04 Mar
  • By leilanifera
  • Cause in

Napa in Newport

The 3rd Annual Napa in Newport Wine Auction brings together 30 of Napa’s finest wineries, epicurean cuisine and a vintner hosted dining experience at every table. Napa in Newport benefits CureDuchenne, a local organization with global impact, aimed at saving the lives of children with Duchenne muscular dystrophy.

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22 Oct
  • By leilanifera
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CureDuchenne Cares Family Summit

The CureDuchenne Cares Family Summit is a free, unique educational event for families who have loved ones with Duchenne muscular dystrophy. Currently with no cure, education on various care and management practices are very important to extend quality of life for developing children with this disease.

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20 Oct
  • By leilanifera
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2016 Dealing for Duchenne – Cambridge

An Evening Offering Delicious food provided by local chefs, wine & beer bar with signature cocktails throughout the evening, photo-ops with Vegas characters of yesteryear, classic Vegas gaming tables including: poker, blackjack & roulette, auctions & prizes throughout.

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20 Oct
  • By L Fera
  • Cause in

2016 Dealing for Duchenne – Cambridge

An Evening Offering Delicious food provided by local chefs, wine & beer bar with signature cocktails throughout the evening, photo-ops with Vegas characters of yesteryear, classic Vegas gaming tables including: poker, blackjack & roulette, auctions & prizes throughout.

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15 Oct
  • By L Fera
  • Cause in

2016 Dealing for Duchenne – San Antonio

Dealing for Duchenne – San Antonio is a must-attend charity event benefiting CureDuchenne. Join us for an exciting night of casino games as we raise money for research for Duchenne muscular dystrophy.

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15 Oct
  • By L Fera
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2016 All in for Duchenne

The 4th Annual All in for Duchenne to benefit Braedan’s Bridge is happening in in Sylvania, OH. 100% of the proceeds from this event will fund research to find a cure for Duchenne muscular dystrophy. This sports-themed event held in a sports complex field house will feature games, raffles, silent auction, dinner by Jed’s Barbeque […]

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11 Oct
  • By L Fera
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SareptAssist Webinar

CureDuchenne is hosting a webinar with Sarepta Therapeutics to provide the Duchenne community an overview of Sarepta’s patient support program, SareptAssist. The webinar will address patient referalls, considerations for starting therapy, case management process and financial assistance programs.

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26 Aug
  • By L Fera
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2016 Getzlaf Golf Shootout

Join Ryan Getzlaf, captain of the Anaheim Ducks, for the Getzlaf Golf Shootout – a two-day charity event, including a reception and a golf tournament – that brings together athletes, celebrities and community leaders, all teaming up in support of CureDuchenne.

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13 Jun
  • By L Fera
  • Cause in

Bamboo Therapeutics Webinar

During the webinar, Dr. Samulski will explain the basics of gene therapy and describe Bamboo’s approach to developing a treatment for Duchenne; by utilizing a disabled virus to deliver a small, highly optimized version of the dystrophin gene systemically to skeletal and cardiac muscle.

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30 Apr
  • By L Fera
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2016 Blingo to CureDuchenne

BLINGO is a night of celebrity bingo, bling and celebration where Philadelphians come together to make a huge difference for hundreds of thousands of boys. Join our celebrity bingo callers to dine, drink, play bingo and win great prizes.

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