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August 2019
CureDuchenne Cares Session – Birmingham, AL
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »September 2019
9th Annual Getzlaf Golf Shootout
The 9th Annual Getzlaf Golf Shootout – hosted by Ryan Getzlaf, captain of the Anaheim Ducks – is a two-day charity golf event that brings together athletes, celebrities and community leaders in support of CureDuchenne.
Find out more »Duchenne Clinical Trials & Drug Development
Please join us as 4 experts share their knowledge about drug development pertaining to the newest gene therapies: - Moderator: Sharon Hesterlee, PhD, Executive VP, Portfolio Development & Head of Neuromuscular Programs, Asklepios Biopharmaceuticals (AskBio) - Module 1: Peter Marks, MD, PhD, Director, Center for Biologics Research, Food and Drug Administration (FDA) - Module 2: Petra Kaufmann, MD, Vice President, Research and Development, Translational Medicine, AveXis, Inc. - Module 3: Barry Byrne, MD, PhD, Director, UF Powell Gene Therapy Center,…
Find out more »Free Webinar: Italfarmaco Givinostat Development Program Update
Please join us on Thursday, September 12, 2019, from 9:00 AM to 10:00 AM Pacific Time, to get updates on Italfarmaco’s Givinostat clinical trial, which is currently recruiting ambulatory boys who are on steroid therapy. The webinar will review the Italfarmaco Givinostat development program for Duchenne and Becker Muscular Dystrophy. Content that will be covered, includes: Updates from the EPIDYS Study, a phase 3 clinical trial of Givinostat in ambulatory boys with DMD. Data from Italfarmaco’s long term studies of…
Find out more »Honolulu CureDuchenne Cares Workshop
A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.
Find out more »Calves to Cure DMD
Grant Heaton, a 5 year old from Worden, MT was diagnosed with Duchenne muscular dystrophy, a rare disease of which there is no cure. Join the Heaton Family in raising money for CureDuchenne on Thursday, September 19th at 1:00 PM MDT at Billings Livestock Sales. Sellers can bring in a calf, yearling, etc. and donate either all of their check for that animal, a set dollar amount or a percentage of the sale price. Can’t make the sale but still…
Find out more »CureDuchenne Cares Session – Milwaukee, WI
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »Richmond CureDuchenne Cares Workshop
A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.
Find out more »October 2019
CureDuchenne Futures
CureDuchenne holds the comprehensive two-day conference “Futures” once a year, and is free for all Duchenne patients, families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, this conference is designed to provide Duchenne families with the information, support and motivation they need to live the best and longest life possible. Click here to learn more.
Find out more »Dealing for Duchenne 2019
Join us for our 4th Annual Dealing for Duchenne – San Antonio benefitting CureDuchenne on Saturday, October 19th at Pedrotti’s North Wind Ranch. For more information and registration, click HERE.
Find out more »Napa in New England 2019
Wine connoisseurs and epicureans across New England can now experience Napa Valley’s finest wines, right in historic downtown Boston. Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in New England will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience.
Find out more »November 2019
San Antonio CureDuchenne Cares Workshop
A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.
Find out more »San Antonio, Continuing Education Course
Duchenne is the most common and fatal form of muscular dystrophy. It is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day. Get Informed on the Standards of Duchenne Care Join us on November 9 to get the most current information on Duchenne muscular dystrophy. Course objectives include: Demonstrate a depth of Duchenne knowledge. *Identify the stages of…
Find out more »Napa in Philadelphia 2019
Wine connoisseurs and epicureans across Pennsylvania, get ready to experience Napa Valley’s finest wines as Blingo introduces Napa in Philadelphia! Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in Philadelphia will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience. Click here to learn more.
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