Three Duchenne Families.
One $500,000 Fundraising Match!

With your help, we can reach our year end
fundraising goal of raising $1 million!

We are beyond thrilled to announce that three Duchenne families from across the country have committed half a million dollars to match what CureDuchenne raises in our year-end fundraising efforts!

These families are partnering with CureDuchenne to help further our 2019 funding projects into research that will ensure effective drugs are available to all Duchenne boys and young men — regardless of the progress of their disease.

Today, there is hope for our boys. This year alone, we witnessed substantial gains in our mission to cure Duchenne, with published research by two of our partners. Dr. Eric Olson and his team at Exonics, a CRISPR/Cas9 gene editing company that CureDuchenne helped form, published data showing how a genetic correction of the dystrophin gene led to an increase in dystrophin by 92% in the heart of canines with Duchenne. Sarepta Therapeutics, another biotech partner we contributed to very early, published news of up to 96% increase in mini-dystrophin in four Duchenne boys dosed in its gene therapy clinical trial.

We now have a clear roadmap for how to cure Duchenne — we are in the final home stretch. With a goal to raise $1 million by December 31st, we kindly ask once again for your support to help us meet this objective and accelerate the science to save this generation of boys and young men.

We are dedicated to supporting next generation therapies that will dramatically increase the effectiveness — and truly lead to a cure.  And with your help, we’ll continue making strides in Duchenne care, keeping our boys out of wheelchairs and giving them the lives they were intended to live – to graduate from college, to contribute to their communities, to fall in love and to have children of their own.

Gratefully,

Debra and Paul Miller

Please join us in celebrating the Duchenne families who have entrusted CureDuchenne to find a cure and save this generation of boys with Duchenne muscular dystrophy!

Rick and Leila Ginder, Gainesville, FL

Rick, Lelia, Lee and Dale Ginder are with us in the race to help save their sons. Dale is now 16 and is in the rapid decline stage of Duchenne. From all appearances, he’s a happy, normal teenage boy. Dale is doing great in school and likes playing Fortnight with his friends online when he’s not doing homework. Dale’s older brother, Lee, does not have Duchenne and is attending his Freshman year at the University of South Carolina. The Ginders are supporting CureDuchenne, because, “CureDuchenne does what none of us can do alone… The pooling of our donations allows us to get the interest of companies that can make a difference.”

Marty and Geri Karlin, Naperville, IL

Marty and Geri founded Rally for Ryan — a Duchenne nonprofit —a year after the youngest of their four children, Ryan, was diagnosed at the age of 5. Through their own fundraising programs, they have supported promising research to fund a cure for almost ten years. When they aren’t fundraising, the Karlins can be found at Black Hawk games and enjoying time with friends. Now 16 years old, Ryan just recently started using a wheelchair.

Terry and Sonya Marlin, Nashville, TN

The Marlins are the founders of FightDMD, a Duchenne advocacy organization they created a year after their two sons were diagnosed at the same time — when they were 5 and 2 years old. Jonah is now 14 and Emmory is 12. Both of the Marlin boys lost ambulation at the age of 8. While traveling can be difficult with two kids in wheelchairs, when the Marlins aren’t holding celebrity golf tournaments and other fundraising events, they’re traveling the world together.

CureDuchenne  | +1 949-872-2552  |  info@cureduchenne.org

CureDuchenne is a 501c3 registered tax-exempt nonprofit organization. Federal Tax ID: #20-0299958