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September 2019
Richmond CureDuchenne Cares Workshop
A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.
Find out more »October 2019
CureDuchenne Futures
CureDuchenne holds the comprehensive two-day conference “Futures” once a year, and is free for all Duchenne patients, families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, this conference is designed to provide Duchenne families with the information, support and motivation they need to live the best and longest life possible. Click here to learn more.
Find out more »Dealing for Duchenne 2019
Join us for our 4th Annual Dealing for Duchenne – San Antonio benefitting CureDuchenne on Saturday, October 19th at Pedrotti’s North Wind Ranch. For more information and registration, click HERE.
Find out more »Napa in New England 2019
Wine connoisseurs and epicureans across New England can now experience Napa Valley’s finest wines, right in historic downtown Boston. Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in New England will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience.
Find out more »November 2019
San Antonio CureDuchenne Cares Workshop
A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.
Find out more »San Antonio, Continuing Education Course
Duchenne is the most common and fatal form of muscular dystrophy. It is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day. Get Informed on the Standards of Duchenne Care Join us on November 9 to get the most current information on Duchenne muscular dystrophy. Course objectives include: Demonstrate a depth of Duchenne knowledge. *Identify the stages of…
Find out more »Napa in Philadelphia 2019
Wine connoisseurs and epicureans across Pennsylvania, get ready to experience Napa Valley’s finest wines as Blingo introduces Napa in Philadelphia! Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in Philadelphia will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience. Click here to learn more.
Find out more »February 2020
Houston, TX CureDuchenne Cares Workshop
Featured Speakers: Tim Lotze, MD - Pediatric Neurologist, Texas Children's Hospital Joseph Spinner, MD - Assistant Professor Pediatric Cardiology, Texas Children's Hospital Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all…
Find out more »Charleston, SC CureDuchenne Cares Session
A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE
Find out more »Napa in Newport 2020
Treat yourself to the only wine tasting event in the U.S. that includes 40 of the most acclaimed Napa Valley wines under one roof. Napa in Newport features a two-hour Grand Tasting, vintner hosted dining tables, an exquisite four-course celebrity chef-designed dinner, and spectacular wine and experience auction lots – all to benefit CureDuchenne, the nation’s leading Duchenne nonprofit organization with a mission to cure Duchenne muscular dystrophy. Click here to learn more
Find out more »March 2020
Knoxville, TN CureDuchenne Cares Session
THIS IN-PERSON EVENT HAS BEEN CONVERTED TO AN ONLINE, INTERACTIVE WEBINAR. DATE AND TIME TO BE ANNOUNCED SOON! Please read our statement regarding the cancellation to the in-person event here: http://bit.ly/3amXM6r Register for the online event here: https://sforce.co/345Kp7e
Find out more »Pfizer’s Phase 3 Study of Gene Therapy for DMD
Please join us Wednesday, March 11, 2020, 11:00 AM PST / 2:00 PM EST In this webinar, Beth Belluscio, Pfizer Global Clinical Lead for Rare Neurological Disorders, will discuss the Phase 3 study of PF-06939926, a gene therapy for Duchenne muscular dystrophy. Beth will answer questions from the Duchenne community about the study including aspects of the design and the criteria for enrollment. There will then be a Q&A session about the study facilitated by CureDuchenne. Pfizer invites participants to…
Find out more »Billings, MT CureDuchenne Cares Session
THIS IN-PERSON EVENT HAS BEEN CONVERTED TO AN ONLINE, INTERACTIVE WEBINAR. DATE AND TIME TO BE ANNOUNCED SOON! Please read our statement regarding the cancellation to the in-person event here: http://bit.ly/3amXM6r Register for the webinar here: https://sforce.co/36jurYD
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