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April 2019

CureDuchenne Cares Workshop – Chicago, IL

April 27 @ 8:00 am - 4:30 pm CDT
JW Marriot Chicago, 151 W. Adams St.
Chicago, IL 60603 United States
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A photograph of Chicago

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.

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CHICAGO: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

April 27 @ 8:30 am - 4:30 pm PDT
JW Marriott, 51 W Adams Street
Chicago, IL 60603 United States
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UNDERSTANDING DUCHENNE Duchenne is the most common and fatal form of muscular dystrophy. It is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day. Get Informed on the Standards of Duchenne Care Join us on April 27th to get the most current information on Duchenne muscular dystrophy. Course objectives include: Demonstrate a depth of Duchenne knowledge. Identify the…

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May 2019

CureDuchenne Cares Workshop – Albuquerque, NM

May 4 @ 8:00 am - 4:30 pm MST
Hotel Albuquerque at Old Town, 800 Rio Grande Blvd.
Albuquerque, NM 87104 United States
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Cure Duchenne, Albuquerque.

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.

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CureDuchenne Cares Session – Palo Alto, CA

May 11 @ 6:30 pm - 8:30 pm PDT
MacArthur Park, 27 University Avenue
Palo Alto, CA 94301 United States
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Cure Duchenne, Palo Alto, Session

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Napa in Nantucket

May 17 @ 4:00 pm - 6:00 pm EDT
Nantucket Culinary Center, 22 Federal Street
Nantucket, MA 02554 United States
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Please join us for an exclusive opportunity to a private wine dinner hosted by Napa Valley's OVID. Ticket includes four course culinary tour presented by Chef Greg & Joy Margolis paired with highly sought after OVID wines. Space is limited to 14 guests.

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CureDuchenne Cares Session – Fresno, CA

May 25 @ 6:30 pm - 8:30 pm PDT
Fleming’s, 639 E. Shaw Ave
Fresno, CA United States
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CureDuchenne, Fresno

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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June 2019

CureDuchenne Cares Workshop – Detroit, MI

June 1 @ 8:00 am - 4:30 pm EDT
Detroit Renaissance at the Renaissance Center, 400 Renaissance Drive
Detroit, MI 48243 United States
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CureDuchenne, Detroit, MI- Event's Workshop

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.

Find out more »

DETROIT: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

June 1 @ 8:30 am - 4:30 pm EDT
Detroit Renaissance at the Renaissance Center, 400 Renaissance Drive
Detroit, MI 48243 United States
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CureDuchenne, Detroit

UNDERSTANDING DUCHENNE
The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.

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CureDuchenne Cares Session – San Diego, CA

June 8 @ 6:30 pm - 8:30 pm PDT
True Food Kitchen, 7007 Friars Rd. Suite 394
San Diego, CA 92108 United States
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Cure Duchenne, Sand Diego. Session

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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PHOENIX: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers

June 29 @ 8:30 am - 4:30 pm MST
Cohen Conference Center – located in the Rosenburg Building, 1920 East Cambridge Avenue
Phoenix, AZ 85006 United States
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CureDuchenne, Phoenix

UNDERSTANDING DUCHENNE
The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.

Find out more »

August 2019

CureDuchenne Cares Session – Birmingham, AL

August 24 @ 6:30 pm - 8:30 pm PDT
The Fish Market, Southside 612 22nd St S.
Birmingham, AL 35233 United States
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Birmingham Event

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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September 2019

9th Annual Getzlaf Golf Shootout

September 6 - September 7
Monarch Beach Golf Links, 50 Monarch Beach Resort North
Dana Point, CA 92629 United States
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CureDuchenne, Getzlaf

The 9th Annual Getzlaf Golf Shootout – hosted by Ryan Getzlaf, captain of the Anaheim Ducks – is a two-day charity golf event that brings together athletes, celebrities and community leaders in support of CureDuchenne.

