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September 2018
9th Annual Cruisin’ for a Cause – to Benefit CureDuchenne
Music - Door Prizes - Food - Goody Bags - Arts & Crafts Show - Silent Auction - Display/Model Car Contest - Custom Handmade Trophies // Entry fee is $10 // All proceeds got to Duschenne Muscular Dystrophy Registration 1:00p - 3:00p Show 3:00p - 5:30p Trophy Ceremony 5:30p
Find out more »Continuing Education | Duchenne: Current Understanding and Treatment – Nashville, TN
This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.
Find out more »Family & Caregiver Workshop – Nashville, TN
Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.
Find out more »October 2018
A Napa Night
Venue - A private home in Dedham, MA.
Address to be provided to confirmed guests.
Champagne & hors d’oeuvres upon arrival.
Two courses paired with The Mascot’s 3 Vintages 2011, 2012 & 2013.
Dessert paired with a complementary wine from Europe.
Continuing Education | Duchenne: Current Understanding and Treatment – Buffalo, NY
This course is ideal for physical therapists, occupational therapists, speech language pathologists, and others involved in the care of persons with Duchenne.
Find out more »Family & Caregiver Workshop – Buffalo, NY
Please join CureDuchenne Cares for a free, informative class on Duchenne muscular dystrophy, focused on educating parents and caregivers on the best standard of care for Duchenne management.
Find out more »All in for Duchenne 2018
The 6th Annual All in for Duchenne to benefit Braedan’s Bridge is happening in Sylvania, OH on October 13, 2018. This sports-themed event will feature games, raffles, silent auction, and dinner by Jed’s Barbeque and Brew!
Find out more »Blingo to CureDuchenne
BLINGO is a night of bingo, bling and celebration where Philadelphians come together to make a huge difference for hundreds of thousands of boys suffering from Duchenne.
Find out more »Dealing for Duchenne – San Antonio
Dealing for Duchenne - San Antonio, benefitting UT Southwestern and Dr. Eric Olson, is a “Night of Hope” that connects the San Antonio community to a global network of families, caretakers, doctors, researchers and philanthropic-minded people like you, to help find a cure for children and young-adults with Duchenne muscular dystrophy.
Find out more »November 2018
Napa in New England
Join us for an Extraordinary Evening Benefiting CureDuchenne Wine connoisseurs and epicureans across New England can now experience some of the finest wines from California’s Napa Valley, right in our own backyard. Cult wine brands, exquisite cuisine and unparalleled auction lots featured at Napa in New England will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience. During the Grand Tasting, guests are treated to coveted wines served alongside spectacular culinary creations…
Find out more »December 2018
Steroid Use in Duchenne: Expert Dialogue on Latest Data
Healthcare professionals, personal caregivers, and family members of those with Duchenne muscular dystrophy will have an opportunity to learn about new data and best practices for steroid use in Duchenne during a live broadcast webinar on Tuesday, December 11, at 7:00 PM ET. This free web broadcast, sponsored by CureDuchenne, will feature 3 physician experts and an experienced Duchenne parent/caregiver in dialogue. Participants will be able to ask and answer questions in the interactive format. Hosted by Emma Ciafaloni, MD,…
Find out more »January 2019
Family & Caregiver Session – Little Rock, AR
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President,CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families CureDuchenne 7:25 PM – 7:35 PM Let’s…
Find out more »Family & Caregiver Session – Atlanta, GA
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 12:00 PM – 12:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD, Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM – 1:25 PM Families Helping…
Find out more »Family & Caregiver Session – Indianapolis, IN
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families…
Find out more »Family & Caregiver Session – San Jose, CA
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Please submit only one registration form per group. For registration, click HERE. Agenda: 12:00 PM – 12:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Missy Dixon, Visiting…
Find out more »Continuing Education Course – Breckenridge, MN
Registration for just the course is $130. For more information and registration, click HERE. Course Schedule 8:00-8:30: Registration and sign in 8:30-9:30: General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30: Typical Progression and Client Presentation 10:30-10:45: Break 10:45-11:15: Concurrent Medical Interventions, Comorbidities 11:15-12:30: Evaluation and Intervention (Therapy and surgical) 12:30-1:30: Lunch 1:30-2:15: Exercise, Activity for Duchenne 2:15-3:15: Mobility Equipment with Demonstration 3:15-3:30: Break 3:30-4:30: Case Studies, extensive treatment plan development. 4:30: Post Test and Course Evaluations 4:30-5:00: CureDuchenne Cares…
Find out more »February 2019
Family & Caregiver Session – Irvine, CA
Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. For registration click HERE. Agenda: 12:00 PM – 12:05 PM Welcome and Introductions Eunice Miranda, Director of Special Events, CureDuchenne Cares 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM…
Find out more »Continuing Education Course – Raleigh, NC
Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course Schedule 8:00-8:30 Registration and sign in 8:30-9:30 (60 min) General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30 (60 min) Typical Progression and Client Presentation…
Find out more »Raleigh CureDuchenne Cares Workshop
Register here. Agenda: 8:00 AM Registration | Breakfast 9:00 AM – 12:00 PM Keynote Speaker: Edward C. Smith, MD, Duke University | Clinical Trials & Research Updates 12:00 PM – 12:45 PM Lunch | Pharma - Patient Advocacy Group Presentations 12:45 PM – 3:00 PM Physical Therapy | Family Support | Fundraising
Find out more »Love Cures
Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips away a patient’s ability to run, walk, hug and, eventually, breathe. The initial diagnosis was isolating for both families, as they didn’t know anyone else…
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