17 Oct
  • By Matter Now
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Avidity Biosciences Receives Investment from CureDuchenne

Investment advances pre-clinical development of novel exon skipping therapies for treatment of patients with Duchenne muscular dystrophy October 17, 2018 08:00 AM Eastern Daylight Time LA JOLLA, Calif.–(BUSINESS WIRE)–Avidity Biosciences, a privately held biotech company pioneering a new class of precision medicines based upon antibody-oligonucleotide conjugates, announced today that CureDuchenne has made an equity investment […]

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17 Oct
  • By Matter Now
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CureDuchenne Invests in ZappRx Platform to Develop Specialty Prescribing Application for Patients Suffering from Duchenne Muscular Dystrophy

Nonprofit invests in leading specialty prescription and prior authorization solution provider to get Duchenne patients breakthrough medications, faster October 17, 2018 08:00 AM Eastern Daylight Time BOSTON–(BUSINESS WIRE)–ZappRx, Inc., a digital health company that streamlines specialty medication prescribing, announced today that CureDuchenne, a global leader in research, patient care, and innovation in improving and extending the […]

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09 Oct
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CureDuchenne Hosts “Futures” Conference in Boston, November 3-4

NEWPORT BEACH, Calif.–(BUSINESS WIRE)–Caregivers of Duchenne muscular dystrophy and patients suffering from the rare disease on the east coast will have an opportunity to learn about the best practices of care for Duchenne at a conference titled “Futures” hosted by nonprofit CureDuchenne. CureDuchenne Futures will be held on November 3rd and 4th, 2018 at the […]

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04 Oct
  • By Matter Now
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CureDuchenne Partners with Baebies to Accelerate Newborn Screening for Duchenne Muscular Dystrophy

Strategic investment and collaboration provide new parents with easy-to-access innovative screening option to positively impact the earliest stages of the Duchenne care continuum NEWPORT BEACH, Calif.–(BUSINESS WIRE) – CureDuchenne, the nation’s leading nonprofit funding scientific research and innovation for Duchenne muscular dystrophy, announced today it has entered into a three-year partnership with Baebies. A growth-stage […]

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07 Sep
  • By CureDuchenne User
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CureDuchenne Ventures Commits $500,000 to 4D Molecular Therapeutics to Advance Next-Generation AAV Delivery of Gene Therapy

NEWPORT BEACH, Calif. – (BUSINESS WIRE) – CureDuchenne, a national venture philanthropy nonprofit focused on finding a cure for Duchenne muscular dystrophy (DMD), announced today a $500,000 investment into 4D Molecular Therapeutics (4DMT), a world-leader in Therapeutic Vector Evolution for adeno-associated virus (AAV) gene therapy vector discovery and product development, in an effort to advance […]

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07 Sep
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DuchenneXchange.org Online Platform for Duchenne Community Reaches Milestones with Partner Organizations and Users

NEWPORT BEACH, Calif.–(BUSINESS WIRE)–The DuchenneXchange.org has a reason to celebrate on World Duchenne Day. The dedicated online platform for the Duchenne muscular dystrophy (DMD) community announced today it has surpassed enrollment goals of partner organizations and users since it was introduced to the community just five weeks ago. To date, 13 Duchenne-related nonprofit organizations and 700 community […]

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30 Aug
  • By CureDuchenne User
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Crispr Halted Muscular Dystrophy In Dogs. Someday, It Might Cure Humans.

Dear Friends, Today, our partner Dr. Eric Olson and his team at Exonics, a company CureDuchenne helped form, published data in the online journal, Science that shows an increase in dystrophin restoration of 92% in the heart of the canine’s. As the only Duchenne nonprofit organization to support Dr. Eric Olson’s work through Exonics, and […]

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06 Aug
  • By CureDuchenne User
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DuchenneXchange.org Hosts Free Webinar to Showcase Features of Online Platform Designed to Unite, Support and Educate Duchenne Community

DuchenneXchange, the dedicated online platform built by the Duchenne community for the Duchenne community, will host a free hour-long webinar for Duchenne community members to learn about the benefits of the DuchenneXchange on Tuesday, August 7, 2018 at 1:00 PM (PDT) / 4:00PM (EDT). Those interested are encouraged to register and dial-in at: Registration Link […]

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01 Aug
  • By CureDuchenne User
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Dedicated Online Platform DuchenneXchange.org Launches to Unite, Support and Educate Duchenne Community

Dedicated Online Platform DuchenneXchange.org Launches to Unite, Support and Educate Duchenne Community Collaborative site offers a trustworthy, moderated online space where Duchenne families, caregivers, NGOs and pharmaceutical companies can connect and share knowledge NORWALK, CT (July 31, 2018) — The Duchenne muscular dystrophy (DMD) community now has a dedicated online platform where they can connect […]

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