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February 2019
Raleigh CureDuchenne Cares Workshop
Register here. Agenda: 8:00 AM Registration | Breakfast 9:00 AM – 12:00 PM Keynote Speaker: Edward C. Smith, MD, Duke University | Clinical Trials & Research Updates 12:00 PM – 12:45 PM Lunch | Pharma - Patient Advocacy Group Presentations 12:45 PM – 3:00 PM Physical Therapy | Family Support | Fundraising
Find out more »Love Cures
Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips away a patient’s ability to run, walk, hug and, eventually, breathe. The initial diagnosis was isolating for both families, as they didn’t know anyone else…
Find out more »Portland CureDuchenne Cares Workshop
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Travel assistance is provided to families traveling more than 100 miles and child care is available on site.
Find out more »March 2019
Napa in Newport
Wine connoisseurs and epicureans: Indulge in Napa Valley's premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular night of wining and dining, and culminates in a spirited auction. With this extraordinary evening’s proceeds going to CureDuchenne — the nation’s leading Duchenne nonprofit…
Find out more »Family & Caregiver Session – Oklahoma City, OK
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »Family & Caregiver Session – Louisville, KY
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »Family & Caregiver Session – Columbus, OH
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »CureDuchenne Cares Workshop – Columbia, MO
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.
Find out more »CureDuchenne Cares Session – Los Angeles
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »April 2019
Champions to CureDuchenne
Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and raises vital funds for gene editing research and CRISPR/Cas9 technology that will be transformative for Duchenne patients. Through the generous support of the Austin Community, Champions to CureDuchenne has funded more than $1.7M in research to…
Find out more »CureDuchenne Cares Workshop – Chicago, IL
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.
Find out more »CHICAGO: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers
UNDERSTANDING DUCHENNE Duchenne is the most common and fatal form of muscular dystrophy. It is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day. Get Informed on the Standards of Duchenne Care Join us on April 27th to get the most current information on Duchenne muscular dystrophy. Course objectives include: Demonstrate a depth of Duchenne knowledge. Identify the…
Find out more »May 2019
CureDuchenne Cares Workshop – Albuquerque, NM
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Child care is available on site.
Find out more »CureDuchenne Cares Session – Palo Alto, CA
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »Napa in Nantucket
Please join us for an exclusive opportunity to a private wine dinner hosted by Napa Valley's OVID. Ticket includes four course culinary tour presented by Chef Greg & Joy Margolis paired with highly sought after OVID wines. Space is limited to 14 guests.
Find out more »CureDuchenne Cares Session – Fresno, CA
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »June 2019
CureDuchenne Cares Workshop – Detroit, MI
These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.
Find out more »DETROIT: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers
UNDERSTANDING DUCHENNE
The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.
CureDuchenne Cares Session – San Diego, CA
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.
Find out more »PHOENIX: CONTINUING EDUCATION PTs, OTs, SLPs, Nurses and Healthcare Providers
UNDERSTANDING DUCHENNE
The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.