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DMD and Post-traumatic Stress
This resource presents information on how to cope with mental heath issues like anxiety and PTSD after a medical emergency.
Video
DMD Care Coordination
This resources provides a introduction to the common multidisciplinary care team for Duchenne and their individual functions, as well as tips on coordinating this team-based approach.
John Brandsema, MD
Child Neurologist and Neuromuscular Section Head
Children’s Hospital of Philadelphia
Video
DMD Clinical Trials: An Overview
This resource presents information on the clinical trial process, common clinical trial terms, updated trial processes due to telehealth, and more.
Video
DMD Genetics and Your Family
This resource presents information on genetic carrier health, carrier testing options and resources, family planning education, and carrier burden information.
Kimberly Nugent, CGC
Certified Genetic Counselor
Children's Hospital of San Antonio, Baylor College of Medicine
Video
Duchenne Muscular Dystrophy Emergency Information for ED Staff
This resource offers information for Emergency Medical Services professionals about the specialized aspects of emergency care for those with Duchenne.
CureDuchenne
Edgewise Therapeutics
Edgewise Therapeutics Industry Presentation
Edgewise Therapeutics is a clinical-stage biopharmaceutical company focused on creating novel precision medicines for the treatment of rare muscle disorders. Our intimate knowledge of integrated muscle physiology at a whole-body level allows us to develop innovative solutions for patients with muscle disease where significant unmet medical need exists. By protecting and improving muscle health, our goal is to dramatically enhance the lives of people living with progressive muscle disorders.
Video
Emergency Care
This resource presents information on emergency care guidelines for individuals with Duchenne, and tips on how to communicate with emergency care providers in the event of an urgent hospital visit.
Stefan Malin, MD, MS
Pediatric Critical Care Fellow
Riley Hospital for Children at IU Health
Video
Emergency Care Considerations for Individuals Living with Duchenne
This resource offers information for parents, caregivers and individuals with Duchenne about the specialized aspects of emergency care for those with Duchenne.
CureDuchenne
Estándares Nutricionales para el cuidado de La Distrofia Muscular de Duchenne
Esta presentación se centra en las pautas nutricionales para las personas con distrofia muscular de Duchenne.
Lucia Briceno MS, RDN, CSP, CNSC
Dietista Nutricionista Registrada
Children's Hospital of Los Angeles
Umme Vahanvaty, MS, RD, CS
Registered Dietitian Nutritionist
Children’s Hospital of Los Angeles
Video
