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July 2018

NS Pharma’s Exon 53 Skipping Program Update

July 11 @ 1:00 pm - 2:00 pm PDT

Webinar details -Dr. Clemens and Lauren Morgenroth will review the phase 2 studies sponsored by NS Pharma about the investigational drug NS-065/NCNP-01. -They will describe the study design, study progress, and early results of the 201 Phase 2 trial. Meeting Title:  NS Pharma's Exon 53 Skipping Program Update Date & Time:  Wed, Jul 11, 2018, 1pm PDT / 4pm EDT Web / Phone Access Information: Toll-Free Dial-in Number: 866-519-2796 Participant Passcode: 811436 Register here:  https://cc.readytalk.com/r/bodcjgagh4f8&eom

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Update on Sarepta’s RNA-targeted technology platforms (PMO and PPMO)

July 25 @ 1:00 pm - 2:00 pm PDT

Webinar details Dr. Gilmore O’Neill, Chief Medical Officer of Sarepta Therapeutics, Inc, will give a scientific overview of Sarepta’s RNA-targeted exon skipping technologies, PMO and PPMO. Dr. O’Neill will highlight the PPMO technology, designed to potentially improve upon the levels of dystrophin produced by PMO-induced exon skipping, and to potentially lead to more efficient dosing for patients. In addition, Dr. O’Neill will discuss Sarepta’s enrolling clinical trial, 5051-101, the first-in-human Ph1 PPMO trial and its open label extension trial, 5051-102.…

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August 2018

DuchenneXchange Stacked logo

Join us for the Introduction to DuchenneXchange Webinar

August 7 @ 1:00 pm - 4:00 pm PDT

The Duchenne Community Has Embraced The DuchenneXchange! Learn how to connect with clinical trials, create your own “binder” of information that is relevant to you, form your own group to share knowledge and personal experiences, and more.

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Continuing Education | Duchenne: Current Understanding and Treatment – Baltimore, MD

August 24 @ 8:30 am - 4:30 pm EDT
Renaissance Baltimore Harborplace Hotel, 202 E Pratt St
Baltimore, MD 52241 United States
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$165

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

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Family & Caregiver Workshop – Baltimore, MD

August 25 @ 8:00 am - 3:00 pm EDT
Renaissance Baltimore Harborplace Hotel, 202 E Pratt St
Baltimore, MD 52241 United States
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Free

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

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September 2018

8th Annual Getzlaf Golf Shootout

September 7 @ 5:30 pm - September 8 @ 9:00 pm PDT
Monarch Beach Golf Links, 50 Monarch Beach Resort North
Dana Point, CA 92629 United States
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The 8th Annual Getzlaf Golf Shootout – hosted by Ryan Getzlaf, captain of the Anaheim Ducks – is a two-day charity golf event that brings together athletes, celebrities and community leaders in support of CureDuchenne.

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Jim’s Rideabout OZ 2018

September 11 - October 8
Jim’s Rideabout OZ Tour Australia

Jim Ruetz will be hitting the road for his 5th time to raise awareness and money for research for Duchenne Muscular Dystrophy. Jim’s Ride Around OZ Tour will take him all around Australia this summer.

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Continuing Education | Duchenne: Current Understanding and Treatment – Salt Lake City, UT

September 14 @ 8:30 am - 4:30 pm MDT
Courtyard Marriott Salt Lake City Downtown, 345 W 100 S
Salt Lake City, UT 84101 United States
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$130

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

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Family & Caregiver Workshop – Salt Lake City, UT

September 15 @ 8:00 am - 3:30 pm MDT
Courtyard Marriott Salt Lake City Downtown, 345 W 100 S
Salt Lake City, UT 84101 United States
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Free

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

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9th Annual Cruisin’ for a Cause – to Benefit CureDuchenne

September 16 @ 1:00 pm - 5:00 pm PDT
$10

Music - Door Prizes - Food - Goody Bags - Arts & Crafts Show - Silent Auction - Display/Model Car Contest - Custom Handmade Trophies // Entry fee is $10 // All proceeds got to Duschenne Muscular Dystrophy Registration 1:00p - 3:00p Show 3:00p - 5:30p Trophy Ceremony 5:30p

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