Webinar Archives - CureDuchenne
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October 2016

SareptAssist Webinar

October 11, 2016 @ 10:00 am - 11:00 am PDT

An overview of Sarepta's patient support program, SareptAssist.

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Latest Duplication Research Update for Duchenne Webinar

October 12, 2016 @ 1:00 pm - 2:00 pm PDT

Learn the most recent status of Dr. Flanigan’s duplication mutation research.

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November 2016

Questions Regarding Deflazacort Access and Regulatory Status

November 1, 2016 @ 11:00 am - 12:00 pm PDT

This informational webinar will highlight the regulatory process to date, update the community on Marathon Pharmaceutical’s Expanded Access Program (EAP) for deflazacort and discuss what a potential FDA approval of deflazacort would mean in terms of access to the drug in the United States. Some of those who currently import versions of deflazacort from abroad may have recently received an update from their distributor with initial details, which we will discuss along with steps current deflazacort patients might choose to…

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March 2018

Free Webinar: Santhera Pharmaceuticals BreatheDMD U.S. Expanded Access Program

March 7 @ 12:00 pm - 1:00 pm PST

Join us on Wednesday, March 7 at 12PM (PST) for a free webinar on Santhera Pharmaceuticals BreatheDMD U.S. Expanded Access Program.

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July 2018

NS Pharma’s Exon 53 Skipping Program Update

July 11 @ 1:00 pm - 2:00 pm PDT

Webinar details -Dr. Clemens and Lauren Morgenroth will review the phase 2 studies sponsored by NS Pharma about the investigational drug NS-065/NCNP-01. -They will describe the study design, study progress, and early results of the 201 Phase 2 trial. Meeting Title:  NS Pharma's Exon 53 Skipping Program Update Date & Time:  Wed, Jul 11, 2018, 1pm PDT / 4pm EDT Web / Phone Access Information: Toll-Free Dial-in Number: 866-519-2796 Participant Passcode: 811436 Register here:  https://cc.readytalk.com/r/bodcjgagh4f8&eom

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Update on Sarepta’s RNA-targeted technology platforms (PMO and PPMO)

July 25 @ 1:00 pm - 2:00 pm PDT

Webinar details Dr. Gilmore O’Neill, Chief Medical Officer of Sarepta Therapeutics, Inc, will give a scientific overview of Sarepta’s RNA-targeted exon skipping technologies, PMO and PPMO. Dr. O’Neill will highlight the PPMO technology, designed to potentially improve upon the levels of dystrophin produced by PMO-induced exon skipping, and to potentially lead to more efficient dosing for patients. In addition, Dr. O’Neill will discuss Sarepta’s enrolling clinical trial, 5051-101, the first-in-human Ph1 PPMO trial and its open label extension trial, 5051-102.…

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August 2018

DuchenneXchange Stacked logo

Join us for the Introduction to DuchenneXchange Webinar

August 7 @ 1:00 pm - 4:00 pm PDT

The Duchenne Community Has Embraced The DuchenneXchange! Learn how to connect with clinical trials, create your own “binder” of information that is relevant to you, form your own group to share knowledge and personal experiences, and more.

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December 2018

Steroid Use in Duchenne: Expert Dialogue on Latest Data

December 11 @ 7:00 pm - 8:00 pm EST

Healthcare professionals, personal caregivers, and family members of those with Duchenne muscular dystrophy will have an opportunity to learn about new data and best practices for steroid use in Duchenne during a live broadcast webinar on Tuesday, December 11, at 7:00 PM ET. This free web broadcast, sponsored by CureDuchenne, will feature 3 physician experts and an experienced Duchenne parent/caregiver in dialogue. Participants will be able to ask and answer questions in the interactive format. Hosted by Emma Ciafaloni, MD,…

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