Cocktail Talk with CureDuchenne
Join us for a virtual cocktail with families and friends from our Duchenne community! The purpose of a Cocktail Talk is to create a supportive and "safe" space to talk […]
CAREGIVER DINNER SESSION | Long Beach, CA
La Traviata | Join us for a casual and complimentary dinner. Let's talk about your family's story, health and wellness, coping and overall disease management. 301 N Cedar Ave, Long Beach, […]
WORKSHOP | Raleigh, NC
The Westin Raleigh-Durham Airport | Join us for a full-day event focused on improving the quality of life for individuals living with Duchenne. PRESENTATIONS INCLUDE: Standards of Care | Family […]
WORKSHOP | Atlanta, GA
Atlanta Marriott Buckhead Hotel & Conference Center | Join us for a full-day event focused on improving the quality of life for individuals living with Duchenne. PRESENTATIONS INCLUDE: Standards of […]
WEBINAR: Advancing the Promise of FORCE to Deliver for Patients
Dyne Therapeutics will present initial clinical data, first released on January 3rd, 2024, from the DELIVER trial of DYNE-251 in patients with Duchenne muscular dystrophy (DMD) who are amenable to […]
Ask Me Anything: Fractures and Fatty Embolism Syndrome (FES) with Dr. Brenda Wong
Ask Me Anything: Emergency Care - FES (fatty embolism syndrome) with Dr. Brenda Wong 9:00-10:00AM PST 12:00-1:00PM EST This series is an interactive Q&A between families in the Duchenne community […]
CAREGIVER DINNER SESSION | Charlotte, NC
Eddie V's | Join us for a casual and complimentary dinner. Let's talk about your family's story, health and wellness, coping and overall disease management. 101 S Tryon Street, […]
WORKSHOP | Baltimore, MD
Baltimore Marriott Inner Harbor at Camden Yards | Join us for a full-day event focused on improving the quality of life for individuals living with Duchenne. PRESENTATIONS INCLUDE: Standards of […]
Ask Me Anything: Traveling with Duchenne with Marissa Penrod, Adam Malone, and Alan Chaulet
Ask Me Anything: Traveling with Duchenne with Marissa Penrod 10:00AM PST 1:00PM EST Are you ready for an exciting and informative conversation about traveling with Duchenne? Join us as we […]