August 22, 2023

Tevard Biosciences Pursues Gene Therapy to Treat Dravet Syndrome and Possibly DMD (Rare Disease Advisor)

August 21, 2023

Texas Family Raises Millions for Groundbreaking Duchenne Research (Rare Disease Advisor)

August 16, 2023

NHL All-Star Ryan Getzlaf returns to the links for the 12th annual Getzlaf Golf Shootout on September 9 benefiting CureDuchenne (Rare Revolution Magazine)

August 8, 2023

Annual Getzlaf Golf Shootout on Sept. 9 Will Benefit Newport Beach-based CureDuchenne (Newport Beach Independent)

July 31, 2023

Edgewise and Locanabio Target New Mechanisms for Treating DMD (Rare Disease Advisor)

July 24, 2023

FDA Greenlights 35 Novel Approvals in H1, Biologics Stand Out (BioSpace)

July 14, 2023

Novel Trial May Make Patients With DMD Suitable for Gene Therapy (Rare Disease Advisor)

July 12, 2023

Listen: One Duchenne patient’s bittersweet hope for new treatment (STAT First Opinion Podcast)

June 30, 2023

For Duchenne moms who pushed for cures, new breakthrough therapy can’t rebuild what’s lost (STAT)

June 23, 2023

The FDA’s approval of a new gene therapy for Duchenne muscular dystrophy won’t help me — but it gives me hope (STAT)

June 23, 2023

An important milestone for the Duchenne community (Rare Revolution Magazine)

June 23, 2023

Rare Community Profiles: A Partnership Between CureDuchenne and PicnicHealth Bolsters the Power of CureDuchenne Link (Patient Worthy)

June 23, 2023

First gene therapy for certain DMD patients gains FDA nod (The Pharma Letter)

June 23, 2023

Anecdotal evidence and urgent need sway FDA panel toward Sarepta’s DMD therapy (BioCentury)

June 22, 2023

FDA approves Duchenne Muscular Dystrophy gene therapy to address ‘urgent unmet medical need’ (USA Today)

June 22, 2023

Muscular dystrophy patients get first gene therapy (NPR)

June 22, 2023

12th Annual Knoxville Brewfest to Benefit CureDuchenne (Knoxville Daily Sun)

May 22, 2023

Insmed unveils new research platforms and capabilities (BioPharma Reporter)

May 19, 2023

Finding a cure for Duchenne Muscular Dystrophy (FOX 13 Seattle)

May 12, 2023

FDA advisers recommend accelerated approval of a Sarepta gene therapy (Boston Globe)

May 4, 2023

Gene therapy has helped boys like Conner walk. Scientists are trying to keep it that way (STAT)

May 2, 2023

Gene therapy for muscular dystrophy stirs hopes and controversy (NPR)