Steroid Use in Duchenne: Expert Dialogue on Latest Data
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Steroid Use in Duchenne: Expert Dialogue on Latest Data

December 11, 2018 @ 7:00 pm - 8:00 pm EST

Healthcare professionals, personal caregivers, and family members of those with Duchenne muscular dystrophy will have an opportunity to learn about new data and best practices for steroid use in Duchenne during a live broadcast webinar on Tuesday, December 11, at 7:00 PM ET.

This free web broadcast, sponsored by CureDuchenne, will feature 3 physician experts and an experienced Duchenne parent/caregiver in dialogue. Participants will be able to ask and answer questions in the interactive format.

Hosted by Emma Ciafaloni, MD, University of Rochester Medical Center, the webinar will feature a discussion of the latest data in steroid use, including questions about the standard of care and managing side effects. Interactive polling questions will appear throughout the program, and the webinar will conclude with a live Q&A session.

The program panel:

  • Emma Ciafaloni, MD: Professor of Neurology and Pediatrics, Director of Pediatric Neuromuscular Medicine, and Program Director, Neuromuscular Medicine Fellowship Program, University of Rochester, Rochester, NY
  • John Brandsema, MD: Assistant Professor of Clinical Neurology at Perelman School of Medicine, University of Pennsylvania; Pediatric Neurologist and Neuromuscular Section Head, Children’s Hospital of Philadelphia, Philadelphia, PA
  • Katherine Mathews, MD: Vice Chair for Clinical Investigation, Department of Pediatrics,University of Iowa Children’s Hospital; Director of the Muscular Dystrophy Clinic, Director of the Iowa Neuromuscular Program, and Professor in the Departments of Pediatrics and Neurology, University of Iowa Carver College of Medicine, Iowa City, IA
  • Susan Turner, RN: Parent and caregiver to son who has Duchenne muscular dystrophy; per diem medical-surgical nurse, Bertrand Chaffee Hospital, Springville, NY;  per diem local school nurse, Pioneer Central School District, Yorkshire, NY


To register:

Registration link:

Audio will be available through speakers; however, participants may also dial in

Dial-in info:  (866) 740-1260

Access Code: 4049387#


  • 7:00 pm - 8:00 pm