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October 2018
Dealing for Duchenne – San Antonio
Dealing for Duchenne - San Antonio, benefitting UT Southwestern and Dr. Eric Olson, is a “Night of Hope” that connects the San Antonio community to a global network of families, caretakers, doctors, researchers and philanthropic-minded people like you, to help find a cure for children and young-adults with Duchenne muscular dystrophy.
Find out more »November 2018
Napa in New England
Join us for an Extraordinary Evening Benefiting CureDuchenne Wine connoisseurs and epicureans across New England can now experience some of the finest wines from California’s Napa Valley, right in our own backyard. Cult wine brands, exquisite cuisine and unparalleled auction lots featured at Napa in New England will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience. During the Grand Tasting, guests are treated to coveted wines served alongside spectacular culinary creations…
Find out more »December 2018
Steroid Use in Duchenne: Expert Dialogue on Latest Data
Healthcare professionals, personal caregivers, and family members of those with Duchenne muscular dystrophy will have an opportunity to learn about new data and best practices for steroid use in Duchenne during a live broadcast webinar on Tuesday, December 11, at 7:00 PM ET. This free web broadcast, sponsored by CureDuchenne, will feature 3 physician experts and an experienced Duchenne parent/caregiver in dialogue. Participants will be able to ask and answer questions in the interactive format. Hosted by Emma Ciafaloni, MD,…
Find out more »January 2019
Family & Caregiver Session – Little Rock, AR
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President,CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families CureDuchenne 7:25 PM – 7:35 PM Let’s…
Find out more »Family & Caregiver Session – Atlanta, GA
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 12:00 PM – 12:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD, Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM – 1:25 PM Families Helping…
Find out more »Family & Caregiver Session – Indianapolis, IN
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families…
Find out more »Family & Caregiver Session – San Jose, CA
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Please submit only one registration form per group. For registration, click HERE. Agenda: 12:00 PM – 12:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Missy Dixon, Visiting…
Find out more »Continuing Education Course – Breckenridge, MN
Registration for just the course is $130. For more information and registration, click HERE. Course Schedule 8:00-8:30: Registration and sign in 8:30-9:30: General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30: Typical Progression and Client Presentation 10:30-10:45: Break 10:45-11:15: Concurrent Medical Interventions, Comorbidities 11:15-12:30: Evaluation and Intervention (Therapy and surgical) 12:30-1:30: Lunch 1:30-2:15: Exercise, Activity for Duchenne 2:15-3:15: Mobility Equipment with Demonstration 3:15-3:30: Break 3:30-4:30: Case Studies, extensive treatment plan development. 4:30: Post Test and Course Evaluations 4:30-5:00: CureDuchenne Cares…
Find out more »February 2019
Family & Caregiver Session – Irvine, CA
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. For registration click HERE. Agenda: 12:00 PM – 12:05 PM Welcome and Introductions Eunice Miranda, Director of Special Events, CureDuchenne Cares 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM…
Find out more »Continuing Education Course – Raleigh, NC
Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course Schedule 8:00-8:30 Registration and sign in 8:30-9:30 (60 min) General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30 (60 min) Typical Progression and Client Presentation…
Find out more »Raleigh CureDuchenne Cares Workshop
Register here. Agenda: 8:00 AM Registration | Breakfast 9:00 AM – 12:00 PM Keynote Speaker: Edward C. Smith, MD, Duke University | Clinical Trials & Research Updates 12:00 PM – 12:45 PM Lunch | Pharma - Patient Advocacy Group Presentations 12:45 PM – 3:00 PM Physical Therapy | Family Support | Fundraising
Find out more »Love Cures
Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips away a patient’s ability to run, walk, hug and, eventually, breathe. The initial diagnosis was isolating for both families, as they didn’t know anyone else…
Find out more »Portland CureDuchenne Cares Workshop
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Travel assistance is provided to families traveling more than 100 miles and child care is available on site.
Find out more »March 2019
Napa in Newport
Wine connoisseurs and epicureans: Indulge in Napa Valley's premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular night of wining and dining, and culminates in a spirited auction. With this extraordinary evening’s proceeds going to CureDuchenne — the nation’s leading Duchenne nonprofit…
Find out more »Family & Caregiver Session – Oklahoma City, OK
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »Family & Caregiver Session – Louisville, KY
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »Family & Caregiver Session – Columbus, OH
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »CureDuchenne Cares Workshop – Columbia, MO
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.
Find out more »CureDuchenne Cares Session – Los Angeles
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »April 2019
Champions to CureDuchenne
Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and raises vital funds for gene editing research and CRISPR/Cas9 technology that will be transformative for Duchenne patients. Through the generous support of the Austin Community, Champions to CureDuchenne has funded more than $1.7M in research to…
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