Events Archive - CureDuchenne
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September 2019

Richmond CureDuchenne Cares Workshop

September 28, 2019 @ 8:00 am - 4:30 pm
The Westin Richmond, 6631 W. Broad St.
Richmond, VA 23230 United States
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A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.

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October 2019

CureDuchenne Futures

October 11, 2019 - October 13, 2019
Disneyland Hotel, 1150 Magic Way
Anaheim, CA 92802 United States
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CureDuchenne holds the comprehensive two-day conference “Futures” once a year, and is free for all Duchenne patients, families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, this conference is designed to provide Duchenne families with the information, support and motivation they need to live the best and longest life possible. Click here to learn more.

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Dealing for Duchenne 2019

October 19, 2019 @ 6:00 pm - October 20, 2019 @ 12:00 am
Pedrotti’s North Wind Ranch, 13715 Fm 1560 N
Helotes, Texas 78023
Dealing for Duchenne

Join us for our 4th Annual Dealing for Duchenne – San Antonio benefitting CureDuchenne on Saturday, October 19th at Pedrotti’s North Wind Ranch. For more information and registration, click HERE.

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Napa in New England 2019

October 25, 2019 @ 6:00 pm - 10:00 pm
Four Seasons Boston, 200 Boylston Street
Boston, MA 02116 United States
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Wine connoisseurs and epicureans across New England can now experience Napa Valley’s finest wines, right in historic downtown Boston. Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in New England will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience.

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November 2019

San Antonio CureDuchenne Cares Workshop

November 9, 2019 @ 8:00 am - 4:30 pm
Sheraton Gunter Hotel San Antonio, 205 E. Houston St.
San Antonio,, TX 78205 United States
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A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.

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San Antonio, Continuing Education Course

November 9, 2019 @ 8:30 am - 4:30 pm
Sheraton Gunter Hotel San Antonio, 205 E. Houston St.
San Antonio,, TX 78205 United States
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Duchenne is the most common and fatal form of muscular dystrophy. It is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day. Get Informed on the Standards of Duchenne Care Join us on November 9 to get the most current information on Duchenne muscular dystrophy. Course objectives include: Demonstrate a depth of Duchenne knowledge. *Identify the stages of…

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Napa in Philadelphia 2019

November 16, 2019 @ 6:00 pm - 10:00 pm
Bellevue Hotel, 200 S. Broad Street
Philadelphia, PA 19102 United States
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Wine connoisseurs and epicureans across Pennsylvania, get ready to experience Napa Valley’s finest wines as Blingo introduces Napa in Philadelphia! Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in Philadelphia will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience. Click here to learn more.

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February 2020

Houston, TX CureDuchenne Cares Workshop

February 8 @ 8:00 am - 4:30 pm
Marriott Marquis Houston – Montgomery Room, 2nd floor, 1777 Walker Street
Houston, TX 77010 United States
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Featured Speakers: Tim Lotze, MD - Pediatric Neurologist, Texas Children's Hospital Joseph Spinner, MD - Assistant Professor Pediatric Cardiology, Texas Children's Hospital Join us for insightful presentations on: Standards of Care Up-to-date care and disease management guidelines across relevant medical disciplines. Research and clinical trials Updated reports on clinical trials and drug development pipelines for Duchenne muscular dystrophy. Opportunity to speak with representatives from pharmaceutical and biotech companies. Mental health and family support Open conversation on navigating Duchenne through all…

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Charleston, SC CureDuchenne Cares Session

February 22 @ 6:30 pm - 8:30 pm
Ruth’s Chris Steak House, 55 S. Market St.
Charleston, SC 29401 United States
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Charleston

A Neighborhood Dinner For Families Affected by Duchenne Join us for a casual two-hour dinner on Saturday evening to talk about your family's story, health and wellness, coping and overall disease management. We will be joined by a guest speaker to guide our conversations and provide support on mental health for the whole family while navigating a Duchenne diagnosis. Come break bread with your not so "rare" neighbors. Dinner is free of charge. For more information and registration, click HERE

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Napa in Newport 2020

February 29 @ 5:00 pm - 10:00 pm
Monarch Beach Resort, One Monarch Beach Resort
Dana Point, CA 92629 United States
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Treat yourself to the only wine tasting event in the U.S. that includes 40 of the most acclaimed Napa Valley wines under one roof. Napa in Newport features a two-hour Grand Tasting, vintner hosted dining tables, an exquisite four-course celebrity chef-designed dinner, and spectacular wine and experience auction lots – all to benefit CureDuchenne, the nation’s leading Duchenne nonprofit organization with a mission to cure Duchenne muscular dystrophy. Click here to learn more

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March 2020

Knoxville, TN CureDuchenne Cares Session

March 7 @ 6:30 pm - 8:30 pm
Ruth’s Chris Steak House, 950 Volunteer Landing Ln.
Knoxville, TN 37915 United States
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Knoxville

THIS IN-PERSON EVENT HAS BEEN CONVERTED TO AN ONLINE, INTERACTIVE WEBINAR. DATE AND TIME TO BE ANNOUNCED SOON! Please read our statement regarding the cancellation to the in-person event here: http://bit.ly/3amXM6r Register for the online event here: https://sforce.co/345Kp7e  

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Pfizer’s Phase 3 Study of Gene Therapy for DMD

March 11 @ 11:00 am - 12:00 pm
Online
pfizer-webinar

Please join us Wednesday, March 11, 2020, 11:00 AM PST / 2:00 PM EST In this webinar, Beth Belluscio, Pfizer Global Clinical Lead for Rare Neurological Disorders, will discuss the Phase 3 study of PF-06939926, a gene therapy for Duchenne muscular dystrophy. Beth will answer questions from the Duchenne community about the study including aspects of the design and the criteria for enrollment. There will then be a Q&A session about the study facilitated by CureDuchenne. Pfizer invites participants to…

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Billings, MT CureDuchenne Cares Session

March 14 @ 6:30 pm - 8:30 pm
Jake’s, 2701 1st. Ave. N.
Billings, MT 59101 United States
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Billings

THIS IN-PERSON EVENT HAS BEEN CONVERTED TO AN ONLINE, INTERACTIVE WEBINAR. DATE AND TIME TO BE ANNOUNCED SOON! Please read our statement regarding the cancellation to the in-person event here: http://bit.ly/3amXM6r Register for the webinar here: https://sforce.co/36jurYD

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