Featured Event Archives - CureDuchenne
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March 2019

Napa in Newport

March 2 @ 5:00 pm - 10:00 pm PST
Monarch Beach Resort, One Monarch Beach Resort
Dana Point, CA 92629 United States
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Wine connoisseurs and epicureans: Indulge in Napa Valley's premier wines at CureDuchenne’s Napa in Newport event. From cult wine brands to exquisite cuisine to unparalleled auction lots, Napa in Newport brings together renowned vintners and wine enthusiasts for a truly unforgettable evening. Featuring coveted wines served alongside perfectly paired culinary creations, the Grand Tasting offers a spectacular night of wining and dining, and culminates in a spirited auction. With this extraordinary evening’s proceeds going to CureDuchenne — the nation’s leading Duchenne nonprofit…

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Family & Caregiver Session – Oklahoma City, OK

March 2 @ 6:30 pm - 8:30 pm CST
Whiskey Cake, Penn Square Mall, 1845 NW Expressway
Oklahoma City, OK 73118 United States
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Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Family & Caregiver Session – Louisville, KY

March 2 @ 6:30 pm - 8:30 pm CST
Whiskey Cake, Penn Square Mall, 1845 NW Expressway
Oklahoma City, OK 73118 United States
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Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Family & Caregiver Session – Columbus, OH

March 9 @ 6:30 pm - 8:30 pm CST
OK United States + Google Map

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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Columbia CureDuchenne Cares Workshop

March 16 @ 8:00 am - 4:30 pm PDT
Holiday Inn Executive Center, 2200 I-70 Drive SW
Columbia, MO 65203 United States
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These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Travel assistance is provided to families traveling more than 100 miles and child care is available on site.

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Family & Caregiver Session – Los Angeles, CA

March 23 @ 6:30 pm - 8:30 pm CDT
OK United States + Google Map

Sessions are informative two-hour events open to Duchenne patients and caregivers. The events address a variety of topics focused on disease management— including best standards of care — and provide opportunities for insightful discussion with clinicians and experts on topics not typically covered during clinic visits. Sessions are made available to the Duchenne community at no cost.

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April 2019

Champions to CureDuchenne

April 13 @ 6:00 pm - 11:00 pm CDT
The University of Texas Golf Club, 2200 University Club Drive
Austin, TX 78732 United States
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Champions to CureDuchenne is an annual tradition that brings together Austin’s finest for a spectacular evening under the stars. The event features gourmet food, cocktails, casino games, and live and silent auctions for a night of fun and purpose! The event benefits CureDuchenne and raises vital funds for gene editing research and CRISPR/Cas9 technology that will be transformative for Duchenne patients. Through the generous support of the Austin Community, Champions to CureDuchenne has funded more than $1.7M in research to…

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Chicago CureDuchenne Cares Workshop

April 27 @ 8:00 am - 4:30 pm PDT
JW Marriot Chicago, 2200 I-70 Drive SW151 W. Adams St.
Chicago, IL 60603 United States
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These one-day events provide an immersive education experience, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. Caregivers learn about physical therapy, get valuable updates about clinical trials and learn about best practices in Duchenne care. Travel assistance is provided to families traveling more than 100 miles and child care is available on site.

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October 2019

CureDuchenne Futures

October 11 - October 13
Disneyland Hotel, 1150 Magic Way
Anaheim, CA 92802 United States
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CureDuchenne holds the comprehensive two-day conference “Futures” once a year, and is free for all Duchenne patients, families and caregivers. With a focus on working towards positive futures for all in the Duchenne community, this conference is designed to provide Duchenne families with the information, support and motivation they need to live the best and longest life possible. Click here to learn more.

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