NHL All-Star Ryan Getzlaf to Host 2nd Annual Getzlaf Golf Shootout to Benefit CureDuchenne

Newport Beach, Calif., August 15, 2012:  Ryan Getzlaf, captain of the Anaheim Ducks, is hosting the second annual Getzlaf Golf Shootout on September 9 to benefit CureDuchenne, a nonprofit that raises awareness and funds research to find a cure for Duchenne muscular dystrophy. Gold medalist and NHL All-Star Getzlaf, along with Corey Perry, Anaheim Ducks; Dustin Penner, Los Angeles Kings; Kent French, the voice of the Anaheim Ducks; actor Kevin Connolly; and other hockey players, celebrities and community leaders will participate in the golf outing to support CureDuchenne. This spectacular charity event will be held at the Monarch Beach Golf Links in Dana Point. A pre-golf dinner reception will be held at Sutra in Costa Mesa on September 8 and will include a live and silent auction.

Duchenne is the most devastating and lethal muscular disease in children. It impacts one in 3,500 boys. Boys are usually diagnosed at age 5, are in a wheelchair by 12 and most don’t live past their mid-20s. CureDuchenne has funded seven research projects that have gone into human clinical trials. CureDuchenne supports the translation of research and development programs into the clinic to focus on developing potential therapies to transform the treatment of Duchenne.

“My wife, Paige, and I are happy to continue our support for CureDuchenne and their valued efforts in finding a cure for Duchenne,” said Getzlaf. “We can’t imagine what it would be like for our son to grow up and not to be able to walk, run or play sports. We want to provide help for those impacted with Duchenne for many generations to come.”

The Getzlaf Golf Shootout is an opportunity to interact with athletes, play golf and support a great cause. Foursomes cost $2,800 and include a celebrity or athlete as a fifth golfer plus eight tickets to the pre-golf dinner reception. For more information and to register, click here. 

“We are delighted that CureDuchenne is the beneficiary of the Getzlaf Golf Shootout and thank Ryan and Paige for their support,” said Debra Miller, founder and CEO of CureDuchenne. “Duchenne is a progressive disease and it is urgent that we find treatments now.”

Sponsors include The Sports Corporation, The Hundred Acre Wine Group and Straub Distributing.

About CureDuchenne
CureDuchenne is a national nonprofit organization located in Newport Beach, Calif., dedicated to finding a cure for Duchenne, the most common and most lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys worldwide.

CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne. With the help of CureDuchenne’s distinguished international panel of Scientific Advisors, funds raised by CureDuchenne support the most promising research aimed at treating and curing Duchenne. To date, seven CureDuchenne research projects have made their way into human clinical trials – a unique accomplishment as few health-related nonprofits have been successful in being a catalyst for human clinical trials.

 

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