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April 2018

Family & Caregiver Workshop – Iowa City, IA

April 7 @ 8:00 am - 3:00 pm CDT
Coralville Marriott Hotel & Conference Center, 300 E 9th St
Coralville, IA 52241 United States
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Free

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

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2018 Champions to CureDuchenne – Austin

April 14 @ 6:00 pm - 11:00 pm CDT
University of Texas Golf Club, 2200 University Club Dr
Austin, TX 78732 United States
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Join fellow Austin community and business leaders in the fight to cure Duchenne during a fun and memorable evening of great food and drinks, entertainment, live and silent auction.

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Continuing Education | Duchenne: Current Understanding and Treatment – Denver, CO

April 20 @ 8:30 am - 4:30 pm MDT
Magnolia Hotel Denver, 818 17th St
Denver, CO 80202 United States
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$165

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

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Family & Caregiver Workshop – Denver, CO

April 21 @ 8:00 am - 4:30 pm MDT
Magnolia Hotel Denver, 818 17th St
Denver, CO 80202 United States
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Free

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

Find out more »

May 2018

Regional Family Summit – Houston, TX

May 19 @ 7:00 am - May 20 @ 2:00 pm CDT
The Westin Galleria Houston, 5060 W Alabama St
Houston, TX 77056 United States
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Free

Please join CureDuchenne Cares for two days of free, informative sessions on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management. Hear from key opinion leaders from the Duchenne community.

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June 2018

Continuing Education | Duchenne: Current Understanding and Treatment – Philadelphia, PA

June 1 @ 8:30 am - 4:30 pm EDT
Sheraton Philadelphia University City Hotel, 3549 Chestnut St
Philadelphia, PA 77056 United States
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$130

This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.

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Family & Caregiver Workshop – Philadelphia, PA

June 2 @ 8:00 am - 3:30 pm EDT
Sheraton Philadelphia University City Hotel, 3549 Chestnut St
Philadelphia, PA 77056 United States
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Free

Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.

Find out more »

July 2018

NS Pharma’s Exon 53 Skipping Program Update

July 11 @ 1:00 pm - 2:00 pm PDT

Webinar details -Dr. Clemens and Lauren Morgenroth will review the phase 2 studies sponsored by NS Pharma about the investigational drug NS-065/NCNP-01. -They will describe the study design, study progress, and early results of the 201 Phase 2 trial. Meeting Title:  NS Pharma's Exon 53 Skipping Program Update Date & Time:  Wed, Jul 11, 2018, 1pm PDT / 4pm EDT Web / Phone Access Information: Toll-Free Dial-in Number: 866-519-2796 Participant Passcode: 811436 Register here:  https://cc.readytalk.com/r/bodcjgagh4f8&eom

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Update on Sarepta’s RNA-targeted technology platforms (PMO and PPMO)

July 25 @ 1:00 pm - 2:00 pm PDT

Webinar details Dr. Gilmore O’Neill, Chief Medical Officer of Sarepta Therapeutics, Inc, will give a scientific overview of Sarepta’s RNA-targeted exon skipping technologies, PMO and PPMO. Dr. O’Neill will highlight the PPMO technology, designed to potentially improve upon the levels of dystrophin produced by PMO-induced exon skipping, and to potentially lead to more efficient dosing for patients. In addition, Dr. O’Neill will discuss Sarepta’s enrolling clinical trial, 5051-101, the first-in-human Ph1 PPMO trial and its open label extension trial, 5051-102.…

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August 2018

DuchenneXchange Stacked logo

Join us for the Introduction to DuchenneXchange Webinar

August 7 @ 1:00 pm - 4:00 pm PDT

The Duchenne Community Has Embraced The DuchenneXchange! Learn how to connect with clinical trials, create your own “binder” of information that is relevant to you, form your own group to share knowledge and personal experiences, and more.

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