The CureDuchenne Time Capsule Video is a beautiful compilation of interviews conducted at the 2019 FUTURES Conference in Anaheim, CA. We asked families to share their stories with us, as well as their hopes and dreams for the future. This is a snapshot of life with Duchenne as we knew it on October 12th, 2019. We hope to continue this project as we move forward in our mission to cure Duchenne. Thank you to the families who participated in this video. Your vulnerability brings us closer as a community.
“We were very impressed with CureDuchenne’s portfolio and how their funding is put towards research. We wanted the money we raise to go 100% towards research in clinical trials…”
“We didn’t know anything about Duchenne and felt isolated that there was no one we could turn to, other than the doctors or the internet for advice, inspiration, or HOPE…”
“We joined CureDuchenne more than a decade ago in their mission to find a cure for Duchenne. We partnered with CureDuchenne because they are steadfast in identifying and funding promising research…”
“My son Aiden was diagnosed with Duchenne Muscular Dystrophy on June 2, 2015. He was 3 at the time. That date will forever be etched in my mind…”
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You can advance the care, treatment and cure for Duchenne muscular dystrophy. Contributions in any amount can truly make a difference and can be credited to a fundraiser or event from the list below.Donate