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Duchenne Clinical Trials & Drug Development

September 11 @ 2:30 pm - 3:45 pm PDT
CureDuchenne, 1400 Quail St, Ste 110
Newport Beach, CA 92660 United States
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Please join us as 4 experts share their knowledge about drug development pertaining to the newest gene therapies: - Moderator: Sharon Hesterlee, PhD, Executive VP, Portfolio Development & Head of Neuromuscular Programs, Asklepios Biopharmaceuticals (AskBio) - Module 1: Peter Marks, MD, PhD, Director, Center for Biologics Research, Food and Drug Administration (FDA) - Module 2: Petra Kaufmann, MD, Vice President, Research and Development, Translational Medicine, AveXis, Inc. - Module 3: Barry Byrne, MD, PhD, Director, UF Powell Gene Therapy Center,…

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Free Webinar: Italfarmaco Givinostat Development Program Update

September 12 @ 9:00 am - 10:00 am PDT
CureDuchenne, 1400 Quail St, Ste 110
Newport Beach, CA 92660 United States
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September 12th Webinar

Please join us on Thursday, September 12, 2019, from 9:00 AM to 10:00 AM Pacific Time, to get updates on Italfarmaco’s Givinostat clinical trial, which is currently recruiting ambulatory boys who are on steroid therapy. The webinar will review the Italfarmaco Givinostat development program for Duchenne and Becker Muscular Dystrophy. Content that will be covered, includes: Updates from the EPIDYS Study, a phase 3 clinical trial of Givinostat in ambulatory boys with DMD. Data from Italfarmaco’s long term studies of…

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Honolulu CureDuchenne Cares Workshop

September 14 @ 8:00 am - 4:30 pm HST
Sheraton Waikiki, 2255 Kalakaua Ave.
Honolulu, HI 96815 United States
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A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.

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Calves to Cure DMD

September 19 @ 8:00 am - 5:00 pm PDT
Billings Livestock Commission, 2443 N Frontage Rd
Billings, MT 59101 United States
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Calves to Cure

Grant Heaton, a 5 year old from Worden, MT was diagnosed with Duchenne muscular dystrophy, a rare disease of which there is no cure. Join the Heaton Family in raising money for CureDuchenne on Thursday, September 19th at 1:00 PM MDT at Billings Livestock Sales. Sellers can bring in a calf, yearling, etc. and donate either all of their check for that animal, a set dollar amount or a percentage of the sale price. Can’t make the sale but still…

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CureDuchenne Cares Session – Milwaukee, WI

September 21 @ 6:30 pm - 8:30 pm PDT
The Rumpus Room – A Bartolotta Gastropub, 1030 N Water St.
Milwaukee, WI 53202 United States
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Milwaukee Event

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Richmond CureDuchenne Cares Workshop

September 28 @ 8:00 am - 4:30 pm EDT
The Westin Richmond, 6631 W. Broad St.
Richmond, VA 23230 United States
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A full day event, the CureDuchenne Cares Workshop is designed to empower, engage and link families with other families navigating the Duchenne journey.

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October 2019

CureDuchenne Futures

October 11 - October 13
Disneyland Hotel, 1150 Magic Way
Anaheim, CA 92802 United States
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CureDuchenne holds the comprehensive two-day conference “Futures” once a year, and is free for all Duchenne patients, families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, this conference is designed to provide Duchenne families with the information, support and motivation they need to live the best and longest life possible. Click here to learn more.

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Dealing for Duchenne 2019

October 19 @ 6:00 pm - October 20 @ 12:00 am PDT
Pedrotti’s North Wind Ranch, 13715 Fm 1560 N
Helotes, Texas 78023
Dealing for Duchenne

Join us for our 4th Annual Dealing for Duchenne – San Antonio benefitting CureDuchenne on Saturday, October 19th at Pedrotti’s North Wind Ranch. For more information and registration, click HERE.

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