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February 2019

Continuing Education Course – Raleigh, NC

February 8 @ 8:30 am - 4:30 pm EST
Renaissance Raleigh North Hills Hotel, 4100 MAIN at NORTH HILLS St.
Raleigh, NC 27609 United States
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Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the   component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course Schedule 8:00-8:30 Registration and sign in 8:30-9:30 (60 min) General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30 (60 min) Typical Progression and Client Presentation…

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Raleigh CureDuchenne Cares Workshop

February 9 @ 8:00 am - 3:00 pm EST
Renaissance Raleigh North Hills Hotel, 4100 MAIN at NORTH HILLS St.
Raleigh, NC 27609 United States
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Register here. Agenda:  8:00 AM Registration | Breakfast  9:00 AM – 12:00 PM Keynote Speaker: Edward C. Smith, MD, Duke University | Clinical Trials & Research Updates  12:00 PM – 12:45 PM Lunch | Pharma - Patient Advocacy Group Presentations 12:45 PM – 3:00 PM Physical Therapy | Family Support | Fundraising

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Love Cures

February 16 @ 6:00 pm - 10:00 pm PST
Del Sur Ranch House, 15455 Paseo Del Sur
San Diego, CA 92127 United States
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Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips away a patient’s ability to run, walk, hug and, eventually, breathe. The initial diagnosis was isolating for both families, as they didn’t know anyone else…

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Portland CureDuchenne Cares Workshop

February 23 @ 8:00 am - 3:00 pm PST
Portland Marriott Downtown Waterfront, 1401 SW Naito Parkway
Portland, OR 97201 United States
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These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Travel assistance is provided to families traveling more than 100 miles and child care is available on site.

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March 2019

Napa in Newport

March 2 @ 5:00 pm - 10:00 pm PST
Monarch Beach Resort, One Monarch Beach Resort
Dana Point, CA 92629 United States
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Wine connoisseurs and epicureans: Indulge in Napa Valley's premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular night of wining and dining, and culminates in a spirited auction. With this extraordinary evening’s proceeds going to CureDuchenne — the nation’s leading Duchenne nonprofit…

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Family & Caregiver Session – Oklahoma City, OK

March 2 @ 6:30 pm - 8:30 pm CST
Whiskey Cake, Penn Square Mall, 1845 NW Expressway
Oklahoma City, OK 73118 United States
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Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Family & Caregiver Session – Louisville, KY

March 2 @ 6:30 pm - 8:30 pm CST
Whiskey Cake, Penn Square Mall, 1845 NW Expressway
Oklahoma City, OK 73118 United States
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Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Family & Caregiver Session – Columbus, OH

March 9 @ 6:30 pm - 8:30 pm CST
OK United States + Google Map
Image of Columbus, OH

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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CureDuchenne Cares Workshop – Columbia, MO

March 16 @ 8:00 am - 4:30 pm CDT
Holiday Inn Executive Center, 2200 I-70 Drive SW
Columbia, MO 65203 United States
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A photograph of Columbia

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.

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CureDuchenne Cares Session – Los Angeles

March 23 @ 6:30 pm - 8:30 pm PDT
Courtyard Los Angeles L.A. Live, 901 West Olympic Blvd.
Los Angeles, CA 90015 United States
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A photograph of Los Angeles

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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April 2019

Champions to CureDuchenne

April 13 @ 6:00 pm - 11:00 pm CDT
The University of Texas Golf Club, 2200 University Club Drive
Austin, TX 78732 United States
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Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and raises vital funds for gene editing research and CRISPR/Cas9 technology that will be transformative for Duchenne patients. Through the generous support of the Austin Community, Champions to CureDuchenne has funded more than $1.7M in research to…

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CureDuchenne Cares Workshop – Chicago, IL

April 27 @ 8:00 am - 4:30 pm CDT
JW Marriot Chicago, 151 W. Adams St.
Chicago, IL 60603 United States
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A photograph of Chicago

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.

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CHICAGO: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

April 27 @ 8:30 am - 4:30 pm PDT
JW Marriott, 51 W Adams Street
Chicago, IL 60603 United States
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UNDERSTANDING DUCHENNE Duchenne is the most common and fatal form of muscular dystrophy. It is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day. Get Informed on the Standards of Duchenne Care Join us on April 27th to get the most current information on Duchenne muscular dystrophy. Course objectives include: Demonstrate a depth of Duchenne knowledge. Identify the…

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May 2019

CureDuchenne Cares Workshop – Albuquerque, NM

May 4 @ 8:00 am - 4:30 pm MST
Hotel Albuquerque at Old Town, 800 Rio Grande Blvd.
Albuquerque, NM 87104 United States
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Cure Duchenne, Albuquerque.

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.

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CureDuchenne Cares Session – Palo Alto, CA

May 11 @ 6:30 pm - 8:30 pm PDT
MacArthur Park, 27 University Avenue
Palo Alto, CA 94301 United States
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Cure Duchenne, Palo Alto, Session

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Napa in Nantucket

May 17 @ 4:00 pm - 6:00 pm EDT
Nantucket Culinary Center, 22 Federal Street
Nantucket, MA 02554 United States
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Please join us for an exclusive opportunity to a private wine dinner hosted by Napa Valley's OVID. Ticket includes four course culinary tour presented by Chef Greg & Joy Margolis paired with highly sought after OVID wines. Space is limited to 14 guests.

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CureDuchenne Cares Session – Fresno, CA

May 25 @ 6:30 pm - 8:30 pm PDT
Fleming’s, 639 E. Shaw Ave
Fresno, CA United States
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CureDuchenne, Fresno

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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June 2019

CureDuchenne Cares Workshop – Detroit, MI

June 1 @ 8:00 am - 4:30 pm EDT
Detroit Renaissance at the Renaissance Center, 400 Renaissance Drive
Detroit, MI 48243 United States
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CureDuchenne, Detroit, MI- Event's Workshop

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.

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DETROIT: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

June 1 @ 8:30 am - 4:30 pm EDT
Detroit Renaissance at the Renaissance Center, 400 Renaissance Drive
Detroit, MI 48243 United States
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CureDuchenne, Detroit

UNDERSTANDING DUCHENNE
The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.

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CureDuchenne Cares Session – San Diego, CA

June 8 @ 6:30 pm - 8:30 pm PDT
True Food Kitchen, 7007 Friars Rd. Suite 394
San Diego, CA 92108 United States
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Cure Duchenne, Sand Diego. Session

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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