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April 2018
Family & Caregiver Workshop – Iowa City, IA
Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.
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2018 Champions to CureDuchenne – Austin
Join fellow Austin community and business leaders in the fight to cure Duchenne during a fun and memorable evening of great food and drinks, entertainment, live and silent auction.
Find out more »Continuing Education | Duchenne: Current Understanding and Treatment – Denver, CO
This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.
Find out more »Family & Caregiver Workshop – Denver, CO
Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.
Find out more »May 2018
Regional Family Summit – Houston, TX
Please join CureDuchenne Cares for two days of free, informative sessions on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management. Hear from key opinion leaders from the Duchenne community.
Find out more »June 2018
Continuing Education | Duchenne: Current Understanding and Treatment – Philadelphia, PA
This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.
Find out more »Family & Caregiver Workshop – Philadelphia, PA
Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.
Find out more »July 2018
NS Pharma’s Exon 53 Skipping Program Update
Webinar details -Dr. Clemens and Lauren Morgenroth will review the phase 2 studies sponsored by NS Pharma about the investigational drug NS-065/NCNP-01. -They will describe the study design, study progress, and early results of the 201 Phase 2 trial. Meeting Title: NS Pharma's Exon 53 Skipping Program Update Date & Time: Wed, Jul 11, 2018, 1pm PDT / 4pm EDT Web / Phone Access Information: Toll-Free Dial-in Number: 866-519-2796 Participant Passcode: 811436 Register here: https://cc.readytalk.com/r/bodcjgagh4f8&eom
Find out more »Update on Sarepta’s RNA-targeted technology platforms (PMO and PPMO)
Webinar details Dr. Gilmore O’Neill, Chief Medical Officer of Sarepta Therapeutics, Inc, will give a scientific overview of Sarepta’s RNA-targeted exon skipping technologies, PMO and PPMO. Dr. O’Neill will highlight the PPMO technology, designed to potentially improve upon the levels of dystrophin produced by PMO-induced exon skipping, and to potentially lead to more efficient dosing for patients. In addition, Dr. O’Neill will discuss Sarepta’s enrolling clinical trial, 5051-101, the first-in-human Ph1 PPMO trial and its open label extension trial, 5051-102.…
Find out more »August 2018
Join us for the Introduction to DuchenneXchange Webinar
The Duchenne Community Has Embraced The DuchenneXchange! Learn how to connect with clinical trials, create your own “binder” of information that is relevant to you, form your own group to share knowledge and personal experiences, and more.
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