2nd Annual Knoxville Brewfest to Raise Funds to Find a Cure for Duchenne Muscular Dystrophy
The 2nd Annual Knoxville Brewfest will be held on June 23 and will benefit CureDuchennea nonprofit organization that raises awareness and funds research to cure Duchenne muscular dystrophy. This beer celebration features two bands, 2,000 people and 200,000 ounces of craft beer.
The Knoxville Brewfest will be held from 4 p.m. – 8 p.m. at the Southern Railway Station at 306 Depot Avenue in downtown Knoxville. Tickets are $38 and may be purchased at www.knoxvillebrewfest.com, or at the Bearden Beer Market. Tickets include admission to the Southern Railway Terminal, a tasting glass, a Fest map, and beer tasting.
The event is being organized and directed by Martin Daniel, owner of Elevation Outdoor Advertising, and Chris Morton, owner of the Bearden Beer Market, to help raise money to find a cure for Duchenne. Duchenne is a devastating muscle disease that impacts 1 in 3,500 boys. Boys are usually diagnosed with Duchenne by the age of 5, in a wheelchair by 12 and most don’t survive their mid-20s. Daniel’s 4-year-old son has Duchenne.
“The Knoxville Brewfest is a way to sample the finest beers around the region and country and have a great time while helping the 300,000 boys worldwide who have Duchenne,” said Daniel.
“The funds raised by this event will support research projects that are so close to treatments to save our sons’ lives,” said Debra Miller, founder and CEO of CureDuchenne.
Knoxville Brewfest is presented by Bearden Beer Market. Tier One sponsors include: Smoky Mountain Brewery, Vic’s Beer Store, Samuel Adams, New Belgium Brewing and Lamar Outdoor Advertising. For more information about the event, go to www.knoxvillebrewfest.com. To learn more about CureDuchenne, go to www.CureDuchenne.org.
CureDuchenne, a national nonprofit organization located in Newport Beach, Calif., is gaining international attention for its efforts to raise funds and awareness for Duchenne – a devastating and lethal muscle disease in children. One in every 3,500 male births results in a child being afflicted with the disease. More than 24,000 boys are living with the disease in the United States alone, and most will not survive their mid-20s.
The funds CureDuchenne raises support the most promising research projects aimed at treating and curing the disease with the help of its distinguished panel of Scientific Advisors from around the world. To date, seven research projects have made their way into human clinical trials with support from CureDuchenne. This accelerated push to move research from the lab into clinical trials could save the lives of those afflicted and give them hope for halting the progress of the disease. Very few health-related nonprofits have been as successful in being a catalyst for human clinical trials.