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The most common and fatal form of muscular dystrophy, Duchenne is a progressive, muscle-wasting disease for which there is no known cure. But through advancements in medicine, physical therapy and research, healthcare providers are improving the lives of Duchenne patients every day.
The 9th Annual Getzlaf Golf Shootout – hosted by Ryan Getzlaf, captain of the Anaheim Ducks – is a two-day charity golf event that brings together athletes, celebrities and community leaders in support of CureDuchenne.Find out more »
CureDuchenne holds the comprehensive two-day conference “Futures” once a year, and is free for all Duchenne patients, families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, this conference is designed to provide Duchenne families with the information, support and motivation they need to live the best and longest life possible. Click here to learn more.Find out more »
Wine connoisseurs and epicureans across New England can now experience Napa Valley’s finest wines, right in historic downtown Boston. Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in New England will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience.Find out more »
Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.Find out more »
Wine connoisseurs and epicureans across Pennsylvania, get ready to experience Napa Valley’s finest wines as Blingo introduces Napa in Philadelphia! Featuring cult wine brands, exquisite cuisine and unparalleled auction lots, Napa in Philadelphia will transport you to a world that unites renowned vintners and wine enthusiasts for a truly unforgettable experience. Click here to learn more.Find out more »