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October 2018

Dealing for Duchenne – San Antonio

October 20, 2018 @ 6:00 pm - 11:00 pm CDT
Pedrotti’s North Wind Ranch, 13715 Fm 1560 N
Helotes, Texas 78023
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Dealing for Duchenne - San Antonio, benefitting UT Southwestern and Dr. Eric Olson, is a “Night of Hope” that connects the San Antonio community to a global network of families, caretakers, doctors, researchers and philanthropic-minded people like you, to help find a cure for children and young-adults with Duchenne muscular dystrophy.

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November 2018

Napa in New England

November 10, 2018 @ 7:00 am - 10:00 pm PST
Bond @ The Langham, 250 Franklin St
Boston, MA 02110 United States
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Join us for an Extraordinary Evening Benefiting CureDuchenne Wine connoisseurs and epicureans across New England can now experience some of the finest wines from California’s Napa Valley, right in our own backyard.  Cult wine brands, exquisite cuisine and unparalleled auction lots featured at Napa in New England will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience. During the Grand Tasting, guests are treated to coveted wines served alongside spectacular culinary creations…

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December 2018

Steroid Use in Duchenne: Expert Dialogue on Latest Data

December 11, 2018 @ 7:00 pm - 8:00 pm EST

Healthcare professionals, personal caregivers, and family members of those with Duchenne muscular dystrophy will have an opportunity to learn about new data and best practices for steroid use in Duchenne during a live broadcast webinar on Tuesday, December 11, at 7:00 PM ET. This free web broadcast, sponsored by CureDuchenne, will feature 3 physician experts and an experienced Duchenne parent/caregiver in dialogue. Participants will be able to ask and answer questions in the interactive format. Hosted by Emma Ciafaloni, MD,…

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January 2019

Family & Caregiver Session – Little Rock, AR

January 11 @ 6:00 pm - 8:00 pm CST
Samantha’s Tap Room & Grill, 322 Main St
Little Rock, AR 72201 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda:  6:00 PM – 6:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President,CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families CureDuchenne 7:25 PM – 7:35 PM Let’s…

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Family & Caregiver Session – Atlanta, GA

January 12 @ 12:00 pm - 2:00 pm EST
Piastra, 45 West Park Square
Marietta, GA 30060 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda:   12:00 PM – 12:05 PM Welcome and Introductions Bill Abernethy, Senior Vice President, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD, Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM – 1:25 PM Families Helping…

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Family & Caregiver Session – Indianapolis, IN

January 18 @ 6:00 pm - 8:00 pm CST
Meridian Restaurant & Bar, 5694 N. Meridian St.
Indianapolis, IN 46208 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Agenda: 6:00 PM – 6:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 6:05 PM – 6:20 PM CureDuchenne Overview CureDuchenne 6:20 PM – 7:05 PM Clinical and Research Presentation Joline Dalton, Genetic Counselor, Univ of Minnesota 7:05 PM – 7:25 PM Families Helping Families…

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Family & Caregiver Session – San Jose, CA

January 19 @ 12:00 pm - 2:00 pm PST
Il Fornaio, 302 South Market Street
San Jose, CA 95113 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. Please submit only one registration form per group. For registration, click HERE. Agenda:  12:00 PM – 12:05 PM Welcome and Introductions Tiffany Cook, MS, CCC-SLP, Family Resource Manager, CureDuchenne Kylee Groon, Community Engagement Manager, CureDuchenne 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Missy Dixon, Visiting…

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Continuing Education Course – Breckenridge, MN

January 25 @ 8:30 am - 4:30 pm CST
Orthopedic & Sports Physical Therapy, Inc, 430 5th Street N.
Breckenridge, MN 56520 United States
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Registration for just the course is $130. For more information and registration, click HERE. Course Schedule 8:00-8:30: Registration and sign in 8:30-9:30: General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30: Typical Progression and Client Presentation 10:30-10:45: Break 10:45-11:15: Concurrent Medical Interventions, Comorbidities 11:15-12:30: Evaluation and Intervention  (Therapy and surgical) 12:30-1:30: Lunch 1:30-2:15: Exercise, Activity for Duchenne 2:15-3:15: Mobility Equipment with Demonstration 3:15-3:30: Break 3:30-4:30: Case Studies, extensive treatment plan development. 4:30: Post Test and Course Evaluations 4:30-5:00: CureDuchenne Cares…

