All Events Community Events Industry Webinars Educational Events Fundraising Events January 2021 Cocktail Talk with CureDuchenne Cares Jan 15 Join us for a virtual cocktail with families and friends from our Duchenne community! The purpose of a Cocktail Talk is to create a supportive and “safe” space to talk… Learn More CureDuchenne Webinar: COVID-19 Vaccines – What the Duchenne Community Needs to Know Jan 22 Come listen to leading experts representing regulatory agencies, vaccine development, clinical care and the community in a discussion on the latest topics surrounding the COVID-19 vaccines and how they specifically… Learn More February 2021 CureDuchenne Cares Webinar – Safety and Emergency Care Feb 3 This webinar will cover the following topics: Emergency Care Guidelines Navigating “Re-entry” After an Emergency Ask the Expert Session Learn More CureDuchenne Webinar – Astellas Program Update Feb 4 Join this webinar to hear an update from Astellas on their study to assess the safety, tolerability, and preliminary efficacy of ASP0367 (MA-0211) for boys with Duchenne Muscular Dystrophy. Learn More Coffee Talk with CureDuchenne Cares Feb 6 Join us for a virtual cocktail with families and friends from our Duchenne community! The purpose of a Cocktail Talk is to create a supportive and “safe” space to talk… Learn More CureDuchenne Webinar – An Introduction to REGENXBIO and RGX-202, a new Duchenne gene therapy program Feb 11 Join us to meet REGENXBIO and learn more about their technology and their new gene therapy program for the potential treatment of DMD. This webinar will feature Dr. Olivier Danos,… Learn More CureDuchenne Webinar – An Introduction to Edgewise Therapeutics Feb 16 Don’t miss this opportunity to meet the leaders at Edgewise Therapeutics and hear their company goals related to Duchenne. Learn More March 2021 Sarepta Therapeutics update on RNA Exon-Skipping program and Patient Support Services Mar 4 In this webinar, Sarepta Therapeutics will discuss their commitment to individuals living with Duchenne and the community. They will provide an overview of their RNA Exon-Skipping therapies as well as… Learn More Cocktail Talk with CureDuchenne Cares Mar 5 Join us for a virtual cocktail with families and friends from our Duchenne community! The purpose of a Cocktail Talk is to create a supportive and “safe” space to talk… Learn More The Family Unit Webinar Mar 10 Join us as we continue this educational series through a new lens: Quality of Life. This webinar will cover the following topics: Co-parenting/caregiving, Marriage and Communication Genetic Carrier Health Ask… Learn More CureDuchenne Webinar: March Updates on COVID-19 Vaccines – What the Duchenne Community Needs to Know Mar 19 This webinar will be a roundtable with scientific and medical experts covering recent updates to COVID-19 vaccines and how they relate to the Duchenne community. Learn More CureDuchenne Webinar: Dyne’s FORCE Platform Mar 30 In this “Enhancing Muscle Delivery of ASOs to treat Duchenne” webinar, Dyne will present an overview of their FORCE platform and DMD drug development program to the Duchenne community. Learn More April 2021 CureDuchenne Cares Abraza este Momento Apr 6 TEMAS: Genética Salud y afrontamiento del portador genético Planificación familiar Hablar con familiares / amigos / médicos / profesores Impacto financiero Gracias a nuestro auspiciador: PTC Therapeutics Learn More Coffee Talk with CureDuchenne Cares Apr 10 Join us for a virtual cocktail with families and friends from our Duchenne community! The purpose of a Cocktail Talk is to create a supportive and “safe” space to talk… Learn More + Export Events
