Organizations to provide financial support for 50 Duchenne families to travel to Southern California for the CureDuchenne 2019 FUTURES national conference
NEWPORT BEACH, Calif. (July 1, 2019) — CureDuchenne, the nonprofit global leader in Duchenne research, patient care and innovation, and the Duchenne Family Assistance Program (DFAP), which is comprised of Duchenne nonprofit advocacy organizations Little Hercules Foundation and Team Joseph, announced today that CureDuchenne’s Cares program and DFAP will be working together to ensure that all Duchenne families in U.S. get the education and support they need to live their best lives possible.
The Duchenne Family Assistance Program offers travel assistance, including flights, airport transfers, gas cards, and accommodations, to and from educational events as well as to necessary medical appointments to see Duchenne specialists. The DFAP also helps Duchenne families navigate insurance claims, an oftentimes tedious, time-consuming and frustrating process.
“The Duchenne journey is a tough one and our goal is to make sure patients get the best possible care, regardless of household income. Relieving families of some of the financial burden and assisting with insurance can go a long way in keeping a Duchenne household positive,” said Debra Miller, founder and CEO, CureDuchenne.
CureDuchenne Cares and the DFAP have a goal to provide full financial assistance to 50 Duchenne families, no matter where they live in the U.S., to attend the CureDuchenne 2019 FUTURES national conference that will be held in Anaheim, California on October 11-13, 2019. Additionally, representatives from the DFAP will speak at all upcoming CureDuchenne Cares Workshops and Sessions to help create awareness of the services offered.
Little Hercules formed the DFAP with Team Joseph because their mission is to provide every child and young adult battling Duchenne with the resources, education, equipment, approved treatments and access to the best care available.
Little Hercules Foundation and Team Joseph recently formed the Duchenne Family Assistance Program to remove barriers preventing Duchenne families from getting what they need to live their best quality of life. To work effectively and efficiently the two nonprofits have divided tasks.
The process to receive help from these nonprofits is simple, and the only criteria for applying is a diagnosis of Duchenne muscular dystrophy.
“Far too often insurance companies deny crucial medical services and equipment to those who need it most and far too often families go without because fighting the insurance battles is time consuming and difficult. That’s where we come in. Our team at the Duchenne Family Assistance Program will fight the battles for Duchenne families so they can focus on living their best life,” said Marissa Penrod, founder of Team Joseph.
To apply for travel assistance to CureDuchenne’s FUTURES 2019 conference, first register for FUTURES by going to: https://www.cureduchenne.org/futures/. Once registered, apply for travel assistance upon receipt of confirmation email. Email FUTURES@cureduchenne.org with any questions.
CureDuchenne is the nation’s leading nonprofit organization dedicated to finding a cure for Duchenne, the most common and lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys and young men living today. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy. For more information on how to help raise awareness and funds needed for research, please visit www.cureduchenne.org, and follow us on Facebook, Twitter and YouTube.