DuchenneXchange.org Hosts Free Webinar to Showcase Features of Online Platform Designed to Unite, Support and Educate Duchenne Community
DuchenneXchange, the dedicated online platform built by the Duchenne community for the Duchenne community, will host a free hour-long webinar for Duchenne community members to learn about the benefits of the DuchenneXchange on Tuesday, August 7, 2018 at 1:00 PM (PDT) / 4:00PM (EDT). Those interested are encouraged to register and dial-in at:
Registration Link (international callers use web for audio)
Dial-in Info (highest quality audio)
U.S. & Canada: 800-289-0459
Access Code: 680580
Created by rareLife solutions, a health technology developer focused in rare disease, and CureDuchenne, a leading national nonprofit, the DuchenneXchange is a collaborative, inclusive environment where the entire Duchenne community can share comprehensive, safe, credible resources and information as well as get the support they need from diagnosis to treatment to clinical trials. All Duchenne stakeholders, including patients, families, organizations, scientists, advocates, health care professionals, and pharmaceutical companies, are invited to participate.
CureDuchenne is the leading nonprofit dedicated to extending and improving the lives of 300,000 boys worldwide who have Duchenne muscular dystrophy, a degenerative disease with no known cure. CureDuchenne uses an entrepreneurial venture philanthropy model to fund impactful research and accelerate human clinical trials. Through its CureDuchenne Cares program, it provides confidence to families seeking valuable resources, trains physical therapists and other health professionals on new standards of care and provides hope, support and empowerment to the Duchenne community. For more information, please visit www.cureduchenne.org, and follow us on Facebook, Twitter and YouTube.
rareLife solutions is the health tech, design and research team behind oneSCDvoice, oneFAPvoice, and additional customized rare disease platforms. rareLife solutions, focused solely on rare diseases, offers integrated strategic and tactical community engagement plans, medical communications and reimagined rare publication planning services in addition to our collaborative platform as a service (PaaS) solutions for advocacy groups, pharmaceutical and device companies, medical and research centers, contract research organizations and professional healthcare associations. To learn more, please visit us at http://www.rareLifesolutions.com and http://www.onevoice.world, follow us on Twitter at @rareLifeTalks and @onevoiceworld, join us on LinkedIn, and like us on Facebook at Facebook.com/rareLifeSolutions and Facebook.com/onevoiceworld.
Joanne Forster, 949-872-2552