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November 2016

Questions Regarding Deflazacort Access and Regulatory Status

November 1, 2016 @ 11:00 am - 12:00 pm PDT

This informational webinar will highlight the regulatory process to date, update the community on Marathon Pharmaceutical’s Expanded Access Program (EAP) for deflazacort and discuss what a potential FDA approval of deflazacort would mean in terms of access to the drug in the United States. Some of those who currently import versions of deflazacort from abroad may have recently received an update from their distributor with initial details, which we will discuss along with steps current deflazacort patients might choose to…

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Los Angeles, CA – Workshop for Duchenne Families

November 5, 2016 @ 8:30 am - 2:00 pm PDT
Children’s Hospital Los Angeles, 4650 W Sunset Blvd.
Los Angeles, CA 90027 United States
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Fee: This session is free. Please call to inquire about travel assistance and childcare. Agenda: Click here to view the agenda Registration: Click here to register   /   Pulse aquí para registrarse View the flyer as a PDF    /   Presione aquí para información en español

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February 2017

Phoenix, AZ – Duchenne: Current Understanding and Treatment

February 24, 2017 @ 8:30 am - 4:30 pm PST
Crowne Plaza Indianapolis Downtown Union Station, 123 W Louisiana St
Indianapolis , IN 46225 United States
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$165

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management. This course is for physical and occupational therapist who are looking to learn more about Duchenne. Agenda Click HERE to view the agenda   Registration If you want to register for the continuing education course, click HERE. If you want to register for the continuing…

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Phoenix, AZ – Workshop for Duchenne Families

February 25, 2017 @ 8:30 am - 2:00 pm MST
Crowne Plaza Indianapolis Downtown Union Station, 123 W Louisiana St
Indianapolis , IN 46225 United States
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Free

CureDuchenne Cares is an interactive educational series focused on increasing the health and wellbeing of patients living with Duchenne through educating parents, caregivers and physical therapists on the best standard of care for Duchenne management.

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March 2017

Napa in Newport

March 4, 2017 @ 4:30 pm - 10:00 pm PST
Ritz-Carlton, Laguna Niguel, 1 Ritz Carlton Drive
Dana Point, CA 92629 United States

Napa in Newport benefits CureDuchenne, a local organization with global impact, aimed at saving the lives of children with Duchenne muscular dystrophy.

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April 2017

San Diego, CA – Workshop for Duchenne Families

April 8, 2017 @ 8:30 am - 2:00 pm PDT
UC San Diego – Medical Education and Telemedicine Building, 9500 Gilman Drive
La Jolla, CA 92093 United States
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Free

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

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2017 Champions to CureDuchenne – Austin

April 8, 2017 @ 6:00 pm - 11:00 pm CDT
University of Texas Golf Club, 2200 University Club Dr
Austin, TX 78732 United States
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Join fellow Austin community and business leaders in the fight to cure Duchenne during a fun and memorable evening of great food and drinks, entertainment, live and silent auction.

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Milwaukee, WI – Duchenne: Current Understanding and Treatment

April 21, 2017 @ 8:30 am - 4:30 pm CDT
Crowne Plaza Indianapolis Downtown Union Station, 123 W Louisiana St
Indianapolis , IN 46225 United States
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$165

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

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Milwaukee, WI – Workshop for Duchenne Families

April 22, 2017 @ 8:30 am - 2:00 pm CDT
Crowne Plaza Indianapolis Downtown Union Station, 123 W Louisiana St
Indianapolis , IN 46225 United States
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Free

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

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June 2017

CureDuchenne Cares Regional Family Summit – Palo Alto, CA

June 3, 2017 @ 8:30 am - 5:00 pm PDT
Sheraton Palo Alto Hotel, 625 El Camino Real
Palo Alto, CA 94301
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Free

This is a free educational event for families and those living with Duchenne. LEARN important care topics, ENGAGE with others, and EMPOWER others to find a cure!

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