Our son Grant is six years old and was diagnosed with Duchenne Muscular Dystrophy at age three. Duchenne is a genetic disease that destroys muscle, all of them. We are dealing with this disease as best we can and doing what we can to keep Grant ambulatory for as long as possible. To this end we do physical therapy, swimming, horseback riding, daily stretches and exercises at home, along with doctor appointments. A lot of things change once you receive a diagnosis of Duchenne and our lives are different from what we thought they would be, but as parents our jobs are the same, to help build decent people and make sure our kids have the best lives possible.
Duchenne is tough, but the love in our family is strong and we will do whatever it takes to deal with it and overcome whatever comes next.