutics, a new biotechnology company focused on utilizing gene editing technologies like CRISPR/Cas9 to advance the […]
EMFLAZA is the First Drug in the U.S. Approved for Use by Patients Age Five and Older with Duchenne Regardless of Genetic Mutation
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