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February 2019

Family & Caregiver Session – Irvine, CA

February 2 @ 12:00 pm - 2:00 pm PST
TAPS Fish House & Brewery, 13390 Jamboree Rd. (In the Market Place)
Irvine, CA 92602 United States
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Join us for insightful presentations from clinicians and experts as well as an opportunity to connect with other members of the Duchenne community. Free event. Meal included. For registration click HERE. Agenda:  12:00 PM – 12:05 PM Welcome and Introductions Eunice Miranda, Director of Special Events, CureDuchenne Cares 12:05 PM – 12:20 PM CureDuchenne Overview CureDuchenne 12:20 PM – 1:05 PM Clinical and Research Presentation Paige Lembeck, PhD Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center 1:05 PM…

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Continuing Education Course – Raleigh, NC

February 8 @ 8:30 am - 4:30 pm EST
Renaissance Raleigh North Hills Hotel, 4100 MAIN at NORTH HILLS St.
Raleigh, NC 27609 United States
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Early registration for just the course is $130 (1/25/19 or before), while early registration for the course with the   component is $180. Regular registration for just the course is $165 (1/26/19 or after), while regular registration for the course with the Cares PT certification component is $215. For more information and registration, click HERE. Course Schedule 8:00-8:30 Registration and sign in 8:30-9:30 (60 min) General Introduction to Duchenne: Incidence, Etiology, Diagnosis, Pathology 9:30-10:30 (60 min) Typical Progression and Client Presentation…

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Raleigh CureDuchenne Cares Workshop

February 9 @ 8:00 am - 3:00 pm EST
Renaissance Raleigh North Hills Hotel, 4100 MAIN at NORTH HILLS St.
Raleigh, NC 27609 United States
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Register here. Agenda:  8:00 AM Registration | Breakfast  9:00 AM – 12:00 PM Keynote Speaker: Edward C. Smith, MD, Duke University | Clinical Trials & Research Updates  12:00 PM – 12:45 PM Lunch | Pharma - Patient Advocacy Group Presentations 12:45 PM – 3:00 PM Physical Therapy | Family Support | Fundraising

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Love Cures

February 16 @ 6:00 pm - 10:00 pm PST
Del Sur Ranch House, 15455 Paseo Del Sur
San Diego, CA 92127 United States
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Love Cures is inspired by the Etienne and Filenko families. From worlds apart, these families settled in San Diego and, by circumstance, connected through the love of their young sons, Yannick, 6, and Marko, 7. Both boys were diagnosed with a rare condition called Duchenne muscular dystrophy, a progressive muscle wasting disease that slowly strips away a patient’s ability to run, walk, hug and, eventually, breathe. The initial diagnosis was isolating for both families, as they didn’t know anyone else…

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Portland CureDuchenne Cares Workshop

February 23 @ 8:00 am - 3:00 pm PST
Portland Marriott Downtown Waterfront, 1401 SW Naito Parkway
Portland, OR 97201 United States
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These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Travel assistance is provided to families traveling more than 100 miles and child care is available on site.

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March 2019

Napa in Newport

March 2 @ 5:00 pm - 10:00 pm PST
Monarch Beach Resort, One Monarch Beach Resort
Dana Point, CA 92629 United States
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Wine connoisseurs and epicureans: Indulge in Napa Valley's premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular night of wining and dining, and culminates in a spirited auction. With this extraordinary evening’s proceeds going to CureDuchenne — the nation’s leading Duchenne nonprofit…

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Family & Caregiver Session – Oklahoma City, OK

March 2 @ 6:30 pm - 8:30 pm CST
Whiskey Cake, Penn Square Mall, 1845 NW Expressway
Oklahoma City, OK 73118 United States
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Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Family & Caregiver Session – Louisville, KY

March 2 @ 6:30 pm - 8:30 pm CST
Whiskey Cake, Penn Square Mall, 1845 NW Expressway
Oklahoma City, OK 73118 United States
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Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Family & Caregiver Session – Columbus, OH

March 9 @ 6:30 pm - 8:30 pm CST
OK United States + Google Map
Image of Columbus, OH

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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CureDuchenne Cares Workshop – Columbia, MO

March 16 @ 8:00 am - 4:30 pm CDT
Holiday Inn Executive Center, 2200 I-70 Drive SW
Columbia, MO 65203 United States
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A photograph of Columbia

These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care.

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CureDuchenne Cares Session – Los Angeles

March 23 @ 6:30 pm - 8:30 pm PDT
Courtyard Los Angeles L.A. Live, 901 West Olympic Blvd.
Los Angeles, CA 90015 United States
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A photograph of Los Angeles

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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April 2019

Champions to CureDuchenne

April 13 @ 6:00 pm - 11:00 pm CDT
The University of Texas Golf Club, 2200 University Club Drive
Austin, TX 78732 United States
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Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and raises vital funds for gene editing research and CRISPR/Cas9 technology that will be transformative for Duchenne patients. Through the generous support of the Austin Community, Champions to CureDuchenne has funded more than $1.7M in research to…

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